California · Nonprofit
Sickle Cell Disease Foundation of California
Sickle Cell Disease Foundation of California (California) receives grants from 18 organizations whose IRS filings report $14,106,492 to it, the largest being THE CENTER FOR CC&D OF INHERITED BLOOD DISORDERS ($13,384,531). 7 of them have funded it in more than one year.
- Revenue FY2025
- $1.9M
- Funders on record
- 18
- Grants received
- $14M
- Net assets
- $823k
What Sickle Cell Disease Foundation of California does
Mission
To build a world where individuals with Sickle Cell Disease get the care and compassion they deserve.
As stated on its FY2025 Form 990.
Programs
Networking California for Sickle Cell Care NCSCC - 2025 Program Accomplishments. In 2025 the Sickle Cell Disease Foundation SCDF in partnership with the Center for Inherited Blood Disorders CIBD continued to co-manage the Networking California for Sickle Cell Care NCSCC a statewide initiative designed to improve access to comprehensive care for adults living with sickle cell disease. The program supported a network of 12 multidisciplinary specialty clinics providing coordinated medical care Community Health Worker CHW services care coordination patient and family education behavioral health support and connections to community resources. During the year SCDF provided leadership in Community Health Worker for workforce development patient navigation community engagement performance monitoring data collection and statewide collaboration among clinical and community partners. The program continued to improve access to knowledgeable providers strengthen care coordination and reduce barriers to care while advancing sustainable reimbursement for CHW services through Californias Enhanced Care Management ECM program. These activities furthered the Foundations charitable mission of…
$1,434,947 spentof which $1,465,390 as grants54% of program spendingThe GDSP Newborn Screening contract centers on statewide NBS follow-up and counseling. The core activity is following up on positive newborn screening test results for sickle cell disease trait and providing counseling to affected families
$363,624 spentof which $363,550 as grants14% of program spendingMental Health Services: SCDF provides culturally responsive behavioral health services for individuals living with sickle cell disease and their families. Mental health professionals offer individual counseling emotional support crisis intervention and referrals to address anxiety depression chronic pain grief and other psychosocial challenges. Integrated with Community Health Workers and care coordination these services promote emotional well-being improve quality of life and support comprehensive whole-person care.
$260,491 spentof which $260,491 as grants10% of program spendingOther programs include the following: HRSA NBS PSCRC Family Programs and Services.
$587,759 spentof which $2,646,821 as grants$1,949,385 earned by the program22% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $2,646,821.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $2.0M to $4.2M (+112%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 7% · 2021 8% · 2022 24% · 2023 54% · 2024 0% · 2025 61%. Grants only. Government contracts and fees sit inside program revenue.
79% of Sickle Cell Disease Foundation of California’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Mary Brown
President and CEO
Board chair
Rahman Cooper
Chairman
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 8 funders, grant income rose $250k → $3.2M.
9 of 18 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 2% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Sickle Cell Disease Foundation of California’s funders (the co-funder graph). Top 17 of 18 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Sickle Cell Disease Foundation of California leans on a few funders — its largest provides 95% of grant income and the top three 97%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
99% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Sickle Cell Disease Foundation of California.
Largest funder’s share by year: 2017 63% · 2018 86% · 2019 95% · 2020 99% · 2021 99% · 2022 97% · 2023 96% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
43% of Sickle Cell Disease Foundation of California's funders are still giving 3 years after their first grant; 39% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
99% of Sickle Cell Disease Foundation of California's grant income comes from California funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $337k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Sickle Cell Disease Foundation of California's funding base is broadening — from 2 funders to 8 as grant income climbed.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like Sickle Cell Disease Foundation of California
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Sickle Cell Disease Foundation of California: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Sickle Cell Disease Foundation of California?
- Sickle Cell Disease Foundation of California (California) receives grants from 18 organizations whose IRS filings report $14,106,492 to it, the largest being THE CENTER FOR CC&D OF INHERITED BLOOD DISORDERS ($13,384,531). 7 of them have funded it in more than one year.
- How many funders does Sickle Cell Disease Foundation of California have?
- IRS filings report 18 organizations giving $14,106,492 in grants to Sickle Cell Disease Foundation of California, 7 of which have funded it in more than one year.
- Who is the largest funder of Sickle Cell Disease Foundation of California?
- THE CENTER FOR CC&D OF INHERITED BLOOD DISORDERS is the largest funder on record, with $13,384,531 in grants. The full list of funders is on this page.
- How can an organization like Sickle Cell Disease Foundation of California find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Sickle Cell Disease Foundation of California →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 18 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing