New Jersey · Nonprofit
Lyme Disease Association Inc
Lyme Disease Association Inc (New Jersey) receives grants from 24 organizations whose IRS filings report $465,837 to it, the largest being MSB COCKAYNE FUND INC ($165,000). 11 of them have funded it in more than one year.
- Revenue FY2024
- $51k
- Funders on record
- 24
- Grants received
- $466k
- Net assets
- $0
What Lyme Disease Association Inc does
Mission
LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients.
As stated on its FY2024 Form 990.
Programs
After 33 years of dedicated advocacy within the Lyme disease community, The Lyme Disease Association (LDA) officially closed its doors on December 5, 2024. Throughout its impactful history, LDA raised funds to support research, education, prevention, and patient support. Among its many accomplishments,the LDA partnered in the establishment of the Columbia University Lyme & Tick-Borne Diseases Research Center. The organization also provided research and educational grants, launched the LymeAid 4 Kids program, and delivered numerous public presentations to raise awareness and support.
$514,762 spent100% of program spendingLA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $477,300 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 15 financially disadvantaged families grants in 2024.
Research, Education, Grants: Since 1992, LDA has provided 128 research grants including one in 2024.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2024, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provide educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD.
Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.Several School Nursing educational programs were provided in 2024 along with a National Vector Borne Disease Strategy.
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $514,762.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $556k to $0 (−100%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 7 funders to 8 funders, grant income rose $25k → $144k.
6 of 24 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 22% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Lyme Disease Association Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Lyme Disease Association Inc leans on a few funders — its largest provides 35% of grant income and the top three 63%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
Largest funder’s share by year: 2017 40% · 2018 67% · 2019 63% · 2020 40% · 2021 35% · 2022 40% · 2023 35% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of Lyme Disease Association Inc's funders are still giving 3 years after their first grant; 46% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
Lyme Disease Association Inc draws 97% of its grant income from funders outside New Jersey, across 10 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $104k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like Lyme Disease Association Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
93% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 33 states
Screen this organization
A dated, signed PDF of the compliance screen for Lyme Disease Association Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Lyme Disease Association Inc?
- Lyme Disease Association Inc (New Jersey) receives grants from 24 organizations whose IRS filings report $465,837 to it, the largest being MSB COCKAYNE FUND INC ($165,000). 11 of them have funded it in more than one year.
- How many funders does Lyme Disease Association Inc have?
- IRS filings report 24 organizations giving $465,837 in grants to Lyme Disease Association Inc, 11 of which have funded it in more than one year.
- Who is the largest funder of Lyme Disease Association Inc?
- MSB COCKAYNE FUND INC is the largest funder on record, with $165,000 in grants. The full list of funders is on this page.
- How can an organization like Lyme Disease Association Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 24 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing