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California · Nonprofit

ALS UNITED ORANGE COUNTY

ALS UNITED ORANGE COUNTY (California) receives grants from 21 organizations whose IRS filings report $1,490,881 to it, the largest being ALS Network ($1,182,236). 9 of them have funded it in more than one year.

Revenue FY2024
$886k
Funders on record
21
Grants received
$1.5M
Net assets
$1.0M
9/21 repeat funders
01What it does

What Als United Orange County does

Mission

The als association is the only national non-profit voluntary health organization dedicated solely to the fight against als, or amyotrophic lateral sclerosis (often called lou gehrig's disease). The association's mission is to find a cure for and improve the living conditions of those suffering from als.

As stated on its FY2024 Form 990.

Programs

  1. The als association provides patients and their families with care service programs including telephone consultations and in-home visits by care services staff, physical therapists and speech therapists. The association also purchases augmentive communication devices for als patients and provides such devices via a computer loan bank. The association has helped over 150 als patients and relatives throughout the year. Respite care grants (up to $500.00) are offered to eligible families, free transportation to md appointments is offered for patients living with als. Caregivers rest and relaxation treatment is to primary care taker. The loan closet provides a lot of equipment or we purchase new equipment items if the equipment is not available.

    $595,442 spent
    100% of program spending
  2. The als association seeks to promote awareness and understanding of als and the work of the association by providing up-to-date information and education materials to the als community, als patients and families, caregivers, researchers and members in the health care fields. Our vision is to create a world without als. Our mission is to lead the fight to treat and cure als thoughout research and education. The als orange county chapter donates contributes $30,000 every year to the uci neurology als clinic to help provide staff, research opportunities. In addition, an annual als symposium is offerred to pals and families to learn the latest information in research and community resources. Monthly support group meetings are offered to bring education and experience sharing.

  3. Equipment loan program: fixed donated equipment, purchases of new equipment and repair part.

The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $595,442.

02The organization over time

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Natalie Villegas

Executive director

As listed on its FY2024 Form 990.

03Who funds it

Who funds it, year by year

2017 → 2023: the base held at 6 funders, grant income rose $104k → $203k.

7 of 21 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 17% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ALS UNITED ORANGE COUNTY’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ALS UNITED ORANGE COUNTY leans on a few funders — its largest provides 79% of grant income and the top three 89%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS UNITED ORANGE COUNTY.

79%
largest funder
89%
top three
~2
effective funders

Largest funder’s share by year: 2017 55% · 2018 54% · 2019 81% · 2020 88% · 2021 83% · 2022 92% · 2023 85% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

29% of ALS UNITED ORANGE COUNTY's funders are still giving 3 years after their first grant; 43% give in more than one year at all.

first grant+1y+2y+3y+4y+5y+6y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

97% of ALS UNITED ORANGE COUNTY's grant income comes from California funders.

ID
MN
NJ
CT
CA
VA
GA

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
California out of state home

Funder states come from each funder’s own filing. $246k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

ALS UNITED ORANGE COUNTY holds deeper cash reserves than three-quarters of the 13,769 health nonprofits its size.

Operating margin15% · above the median
Months of reserve15.5mo · top quartile

this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024

Organizations like ALS UNITED ORANGE COUNTY

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In California

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

73% of spending goes to programs.

Program 73%Management 23%Fundraising 4%

Governance

14
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy–Document retention–Board reviewed the 990–Audited financials

Footprint & structure

Files a return copy in 1 state

CA

Screen this organization

A dated, signed PDF of the compliance screen for ALS UNITED ORANGE COUNTY: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ALS UNITED ORANGE COUNTY?
ALS UNITED ORANGE COUNTY (California) receives grants from 21 organizations whose IRS filings report $1,490,881 to it, the largest being ALS Network ($1,182,236). 9 of them have funded it in more than one year.
How many funders does ALS UNITED ORANGE COUNTY have?
IRS filings report 21 organizations giving $1,490,881 in grants to ALS UNITED ORANGE COUNTY, 9 of which have funded it in more than one year.
Who is the largest funder of ALS UNITED ORANGE COUNTY?
ALS Network is the largest funder on record, with $1,182,236 in grants. The full list of funders is on this page.
How can an organization like ALS UNITED ORANGE COUNTY find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2024–2024), and the filings of 21 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing