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Virginia · Nonprofit

INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC

INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC (Virginia) receives grants from 1 organization whose IRS filings report $438 to it, the largest being THE LEWIS M & ESTHER PERLSTEIN FAMILY FOUNDATION ($438). 0 of them have funded it in more than one year.

Revenue FY2025
$1.1M
Funders on record
1
Grants received
$438
Net assets
$158k
0/1 repeat funderspeak grant-dependency 0%
01What it does

What International Lyme and Associated Diseases Society Inc does

Mission

An international medical society whose mission is to disseminate scientific knowledge and enhance clinical expertise relating to Lyme and Associated diseases. Supports a collaborative effort among scientists, researchers, healthcare providers, and others.

As stated on its FY2025 Form 990.

Programs

  1. ILADS holds an annual scientific conference to advance the clinical knowledge, diagnosis, and treatment of Lyme and Associated vector-borne diseases. Sessions are designed to teach medical professionals the cutting-edge techniques of diagnosis and treatment, explore pathophysiological mechanisms of chronic diseases, enhance collaboration between community clinicians and university scientists, and to encourage initiation and publication of clinical studies.

    $476,819 spent$677,561 earned by the program
    71% of program spending
  2. The organization hold international, regional, and virtual meetings and conferences to provide updates for medical professionals on advances in clinical knowledge, treatment techniques, and the opportunity for collaboration between scientists, physicians, and other professionals who care for patients with Lyme and associated vector-borne diseases.

    $193,578 spent$135,287 earned by the program
    29% of program spending
  3. ILADS members receive access to members-only discussion forums, complementary webinars, a members-only newsletter, opportunities to join committees and network with medical professionals with similar interests and concerns, as well as discounts, on courses, and various events.

    $246,436 earned by the program
  4. Other program services, not described on the e-filed return.

    $0 spent
    0% of program spending

The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $670,397.

02The organization over time

The organization over time

Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20202020 Revenue 100 ($649k) Expenses 100 ($922k) Net assets 100 ($168k)2021 Revenue 120 ($778k) Expenses 90 ($832k) Net assets 79 ($133k)2022 Revenue 146 ($948k) Expenses 91 ($837k) Net assets 144 ($243k)2023 Revenue 153 ($992k) Expenses 111 ($1.0M) Net assets 124 ($209k)2024 Revenue 153 ($996k) Expenses 106 ($978k) Net assets 135 ($227k)2025 Revenue 166 ($1.1M) Expenses 124 ($1.1M) Net assets 94 ($158k)
202020212022202320242025
Revenue (166)Expenses (124)Net assets (94)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $332k to $416k (+25%).

$398k
$332k
$416k
$474k
$533k
$478k
202020212022202320242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2020 0% · 2021 15% · 2024 0% · 2025 0%. Grants only. Government contracts and fees sit inside program revenue.

23% of INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC’s revenue is contributions — about as donation-reliant as the typical peer (61% for the typical peer).

This organization
Typical peer · 4,434 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 6 reported years ran a deficit.

−$273k
’20
−$53k
’21
$111k
’22
−$35k
’23
$18k
’24
−$69k
’25
3.3
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Sarah Quillen CEO

Executive Director

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2022 and FY2023, and between the FY2023 and FY2024 filings.

202020212022202320242025
Listed111111121011
Joined·+3+1+2+6+1
No longer listed·31180
03Who funds it

Who funds it, year by year

Grant support over time, funder by funder — shade shows the grant size each year.

From the IRS filings of INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC draws 100% of its grant income from funders outside Virginia, across 1 state in all.

MA

Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC has grown faster than half of the 2,127 community improvement nonprofits its size.

Operating margin−6% · bottom quartile
Months of reserve3.3mo · below the median
Revenue growth (annualized)11% · above the median

this organization peer median middle 50% of peers· 2,127 community improvement nonprofits $1M–$10M, FY2025

Organizations like INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Virginia

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Governance

10
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Footprint & structure

Part of a family of 1 related entity

  • International Lyme and Associated Diseases · exempt

Screen this organization

A dated, signed PDF of the compliance screen for INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC?
INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC (Virginia) receives grants from 1 organization whose IRS filings report $438 to it, the largest being THE LEWIS M & ESTHER PERLSTEIN FAMILY FOUNDATION ($438). 0 of them have funded it in more than one year.
How many funders does INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC have?
IRS filings report 1 organization giving $438 in grants to INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC.
Who is the largest funder of INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC?
THE LEWIS M & ESTHER PERLSTEIN FAMILY FOUNDATION is the largest funder on record, with $438 in grants. The full list of funders is on this page.
How can an organization like INTERNATIONAL LYME AND ASSOCIATED DISEASES SOCIETY INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds International Lyme and Associated Diseases Society →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing