New York · Nonprofit
ALS UNITED GREATER NEW YORK INC
ALS UNITED GREATER NEW YORK INC (New York) receives grants from 183 organizations whose IRS filings report $6,040,923 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($742,029). 94 of them have funded it in more than one year.
- Revenue FY2025
- $4.5M
- Funders on record
- 183
- Grants received
- $6.0M
- Net assets
- $5.1M
What Als United Greater New York Inc does
Mission
To support & empower the als community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, & providing comprehensive care to individuals & families affected by als.
As stated on its FY2025 Form 990.
Programs
Care services: als united greater new york provides a wide range of services for people with als and their families living in new york city, long island, lower and mid-hudson valley and northern and central new jersey. The organization sponsors ten multidisciplinary clinics in the region, makes loans of medical equipment and assistive communication devices, provides grants to patients to alleviate some of the considerable financial burden of the disease, holds patient and caregiver educational symposia and monthly support groups, conducts home visits, provides transportation to quarterly clinic appointments, and offers social work and referral services.
$3,227,984 spentof which $259,685 as grants76% of program spendingResearch: als united greater new york has funded close to $17 million in als-specific research efforts to support innovative and diverse scientific research studies and clinical trials worldwide. The organization is particularly proud to support the milton safenowitz post-doctoral fellowship program, which encourages and facilitates promising young scientists to focus their future work in the field of als research.
$412,408 spent10% of program spendingPublic awareness and education: als united greater new york works to promote awareness to affected families to help them understand all facets of the complex and devastating disease that is als, as well as the work of the organization among the general public, healthcare professionals, and the scientific community. Through external relations, our website and social media channels, the organization continually raises awareness about als and the search for a cure. On average, 63,000 viewers visit our website annually to access this vital source of information for those battling the disease and looking for information about services and the latest news about the disease. Our social media platforms, including facebook, instagram, youtube, x and linkedin reach 18,500 followers.
$361,929 spent8% of program spendingAdvocacy: als united greater new york works to educate the public as well as policy makers at the federal and state levels in order to drive them toward smart decisions about als related to research, treatment and access to care. At the federal level, the organization has been instrumental in securing annual funding for the department of defense's als research program, the national als registry at the centers for disease control, and the national institutes of health als research program. At the state level, the organization continues to build relationships with the new york and new jersey state legislatures to secure government funding for local care services that directly benefit people with als and their families.
$272,293 spent6% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,274,614.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $6.1M to $7.1M (+17%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2019 12% · 2020 9% · 2021 17% · 2022 26% · 2023 21% · 2024 18% · 2025 15%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Kristen Cocoman
President & CEO
Board chair
Allen Popowitz Esq
Chairman
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 28 funders to 64 funders, grant income rose $443k → $791k.
23 of 183 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 44% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ALS UNITED GREATER NEW YORK INC’s funders (the co-funder graph). Top 30 of 183 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ALS UNITED GREATER NEW YORK INC has a broad base — no single funder exceeds 12% of grant income, and it takes 9 funders to reach half.
the vertical line marks half of all grant income — 9 funders to its left
58% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS UNITED GREATER NEW YORK INC.
Largest funder’s share by year: 2017 28% · 2018 19% · 2019 13% · 2020 18% · 2021 13% · 2022 10% · 2023 13% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
41% of ALS UNITED GREATER NEW YORK INC's funders are still giving 3 years after their first grant; 51% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
ALS UNITED GREATER NEW YORK INC draws 64% of its grant income from funders outside New York, across 23 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.7M arriving through sponsors registered in 15 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like ALS UNITED GREATER NEW YORK INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Part of a family of 1 related entity
- Als United Inc · exempt
Screen this organization
A dated, signed PDF of the compliance screen for ALS UNITED GREATER NEW YORK INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ALS UNITED GREATER NEW YORK INC?
- ALS UNITED GREATER NEW YORK INC (New York) receives grants from 183 organizations whose IRS filings report $6,040,923 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($742,029). 94 of them have funded it in more than one year.
- How many funders does ALS UNITED GREATER NEW YORK INC have?
- IRS filings report 183 organizations giving $6,040,923 in grants to ALS UNITED GREATER NEW YORK INC, 94 of which have funded it in more than one year.
- Who is the largest funder of ALS UNITED GREATER NEW YORK INC?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $742,029 in grants. The full list of funders is on this page.
- How can an organization like ALS UNITED GREATER NEW YORK INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Als United Greater New York →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 183 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing