California · Nonprofit
ALS Network
ALS Network (California) receives grants from 130 organizations whose IRS filings report $8,148,191 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,637,776). 59 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $13M
- Funders on record
- 130
- Grants received
- $8.1M
- Net assets
- $15M
What ALS Network does
Mission
The mission of ALS Network is to partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.
As stated on its FY2025 Form 990.
Programs
Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/24 are as follows:Care Management -Strategically based in and near patients' home communities, ALS Network Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from ALS specialty care clinics. Among other things, CMs provide critical information and referrals to patients and families, help patients obtain medical and communication-related equipment, connect them with essential resources, advocate for the uninsured, explain medical directives, and offer psychosocial support. In addition, the CM program provides help navigating complex benefits systems, more than 30 monthly support groups, bereavement support, educational webinars, safety assessments, in-clinic support, and many other things. This program is available throughout California and Hawaii. This program provided support to over 2,500 people living with with ALS and their families. Service was available for 365 days.
$5,605,791 spentof which $1,535,124 as grants55% of program spendingCommunity Outreach & Awareness/Public Policy -Community outreach events, including our ALS Walk & Rolls, are opportunities to bring hope and a sense of community to persons with ALS and their families. By coming together to share their stories, people with ALS and their families, as well as those who have lost loved ones to ALS, find strength and support with one another. Community outreach events create an environment of empowerment where families and friends of persons with ALS are given an opportunity to affect public policy by signing petitions that are sent to the legislators representing their districts. These events also bring awareness to local communities of those fighting ALS and of the support available to them through ALS Network.The ALS Network Public Policy and Leadership Development program is intended to increase understanding, education and awareness of the devastating impact of ALS and the role that ALS Network plays in achieving the three core components of our mission; care and support for people with ALS and families, global research for treatments and cures, and important Public Policy initiatives. Through these efforts, we engage volunteers in the…
$1,908,583 spent19% of program spendingALS Clinic Support - ALS Network is committed to making sure people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to high quality specialty care is one of the cornerstones of the ALS Network wraparound model of care. Care services staff members are embedded in each ALS specialty clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, mental health professional, and ALS Network liaison. The ALS clinics supported by ALS Network provide compassionate care in a supportive, family-oriented atmosphere. In addition to supporting established ALS specialty clinics, the ALS Network supports,…
$1,601,879 spent16% of program spendingALS Network advances scientific discovery by providing financial support for research aimed at developing treatments and cures for ALS and related neurodegenerative diseases. We award competitive grants and fund collaborative research programs with universities, pharmaceutical companies, and ALS research organizations, using a rigorous proposal, evaluation, and oversight process to ensure scientific merit and impact
$1,099,187 spent$126,500 earned by the program11% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $10,215,440.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $8.7M to $11M (+26%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2019 41% · 2020 29% · 2021 42% · 2022 32% · 2023 50% · 2024 33% · 2025 26%. Grants only. Government contracts and fees sit inside program revenue.
97% of ALS Network’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Sheri Strahl
CEO & President
Board chair
Patricia Shuler Schimbor
Board Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2024 and FY2025 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 19 funders to 43 funders, grant income rose $244k → $929k.
32 of 130 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 60% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ALS Network’s funders (the co-funder graph). Top 30 of 130 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ALS Network has a broad base — no single funder exceeds 20% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
81% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS Network.
Largest funder’s share by year: 2017 33% · 2018 36% · 2019 31% · 2020 16% · 2021 22% · 2022 17% · 2023 16% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
34% of ALS Network's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
60% of ALS Network's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $3.3M that is directly attributable, 76% of it comes from California funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $4.9M arriving through sponsors registered in 16 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ALS Network runs a healthier operating margin than three-quarters of the 2,969 health nonprofits its size.
this organization peer median middle 50% of peers· 2,969 health nonprofits $10M–$100M, FY2025
Organizations like ALS Network
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Screen this organization
A dated, signed PDF of the compliance screen for ALS Network: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ALS Network?
- ALS Network (California) receives grants from 130 organizations whose IRS filings report $8,148,191 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,637,776). 59 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ALS Network have?
- IRS filings report 130 organizations giving $8,148,191 in grants to ALS Network, 59 of which have funded it in more than one year.
- Who is the largest funder of ALS Network?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $1,637,776 in grants. The full list of funders is on this page.
- How can an organization like ALS Network find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 130 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing