Pennsylvania · Nonprofit
Spina Bifida Assoc of Western PA
Spina Bifida Assoc of Western PA (Pennsylvania) receives grants from 23 organizations whose IRS filings report $571,992 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($300,100). 13 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $763k
- Funders on record
- 23
- Grants received
- $572k
- Net assets
- $604k
What Spina Bifida Assoc of Western PA does
Mission
The Spina Bifida Association of Western Pennsylvania (SBAWP) improves the quality of life for people with spina bifida and other disabilities and their families by providing a continuum of direct services, education and advocacy. Each year, more than 1000 people with disabilities live happy, healthy, productive and independent lives because of SBAWP programs and services.
As stated on its FY2025 Form 990.
Program
Program services to provide a continuum of direct service, education and advocacy
$680,170 spent$412,485 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $680,170.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $1.2M to $899k (−24%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 21%. Grants only. Government contracts and fees sit inside program revenue.
31% of Spina Bifida Assoc of Western PA’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Joseph F McCormick
Chairman
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 7 funders, grant income rose $20k → $47k.
6 of 23 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 65% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Spina Bifida Assoc of Western PA’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Spina Bifida Assoc of Western PA leans on a few funders — its largest provides 52% of grant income and the top three 68%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
70% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Spina Bifida Assoc of Western PA.
Largest funder’s share by year: 2017 37% · 2018 39% · 2019 69% · 2020 62% · 2021 83% · 2022 72% · 2023 33% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
27% of Spina Bifida Assoc of Western PA's funders are still giving 3 years after their first grant; 57% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
65% of Spina Bifida Assoc of Western PA's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $202k that is directly attributable, 51% of it comes from funders outside Pennsylvania, across 8 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $370k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Spina Bifida Assoc of Western PA's revenue fell 49% between 2020 and 2025.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like Spina Bifida Assoc of Western PA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Pennsylvania
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
84%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Part of a family of 2 related entities
- SBAWP Housing Inc · exempt
- Community Living and Support Services In · exempt
Screen this organization
A dated, signed PDF of the compliance screen for Spina Bifida Assoc of Western PA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Spina Bifida Assoc of Western PA?
- Spina Bifida Assoc of Western PA (Pennsylvania) receives grants from 23 organizations whose IRS filings report $571,992 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($300,100). 13 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Spina Bifida Assoc of Western PA have?
- IRS filings report 23 organizations giving $571,992 in grants to Spina Bifida Assoc of Western PA, 13 of which have funded it in more than one year.
- Who is the largest funder of Spina Bifida Assoc of Western PA?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $300,100 in grants. The full list of funders is on this page.
- How can an organization like Spina Bifida Assoc of Western PA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Spina Bifida Assoc of Western PA →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 23 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing