Massachusetts · Nonprofit
Myasthenia Gravis Foundation of America Inc
Myasthenia Gravis Foundation of America Inc (Massachusetts) receives grants from 52 organizations whose IRS filings report $1,205,721 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($337,302). 28 of them have funded it in more than one year, and 87% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $7.6M
- Funders on record
- 52
- Grants received
- $1.2M
- Net assets
- $13M
What Myasthenia Gravis Foundation of America Inc does
Mission
Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.
As stated on its FY2025 Form 990.
Programs
Evaluating, Funding, and Disseminating Critical Research: MGFA supports high-impact myasthenia gravis research at leading universities and medical institutions, often collaborating with strategic partners such as the American Brain Foundation and MGNet. Through these partnerships, it helps attract new researchers to the field by funding fellowships, pilot grants, and specialized research projects.The organization also maintains the only global MG patient registry, which has grown to nearly 3,500 participants, providing valuable data to advance research. MGFA hosts an annual scientific session in partnership with AANEM, drawing more than 250 attendees, and organizes an International Conference every three years that brings together leading MG researchers worldwide, with attendance reaching around 660 participants.In addition, MGFA keeps a broad audience of over 40,000 constituents informed about research initiatives and progress, ensuring the community stays connected to the latest developments in MG science.
$5,506,368 spentof which $849,999 as grants$603,324 earned by the program100% of program spendingAwareness and Advocacy: MGFA offers a wide range of free educational brochures, available in multiple languages, covering topics important to individuals living with myasthenia gravis, and makes them accessible to both patients and the general public. It also provides a professional manual and other key educational resources tailored for healthcare providers.In addition, MGFA leads an annual awareness campaign each June for MG Awareness Month, engaging its network of support groups and equipping individuals with toolkits, press materials, posters, and social media resources to help raise awareness of myasthenia gravis within their communities. MGFA also hosted a Patient Advocacy Organization Summit that brought together 44 representatives from 17 countries, highlighting its global commitment to collaboration and advancing support for the MG community.
Information, Education and Support: The Myasthenia Gravis Foundation of America (MGFA) delivers broad support for people living with myasthenia gravis and their caregivers through education, community programs, and direct services. It provides accessible information, referrals, and structured support through a nationwide network of about 43 support groups, its Partners in MG Care program, and other affiliated networks. Its website serves as a central, trusted hub for up-to-date educational content, news, and disease management resources.MGFA organizes a wide range of interactive learning opportunities, including nearly 20 wellness and research webinars and 14 Community Health Fairs across the U.S. and Canada. These events allow patients and caregivers to connect with medical experts, learn about the latest research and treatments, and engage with industry leaders. The organization's annual National Patient Conference is a key gathering for the MG community, featuring research updates, patient experiences, and in-depth educational sessions designed to help individuals better manage their condition.Beyond education, MGFA fosters community engagement and awareness through platforms…
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $5,506,368.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $14M to $15M (+13%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
84% of Myasthenia Gravis Foundation of America Inc’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Samantha Masterson
Chief Executive Officer
Board chair
Robert Thomas
Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2019 and FY2020 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 5 funders to 16 funders, grant income rose $62k → $207k.
14 of 52 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 87% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Myasthenia Gravis Foundation of America Inc’s funders (the co-funder graph). Top 30 of 52 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Myasthenia Gravis Foundation of America Inc has a broad base — no single funder exceeds 28% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Myasthenia Gravis Foundation of America Inc.
Largest funder’s share by year: 2017 55% · 2018 51% · 2019 24% · 2020 77% · 2021 30% · 2022 33% · 2023 59% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
23% of Myasthenia Gravis Foundation of America Inc's funders are still giving 3 years after their first grant; 54% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
87% of Myasthenia Gravis Foundation of America Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $151k that is directly attributable, 99% of it comes from funders outside Massachusetts, across 19 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 12 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Myasthenia Gravis Foundation of America Inc runs a healthier operating margin than half of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like Myasthenia Gravis Foundation of America Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
78% of spending goes to programs.
Governance
Public support
65%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 32 states
Screen this organization
A dated, signed PDF of the compliance screen for Myasthenia Gravis Foundation of America Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Myasthenia Gravis Foundation of America Inc?
- Myasthenia Gravis Foundation of America Inc (Massachusetts) receives grants from 52 organizations whose IRS filings report $1,205,721 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($337,302). 28 of them have funded it in more than one year, and 87% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Myasthenia Gravis Foundation of America Inc have?
- IRS filings report 52 organizations giving $1,205,721 in grants to Myasthenia Gravis Foundation of America Inc, 28 of which have funded it in more than one year.
- Who is the largest funder of Myasthenia Gravis Foundation of America Inc?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $337,302 in grants. The full list of funders is on this page.
- How can an organization like Myasthenia Gravis Foundation of America Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 52 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing