Ohio · Nonprofit
The Spina Bifida Coalition Inc
The Spina Bifida Coalition Inc (Ohio) receives grants from 1 organization whose IRS filings report $14,771 to it, the largest being CHRISTOPHER REEVE FOUNDATION ($14,771). 0 of them have funded it in more than one year.
- Revenue FY2025
- $184k
- Funders on record
- 1
- Grants received
- $15k
- Net assets
- $103k
What The Spina Bifida Coalition Inc does
Mission
To promote and enhance the lives of all affected by SB.
As stated on its FY2025 Form 990-EZ.
Programs
GENERAL PROGRAM-This categaory captures costs associated with keeping our doors open.These expenses include payroll, rent, web hosting utilities. Our service area encompasses 105 counties in OH, KY, IN, WV.
$64,906 spent58% of program spendingSCHOLARSHIPS-We provided 31 scholarships to our stakeholders and their families. These included 20 direct aid for financial assistance, 4 SNAP, 4 camp/recreation, 2 auto modification and 2 post-secondary.
$7,068 spent6% of program spendingWALK ROLL PROGRAMMING-The Walk Roll is an annual event held in NE Ohio and the Greater Cincinnati area. Over 900 individuals came together in both locations. Costs include software, rental, equipment, entertainment, photograph
$20,892 spent19% of program spendingTOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC.
$100 spent0% of program spendingSOCIAL EVENTS-In 2025 we held 2 in-person Walk Rolls at 2 of our regions. In addition we hosted 3 holiday parties in each of our regions as well as other community events for our families.
$4,420 spent4% of program spendingCLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given.
$1,319 spent1% of program spendingCOLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC.
$1,000 spent1% of program spendingADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, quarterly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync.
$2,902 spent3% of program spendingADVOCACY-This category captures expenses related to advocacy efforts on behalf of the organization. This includes mileage for attending monthly meetings and workshops related to advocacy efforts related to spina bifida.
$1,380 spent1% of program spendingResearch-Since 2018 we have been working with thd Childrens Hospital sb clinic on a research project related to Transition for our AYA. in 2025 we began steps to pilot this intervention by hiring a Transition coach.
$7,028 spent6% of program spending
The 10 programs described on its FY2025 Form 990-EZ. Program spending in total: $111,015.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $177k to $122k (−31%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 5 reported years ran a deficit.
Leadership and staff
Chief executive
Rhonda Horick
Executive Director
Board chair
Anthony Giangrande
Board Chair
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
From the IRS filings of The Spina Bifida Coalition Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
The Spina Bifida Coalition Inc draws 100% of its grant income from funders outside Ohio, across 1 state in all.
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like The Spina Bifida Coalition Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Ohio
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for The Spina Bifida Coalition Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds The Spina Bifida Coalition Inc?
- The Spina Bifida Coalition Inc (Ohio) receives grants from 1 organization whose IRS filings report $14,771 to it, the largest being CHRISTOPHER REEVE FOUNDATION ($14,771). 0 of them have funded it in more than one year.
- How many funders does The Spina Bifida Coalition Inc have?
- IRS filings report 1 organization giving $14,771 in grants to The Spina Bifida Coalition Inc.
- Who is the largest funder of The Spina Bifida Coalition Inc?
- CHRISTOPHER REEVE FOUNDATION is the largest funder on record, with $14,771 in grants. The full list of funders is on this page.
- How can an organization like The Spina Bifida Coalition Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Ohio. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Spina Bifida Coalition →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing