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The Adenoid Cystic Carcinoma Research Foundation

THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (accrf) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.

$464k
Granted FY2024still arriving
8
Grants FY2024still arriving
6
States reached
$100k
Largest
01What you fund
0169% classified

What you funded, over time

Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY20172024.

Education$1.5MHealth$1.2MOther$1.2M
02FY2024 · 8 grants

Where the money goes

Your grants by size, and where they go.

The 8 grants below total $417,325 — the rows itemised in this filing. The $464,311 headline is the total grant expense reported on the return, so the remaining $46,986 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

By grant size · FY2024

  • $10k–50k4 grants · $167k
  • $50k–250k4 grants · $250k
$50,000
Median grant
6
States reached
$2.3M
Total assets
Largest grants
RecipientAmount
MISSION VIEJO HOSPITAL AND UCLA$100,000
MASS GENERAL$50,000
MD ANDERSON CANCER CENTER$50,000
DANA FARBER CANCER INSTITUTE$50,000
H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE INC$49,999
VIRGINA COMMONWEALTH UNIVERSITY OF MEDICINE$49,989
BAYLOR COLLEGE OF MEDICINE$36,768
RUTGERS CANCER INSTITUTE$30,569
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY17–24) land where the poverty rate runs at 15%, against an area that typically sits at 12%. 85% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 12%THE BROAD INSTITUTE INC: $25k → 8%HARVARD MEDICAL SCHOOL: $200k → 16%UNIVERSITY OF PENNSYLVANIA: $75k → 22%MISSION VIEJO HOSPITAL AND UCLA: $100k → 10%COLUMBIA UNIVERSITY: $200k → 17%MD ANDERSON CANCER CENTER: $51k → 16%UNIVERSITY OF NEW MEXICO: $83k → 14%GEORGETOWN UNIVERSITY: $165k → 14%H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE INC: $50k → 13%UNIVERSITY OF MIAMI: $25k → 15%UNIVERSITY OF MICHIGAN: $25k → 14%UNIVERSITY OF CHICAGO: $317k → 14%RUTGERS CANCER INSTITUTE: $31k → 8%CONQUER CANCER FOUNDATION: $25k → 9%VIRGINA COMMONWEALTH UNIVERSITY OF MEDICINE: $50k → 22%JOHN HOPKINS UNIVERSITY: $100k → 19%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $129k → 8%BRIGHAM AND WOMEN'S HOSPITAL: $83k → 16%MISSION HOSPITAL - MISSION VIEJO: $25k → 10%THE MOUNT SINAI HOSPITAL: $25k → 17%MD ANDERSON CANCER CENTER: $50k → 16%UNIVERSITY OF NEW MEXICO: $25k → 14%UNIVERSITY OF MICHIGAN: $20k → 14%UNIVERSITY OF CHICAGO: $220k → 14%JOHNS HOPKINS UNIVERSITY: $25k → 19%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $20k → 8%BRIGHAM AND WOMEN'S HOSPITAL: $25k → 16%MOUNT SINAI SCHOOL OF MEDICINE: $25k → 17%BAYLOR COLLEGE OF MEDICINE: $37k → 16%UNIVERSITY OF NEW MEXICO: $138k → 14%UNIVERSITY OF CHICAGO: $25k → 14%JOHNS HOPKINS UNIVERSITY: $13k → 19%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $10k → 8%BRIGHAM AND WOMEN'S HOSPITAL: $24k → 16%THE MOUNT SINAI HOSPITAL: $12k → 17%MASSACHUSETTS EYE AND EAR INFIRMARY: $52k → 8%DANA-FARBER: $243k → 16%MASSACHUSETTS EYE AND EAR INFIRMARY: $48k → 8%DANA FARBER: $234k → 16%MASSACHUSETTS EYE AND EAR INFIRMARY: $25k → 8%DANA FARBER CANCER INSTITUTE: $50k → 16%DANA-FARBER: $25k → 16%DANA-FARBER CANCER INSTITUTE: $25k → 16%DANA FARBER: $25k → 16%DANA-FARBER: $25k → 16%MASS GENERAL: $50k → 16%DANA FARBER CANCER INSTITUTE: $25k → 16%MASSACHUSETTS GENERAL HOSPITAL: $25k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

IL
MI
NY
MA
PA
NJ
CA
VA
MD
NM
TN
DC
TX
FL

Grants abroad, by region — $94k on the FY2024 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Germany$44k · 47% · 1 grant

Stated purpose: IDENTIFYING NOVEL TREATMENT OPTIONS AS WELL AS PREDICTIVE BIOMARKERS FOR EXISTING IMMUNE THERAPIES IN ADVANCED ACC. (CHARITE COMPREHENSIVE CANCER CENTER)

Netherlands$25k · 27% · 1 grant

Stated purpose: MULTICENTER VALIDATION OF P63 IMMUNOHISTOCHEMISTRY (IHC) AS A PROGNOSTIC MARKER FOR ADENOID CYSTIC CARCINOMA (RADBOUD)

Australia$25k · 27% · 1 grant

Stated purpose: A PRELUDE TOWARDS TRANSFORMING ADENOID CYSTIC CARCINOMA INTO AN IMMUNE HOT TUMOUR. (MACQUARIE UNIVERSITY)

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.

03Your edge
repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

76%of every dollar goes to organizations you’ve funded before.
$2.5M · 9 repeat orgs$783k to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +49% since the first grant, against +39% for the ones you funded once.

9 repeat relationships — 2 still active in FY2024, 7 since wound down; 6 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

9
10

Total granted

$2.5M
$465k

Median revenue growth · since first grant

+49%
+39%

Still filing today

56%
60%

New vs renewed · share of each year

In FY2024, 24% of grant dollars renewed an existing relationship; $317k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

  • Dana-Farber Cancer Institute Inc
    5× · 2018–2024 · $651k · revenue +98%
  • University of Chicago
    3× · 2019–2022 · $562k · revenue +25%
  • MG
    MASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN
    3× · 2017–2020 · $132k · revenue +85%

Funded once

  • GEORGETOWN UNIVERSITYgraduated
    one grant, 2017 · $165k · revenue +47%
  • JOHNS HOPKINS UNIVERSITYgraduated
    one grant, 2022 · $100k · revenue +26%
  • UO
    UNIVERSITY OF MIAMI LEONARD MMILLER SCHOOL
    one grant, 2020 · $25k

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
3
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
4
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
5
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
6
Howard Hughes Medical Institute

The mission of the institute has remained constant since its founding in 1953. as its restated articles of incorporation state the primary purpose and objective of the howard hughes medical institute shall be the promotion of human…

Health
7
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
8
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
9
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
10
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
11
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
12
Massachusetts Eye and Ear Associates Inc

MASSACHUSETTS EYE AND EAR ASSOCIATES, INC. ("MEEA") IS A SPECIALTY PHYSICIAN GROUP PRACTICE. IT PROVIDES CARE FOR PATIENTS OF THE MASSACHUSETTS EYE AND EAR INFIRMARY, INC. ("MEEI"), A RELATED ORGANIZATION. THE PRACTICE SPECIALIZES IN…

Health

For reference, the grantee most central to the portfolio’s shape is Georgetown University and the most unlike its peers is Dana-Farber Cancer Institute Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

Your grantees are a median of 56 years old; the field is 16. You back the established end — and your money leans older still.

THE FIELDby orgYOUR GRANTEESby number22%0%<5yr14%0%5–10yr19%26%10–20yr16%4%20–35yr13%17%35–55yr16%52%55yr+
THE FIELDby orgYOUR MONEYby value22%0%<5yr14%0%5–10yr19%13%10–20yr16%1%20–35yr13%15%35–55yr16%70%55yr+

The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.

Closures · last 5 years

The orgs you fund almost never close 0.0% lost their exemption, against 13% of the field you don’t fund.

orgs you fund
0.0%0/29
the rest of the field
13%
240,396/1,819,536

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

04the grantee network

19 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 20172025, not grant rows in a single year — so this will not match the grant count on the cover. 19 of the 29 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
18/19
Grantees still filing
18/19
Grew since you first funded

Where your money sits — by cause, then by grantee

University of Chicago — $562,017 · EducationUniversity of ChicagoPresident and Fellows of Harvard College — $200,000 · EducationPresident and Fellows of Harvard CollegeTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK — $200,000 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE C…GEORGETOWN UNIVERSITY — $165,480 · EducationGEORGETOWN UNIVERSITYMassachusetts Institute of Technology — $159,457 · EducationMassachusetts Institute of TechnologyJOHNS HOPKINS UNIVERSITY — $100,000 · EducationJOHNS HOPKINS UNIVERSITYTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA — $75,000 · Education+2 more — $61,768 · EducationUTMD ANDERSON — $632,471 · OtherUTMD ANDERSONUNIVERSITY OF NEW MEXICO — $245,097 · OtherUNIVERSITY OF NEW MEXICOREGENTS UNIV OF CALIFORNIA — $100,000 · OtherREGENTS UNIV OF CALIFORNIAVCUVCU HEALTH CAMPUS — $49,989 · OtherREGENTS OF THE UNIVERSITY OF MICHIGAN — $45,258 · Other+5 more — $130,569 · Other+5 moreDana-Farber Cancer Institute Inc — $651,328 · HealthDana-Farber Cancer Institute IncMASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN — $131,612 · HealthMASS GENERAL BRIGHAM INCORPORATED…MASSACHUSETTS EYE & EAR INFIRMARY — $124,557 · HealthMASSACHUSETTS EYE & EAR INFIRMARYMASS GENERAL BRIGHAM INCORPORATED — $50,000 · HealthH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC — $49,999 · Health+5 more — $149,986 · Health+5 more
Education$1,523,722Other$1,203,384Health$1,157,482

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$100Mgrantee revenue →↑ your share of their budgetDana-Farber Cancer Institute Inc — $651,328 over 5y, 0.0% of budgetUniversity of Chicago — $562,017 over 3y, 0.0% of budgetPresident and Fellows of Harvard College — $200,000 over 1y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK — $200,000 over 1y, 0.0% of budgetGEORGETOWN UNIVERSITY — $165,480 over 1y, 0.0% of budgetMassachusetts Institute of Technology — $159,457 over 3y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN — $131,612 over 3y, 0.0% of budgetMASSACHUSETTS EYE & EAR INFIRMARY — $124,557 over 3y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY — $100,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA — $75,000 over 1y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED — $50,000 over 1y, 0.0% of budgetH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC — $49,999 over 1y, 0.0% of budgetTHE JOHNS HOPKINS HOSPITAL — $37,500 over 2y, 0.0% of budgetTHE MOUNT SINAI HOSPITAL — $37,486 over 2y, 0.0% of budgetBaylor College of Medicine — $36,768 over 1y, 0.0% of budgetCONQUER CANCER FOUNDATION OF THE AMERICAN SOCIETY OF CLINICAL ONCOLOGY — $25,000 over 1y, 0.1% of budgetMISSION HOSPITAL REGIONAL MEDICAL CENTER — $25,000 over 1y, 0.0% of budgetThe Broad Institute Inc — $25,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI — $25,000 over 1y, 0.0% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

Government reliance of your grantees

Every dot is one organization The Adenoid Cystic Carcinoma Research Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.

2024
202122232425
no gov · 10%0%1%3%5%your share of their income ↑0%10%20%30%40%share of the org’s income from governmentmedian 12%
  • Massachusetts Institute of Technology35% of income from government
  • The Broad Institute Inc19% of income from government
  • Johns Hopkins University12% of income from government
  • President and Fellows of Harvard College7% of income from government
  • Dana-Farber Cancer Institute Inc7% of income from government
  • The Johns Hopkins Hospital0% of income from government
no gov moneyreceives it· size = income
1get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY2025

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to The Adenoid Cystic Carcinoma Research Foundation?

Find your warmest path to The Adenoid Cystic Carcinoma Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 29 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph