Massachusetts · Nonprofit
THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION
THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (Massachusetts) receives grants from 35 organizations whose IRS filings report $3,536,504 to it, the largest being JEWISH COMMUNITY FOUNDATION OF SAN DIEGO ($1,300,000). 24 of them have funded it in more than one year, and 82% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.2M
- Funders on record
- 35
- Grants received
- $3.5M
- Net assets
- $2.2M
What The Adenoid Cystic Carcinoma Research Foundation does
Mission
The adenoid cyctic carcinoma research foundation (accrf) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.
As stated on its FY2025 Form 990.
Programs
Scientific research: accrf supports and coordinates basic, translational and clinical research that is likely to lead to better outcomes for patients with adenoid cystic carcinoma. The foundation facilitates projects that span biobanking, model development, diagnostics, functional studies, target identification, preclinical drug screening and clinical trials.
$909,594 spentof which $401,246 as grants$187,661 earned by the program89% of program spendingPatient education: accrf provides multiple ways in which individuals with adenoid cystic carcinoma and their caregivers may learn about their patient journeys. By building community through its website, emails, social media, patient meetings webinars and other communications, the foundation provides knowledge about treatment options, supportive networks and hope for its patients.
$110,296 spent11% of program spending
The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $1,019,890.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $1.9M to $2.6M (+37%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
77% of THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 11 funders to 14 funders, grant income fell $488k → $402k.
16 of 35 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 82% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION’s funders (the co-funder graph). Top 30 of 35 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION leans on a few funders — its largest provides 37% of grant income and the top three 69%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION.
Largest funder’s share by year: 2017 72% · 2018 63% · 2019 34% · 2020 25% · 2021 35% · 2022 71% · 2023 62% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION's funders are still giving 3 years after their first grant; 69% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
82% of THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $637k that is directly attributable, 100% of it comes from funders outside Massachusetts, across 13 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.9M arriving through sponsors registered in 14 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION holds deeper cash reserves than three-quarters of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
73%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 12 states
Screen this organization
A dated, signed PDF of the compliance screen for THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION?
- THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (Massachusetts) receives grants from 35 organizations whose IRS filings report $3,536,504 to it, the largest being JEWISH COMMUNITY FOUNDATION OF SAN DIEGO ($1,300,000). 24 of them have funded it in more than one year, and 82% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION have?
- IRS filings report 35 organizations giving $3,536,504 in grants to THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION, 24 of which have funded it in more than one year.
- Who is the largest funder of THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION?
- JEWISH COMMUNITY FOUNDATION OF SAN DIEGO is the largest funder on record, with $1,300,000 in grants. The full list of funders is on this page.
- How can an organization like THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 35 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing