NATIONAL DOWN SYNDROME SOCIETY

The organization over time

Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended.

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

Government-grant reliance: 2021 6% · 2022 6%. Grants only. Government contracts and fees sit inside program revenue.

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 6 reported years ran a deficit.

Who funds it, year by year

2017 → 2023: the base broadened from 29 funders to 52 funders, grant income rose $320k → $681k.

20 of 139 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 69% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of NATIONAL DOWN SYNDROME SOCIETY’s funders (the co-funder graph). Top 30 of 139 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

NATIONAL DOWN SYNDROME SOCIETY has a broad base — no single funder exceeds 27% of grant income, and it takes 4 funders to reach half.

80% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL DOWN SYNDROME SOCIETY.

Largest funder’s share by year: 2017 27% · 2018 50% · 2019 20% · 2020 20% · 2021 18% · 2022 19% · 2023 13% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

26% of NATIONAL DOWN SYNDROME SOCIETY's funders are still giving 3 years after their first grant; 38% give in more than one year at all.

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

69% of NATIONAL DOWN SYNDROME SOCIETY's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1.9M that is directly attributable, 96% of it comes from funders outside Washington, D.C., across 28 states.

Funder states come from each funder’s own filing. $4.2M arriving through sponsors registered in 13 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.