New Jersey · Nonprofit
SOFT BONES INCTHE US
SOFT BONES INCTHE US (New Jersey) receives grants from 17 organizations whose IRS filings report $310,995 to it, the largest being The Fowler Family Charitable Foundation Inc ($90,400). 8 of them have funded it in more than one year.
- Revenue FY2024
- $527k
- Funders on record
- 17
- Grants received
- $311k
- Net assets
- $542k
What Soft Bones Incthe US does
Mission
To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.
As stated on its FY2024 Form 990.
Program
Education & resource program - the organization provides free education & resources to those affected by the disease.
$437,499 spentof which $30,300 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $437,499.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $522k to $714k (+37%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2023 1% · 2024 3%. Grants only. Government contracts and fees sit inside program revenue.
83% of SOFT BONES INCTHE US’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 7 funders, grant income rose $6k → $51k.
7 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 47% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SOFT BONES INCTHE US’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SOFT BONES INCTHE US has a broad base — no single funder exceeds 29% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
63% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SOFT BONES INCTHE US.
Largest funder’s share by year: 2017 83% · 2018 59% · 2019 85% · 2020 31% · 2021 70% · 2022 46% · 2023 39% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
44% of SOFT BONES INCTHE US's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
SOFT BONES INCTHE US draws 63% of its grant income from funders outside New Jersey, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $145k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SOFT BONES INCTHE US is better cushioned than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like SOFT BONES INCTHE US
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
96%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for SOFT BONES INCTHE US: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SOFT BONES INCTHE US?
- SOFT BONES INCTHE US (New Jersey) receives grants from 17 organizations whose IRS filings report $310,995 to it, the largest being The Fowler Family Charitable Foundation Inc ($90,400). 8 of them have funded it in more than one year.
- How many funders does SOFT BONES INCTHE US have?
- IRS filings report 17 organizations giving $310,995 in grants to SOFT BONES INCTHE US, 8 of which have funded it in more than one year.
- Who is the largest funder of SOFT BONES INCTHE US?
- The Fowler Family Charitable Foundation Inc is the largest funder on record, with $90,400 in grants. The full list of funders is on this page.
- How can an organization like SOFT BONES INCTHE US find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing