Kentucky · Nonprofit
Spina Bifida Association of Kentucky Inc
Spina Bifida Association of Kentucky Inc (Kentucky) receives grants from 14 organizations whose IRS filings report $374,487 to it, the largest being THE WHAS CRUSADE FOR CHILDREN INC ($130,350). 10 of them have funded it in more than one year.
- Revenue FY2025
- $181k
- Funders on record
- 14
- Grants received
- $374k
- Net assets
- $171k
What Spina Bifida Association of Kentucky Inc does
Mission
Our mission is to build a better future for all those impacted by Spina Bifida. The Spina Bifida Association of Kentucky achieves this mission by providing FREE educational social and financial programs for those with Spina Bifida in Kentucky and Southern Indiana. Spina Bifida is a permanently disabling birth defect that presents lifelong physical and emotional challenges but with proper medical intervention those with Spina Bifida can live a full and productive life.
As stated on its FY2025 Form 990-EZ.
Programs
SPINA BIFIDA FAMILY CAMP annual 3-day weekend at the Center for Courageous Kids in Scottsville KY. This camp allows children with Spina Bifida and their families to attend an accessible medically staffed sleep-away camp and participate in fishing archery swimming and more. In 2025 32 families attended this camp.
$20,500 spent16% of program spendingCHILDRENS PROGRAMS From newborn to teen providing social and educational programming to help kids with Spina Bifida and their parents guardians learn to navigate their ever-changing world. These programs provide a chance for kids to interact with others who have similar challenges and as they grow teaches them how to advocate for themselves and mange their own medical care. Parents guardians are provided with educational materials and a chance to get information and advice from experts and other parents who are facing similar challenges.
$79,581 spent63% of program spendingMULTIGENERATIONAL PROGRAMS Programming for all those with Spina Bifida and their families. This includes social and holiday activities as well as educational programs and events and the SBAK Financial Assistance Fund. In 2025 the Financial Assistance Fund helped provided aid to families whose SNAP benefits were impacted by the government shutdown helped a family install a ramp on the van they use to transport their child with Spina Bifida and assisted an adult with Spina Bifida whose only parent passed away.
$26,527 spent21% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $126,608.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $124k to $217k (+74%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 13% · 2022 5%. Grants only. Government contracts and fees sit inside program revenue.
99% of Spina Bifida Association of Kentucky Inc’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Sarah Richardson
Executive director
Board chair
Samantha Miller
Board of directors chairperson
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 7 funders, grant income rose $31k → $45k.
2 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 19% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Spina Bifida Association of Kentucky Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Spina Bifida Association of Kentucky Inc leans on a few funders — its largest provides 35% of grant income and the top three 71%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
84% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Spina Bifida Association of Kentucky Inc.
Largest funder’s share by year: 2017 75% · 2018 56% · 2019 62% · 2020 61% · 2021 33% · 2022 62% · 2023 33% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of Spina Bifida Association of Kentucky Inc's funders are still giving 3 years after their first grant; 71% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
95% of Spina Bifida Association of Kentucky Inc's grant income comes from Kentucky funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $71k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Spina Bifida Association of Kentucky Inc's funding base is broadening — from 2 funders to 7 as grant income climbed.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like Spina Bifida Association of Kentucky Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kentucky
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Spina Bifida Association of Kentucky Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Spina Bifida Association of Kentucky Inc?
- Spina Bifida Association of Kentucky Inc (Kentucky) receives grants from 14 organizations whose IRS filings report $374,487 to it, the largest being THE WHAS CRUSADE FOR CHILDREN INC ($130,350). 10 of them have funded it in more than one year.
- How many funders does Spina Bifida Association of Kentucky Inc have?
- IRS filings report 14 organizations giving $374,487 in grants to Spina Bifida Association of Kentucky Inc, 10 of which have funded it in more than one year.
- Who is the largest funder of Spina Bifida Association of Kentucky Inc?
- THE WHAS CRUSADE FOR CHILDREN INC is the largest funder on record, with $130,350 in grants. The full list of funders is on this page.
- How can an organization like Spina Bifida Association of Kentucky Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kentucky. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Spina Bifida Association of Kentucky →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing