New Jersey · Nonprofit
WILLIAMS SYNDROME ASSOCIATION INC
WILLIAMS SYNDROME ASSOCIATION INC (New Jersey) receives grants from 91 organizations whose IRS filings report $2,002,709 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($286,062). 42 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $2.0M
- Funders on record
- 91
- Grants received
- $2.0M
- Net assets
- $2.8M
What Williams Syndrome Association Inc does
Mission
To advance the interests of all individuals with williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.
As stated on its FY2024 Form 990.
Program
We support our mission by:- providing information and emotional support to individuals with characteristics of williams syndrome, their families, and the professionals who work with them- developing programs and services to help build strengths and meet challenges from early childhood through adulthood- increasing public awareness and understanding of williams syndrome, and- encouraging and supporting research into a wide range of issues related to williams syndrome
$1,520,913 spentof which $79,589 as grants$678,960 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $1,520,913.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $2.9M to $2.1M (−28%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
59% of WILLIAMS SYNDROME ASSOCIATION INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 13 funders to 29 funders, grant income rose $84k → $236k.
20 of 91 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 77% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of WILLIAMS SYNDROME ASSOCIATION INC’s funders (the co-funder graph). Top 30 of 91 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
WILLIAMS SYNDROME ASSOCIATION INC has a broad base — no single funder exceeds 14% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
79% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund WILLIAMS SYNDROME ASSOCIATION INC.
Largest funder’s share by year: 2017 37% · 2018 53% · 2019 31% · 2020 26% · 2021 23% · 2022 45% · 2023 21% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
29% of WILLIAMS SYNDROME ASSOCIATION INC's funders are still giving 3 years after their first grant; 46% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
77% of WILLIAMS SYNDROME ASSOCIATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $466k that is directly attributable, 100% of it comes from funders outside New Jersey, across 30 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.5M arriving through sponsors registered in 16 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
WILLIAMS SYNDROME ASSOCIATION INC is better cushioned than half of the 8,126 health nonprofits its size.
this organization peer median middle 50% of peers· 8,126 health nonprofits $1M–$10M, FY2024
Organizations like WILLIAMS SYNDROME ASSOCIATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
71% of spending goes to programs.
Governance
Public support
93%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 15 states
Screen this organization
A dated, signed PDF of the compliance screen for WILLIAMS SYNDROME ASSOCIATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds WILLIAMS SYNDROME ASSOCIATION INC?
- WILLIAMS SYNDROME ASSOCIATION INC (New Jersey) receives grants from 91 organizations whose IRS filings report $2,002,709 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($286,062). 42 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does WILLIAMS SYNDROME ASSOCIATION INC have?
- IRS filings report 91 organizations giving $2,002,709 in grants to WILLIAMS SYNDROME ASSOCIATION INC, 42 of which have funded it in more than one year.
- Who is the largest funder of WILLIAMS SYNDROME ASSOCIATION INC?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $286,062 in grants. The full list of funders is on this page.
- How can an organization like WILLIAMS SYNDROME ASSOCIATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 91 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing