How much did Sickle Cell Disease Association of America Inc grant in FY2020?

Sickle Cell Disease Association of America Inc reported 16 grants totaling $2,816,948 in its FY2020 IRS filing.

Sickle Cell Disease Association of America Inc

Foundation Dossiers Also receives grants — funding profile →

· Public charity

Sickle Cell Disease Association of America Inc

Q: Where is Sickle Cell Disease Association of America Inc based?

Sickle Cell Disease Association of America Inc is based in MD.

To advocate for people affected by sickle cell conditions and empower community-based organizations.

$2.8M

Granted FY2020

Grants

Communities

$266k

Largest

01What you fund

0166% classified

What you funded, over time

Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY2017–2020.

Health$4.4MFood & Nutrition$367kEducation$6kOther$2.5M

02beneath the categories

Past the labels — and the year it shifted

Beneath the NTEE codes, this is what the grant descriptions actually say.

…and in their own words, year by year

2018

scd research

2019

scd research

2020

scd research

2021

riskhealthpopulation

Words distinctive to each year’s grant purposes (TF-IDF) · event-driven terms in cyan.

03FY2020 · 16 grants

Where the money goes

Your grants by size, and where they go.

By grant size · FY2020

$10k–50k2 grants · $65k
$50k–250k13 grants · $1.7M
$250k+1 grant · $266k

$123,619

Median grant

States reached

$2.3M

Total assets

Largest grants

Sickle Cell Foundation of Georgia Inc$266,490
SCDAA-Michigan Chapter Inc$213,813
Piedmont Health Services and Sickle Cell Agency$209,897
Sickle Cell Association of Texas Marc Thomas Foundation$174,203
Supporters of Families with Sickle Cell Disease$153,623
Sickle Cell Dusease Association of Illinois$130,080
James R Clark Memorial Sickle Cell Foundation$126,443
Children's Sickle Cell Foundation$123,619
Cayene wellness Center$116,883
Sickle Cell Association of New Jersey$109,977
Martin Center Sickle Cell Iniative$107,102
The Sickle Cell Thalassemia Network$102,932
Ohio Sickle Cell and Health Association$88,019
Sickle Cell Disease Foundation of California$81,693
Sickle Cell Disease Association of America Mobile Chapter Inc$49,376

02The need

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY17–20) land where the poverty rate runs at 15% — the area typically sits at 13%. 85% of your dollars reach neighborhoods with above-average need. Most of your grants land in higher-need ZIPs.

grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA, United Way ALICE — shown as context about the area, never attributed to your giving.

03Your edge

repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

94%of every dollar goes to organizations you’ve funded before.

$6.8M · 16 repeat orgs$406k to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +124% since the first grant, against +56% for the ones you funded once.

16 repeat relationships — 16 still active in FY2020, 0 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

Total granted

$6.8M

$406k

Median revenue growth · since first grant

+124%

+56%

Still filing today

88%

85%

New vs renewed · share of each year

In FY2020, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

HealthFood & NutritionEducationOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

SC
Sickle Cell Foundation of Georgia Inc
4× · 2017–2020 · $913k · revenue +155%
PH
Piedmont Health Services and Sickle Cell Agency
5× · 2017–2021 · $717k · revenue +34%
SC
Sickle Cell Association of Texas Marc Thomas Foundation
3× · 2018–2020 · $523k · revenue +64%

Funded once

SC
SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA
one grant, 2017 · $92k · revenue -11%
SC
SICKLE CELL DISEASE ASSOCIATION OF AMERICA - MICHIGAN CHAPTER INCgraduated
one grant, 2017 · $64k · revenue +28%
MS
MARYLAND SICKLE CELL DISEASE ASSOCIATION INCgraduated
one grant, 2017 · $42k · revenue +507%

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

Sickle Cell Foundation Inc

Our goal is to identify and educate our communities about the sickle cell trait and deals specifically with persons who have been diagnosed with one of the sickle cell disease to provide immediate relief to a crisis.

—

Sickle Cell Disease Association of America Inc

To advocate for people affected by sickle cell conditions and empower community-based organizations.

—

Sickle Cell Awareness Foundation Corp International

To provide financial and educational /information and assistance to those who have sickle cell diseases

Health

Sickle Cell Medical Advocacy Inc

Sickle Cell Medical Advocacys (SCMA) mission is to navigate transformative healthcare for patients with Sickle Cell disease, following national guidelines for urgent intervention and promoting faster healing and shorter hospitalizations.

Education

Sickle Forward

Advancing the rapid diagnosis and basic management of sickle cell disease in resource-limited countries.

Health

Southeast Alabama Sickle Cell Association Inc

Provide education and support to alleviate sickle cell

—

Sickle Cell Association of Houston Inc

Sickle Cell Association of Houston Inc. is an organization dedicated to the education, awareness and support of the disease for family members and community, as well as the patients.

Health

American Sickle Cell Anemia Association Inc

Providing health awareness and sickle cell testing to population at risk

Health

Sickle Cell 101

To educate, empower and connect the global sickle cell community through targetted digital engagement and data-driven initiatives.

Health

North Alabama Sickle Cell Foundatio

Sickle cell education, testing and assessment

Health

Sickle Cell Anemia Resource Foundat

Provide pediatric clinic for patients 0-17 years old. the foundation participates in patient care for medication, lab work, transportation, and book scholarships. the foundation conducts education programs in the communities and schools…

Human Services

Sickel Cell Disease Association of America-Ct

We embrace prevention strategies to enhance quality of life and well-being of the community affected by sickle cell disease (SCD)trait and related conditions. We provide individual and families

Human Services

For reference, the grantee most central to the portfolio’s shape is Sickle Cell Association and the most unlike its peers is Emory University. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

Your grantees are a median of 41 years old; the field is 16. You back the established end — and your money leans older still.

The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.

Closures · last 5 years

The orgs you fund almost never close — 3% lost their exemption, against 11% of the field you don’t fund.

orgs you fund

3%1/29

the rest of the field

11%

206,163/1,819,536

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

05the grantee network

26 grantees, every filing reconciled, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue.

Load-bearing (≥25% of a budget)

Early backer (in before they grew)

25/26

Grantees still filing

23/26

Grew since you first funded

Where your money sits — by cause, then by grantee

Health$4,390,867Other$2,471,896Food & Nutrition$367,305Education$6,468

Each org by its size and your share of it — top-left is where you’re load-bearing

Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.

The Gbt FoundationCA13.8× affinity4 shared granteesties to 4 of 4Hover any node to trace its alignments.Compare side by side →

Open a dossier: The Gbt Foundation · Network for Good · The Pfizer Foundation Inc · American Online Giving Foundation Inc · Amazonsmile Foundation

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.

Government reliance of your grantees

Every dot is one organisation Sickle Cell Disease Association of America Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.

2024

’20’21’22’23’24

no gov moneyreceives it· size = income

1get no government money at all

2rely on government for over half their income

typical government reliance, FY20–24

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

05Through Plinth

Through Plinth

Your grantmaking, live and operational

This dossier was generated cold from public filings. In Plinth it’s a working system — every applicant assessed and every grant monitored. Here’s a taste, run on one of your grantees: Sickle Cell Dusease Association of Illinois.

Agentic due diligence · confidence × risk

Financial management

high risk

~2 months of operating runway; revenue grew over 7 filed years.

Track record & reputation

low risk

7 years of Form 990 filings, still active; revenue up 2.2× since.

Legal standing

low risk

US 501(c)(3); EIN 237157702 on file with current IRS Form 990 filings.

Governance

Live in Plinth

Board composition & governance documents — verified live in Plinth from the applicant.

Compliance & sanctions

Live in Plinth

OFAC / UN sanctions screening — run live in Plinth at assessment.

Program capacity

Live in Plinth

Staffing, M&E and activity alignment — assessed live in Plinth from submitted proposals.

Live · Plinth’s real DD engine

Run the actual assessment on Sickle Cell Dusease Association of Illinois, cold from public data.

Generated live from public IRS filings + open web sources by Plinth’s agentic engine. Shown as an illustration of the product, not a formal assessment.

Post-award monitoring · continuous checks

FlagFinancial stability— Roughly 2 months of cash on hand.
On trackSustained operations— Filing through 2024; revenue grew over the period.
WatchReliance on your funding— Your grants peaked at 75% of their budget — load-bearing; a dependency Plinth would track.
Awaiting reportEvidence of delivery— Plinth collects the grantee's own monitoring reports post-award.

What you see here is static and public. In Plinth it’s operational — the full six-pillar framework on every applicant (with their own documents + live registry and sanctions checks), monitoring dashboards on every award, custom board reports, and eligibility routing for intake.

Agentic due diligenceMonitoring dashboardsCustom board reportsEligibility routing

Preview generated from this grantee’s public IRS filings and independent reporting. Pillars marked “live in Plinth” require the applicant’s submitted documents. Shown as illustration, not a formal assessment.

Warm introductions · Powered by PlinthPro

How do I get to Sickle Cell Disease Association of America Inc?

Find your warmest path to Sickle Cell Disease Association of America Inc through people who sit on both boards. Search for your organization and Plinth traces the introduction across shared trustees and officers.

Every link is a documented governance overlap in public IRS 990 filings — not a personal network — and each hop carries its own confidence tier. Low-confidence or distant paths are held back rather than guessed.

Sickle Cell Disease Association of America Inc

What you funded, over time

Past the labels — and the year it shifted

Where the money goes

Do your dollars go where the need is?

Who you back again

Backed again, and grew

Funded once

26 grantees, every filing reconciled, 2017–2025.

Government reliance of your grantees

Your grantmaking, live and operational

How do I get to Sickle Cell Disease Association of America Inc?

More from the funding graph

Sickle Cell Disease Association of America Inc

What you funded, over time

Past the labels — and the year it shifted

Where the money goes

Do your dollars go where the need is?

Who you back again

Backed again, and grew

Funded once

26 grantees, every filing reconciled, 2017–2025.

Government reliance of your grantees

Your grantmaking, live and operational

How do I get to Sickle Cell Disease Association of America Inc?

More from the funding graph