Skip to content
Plinth
← FundingAlso makes grants — grantmaker profile →

Virginia · Nonprofit

Interstitial Cystitis Association of America Inc

Interstitial Cystitis Association of America Inc (Virginia) receives grants from 23 organizations whose IRS filings report $569,848 to it, the largest being Vanguard Charitable Endowment Program ($116,000). 10 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

$487k
Revenue FY2024
23
Funders on record
$570k
Grants received
$118k
Net assets
10/23 repeat funderspeak grant-dependency 12%

Three funders worth looking at

Grantmakers with no record of funding this organization, ranked by how strongly the co-funder graph and the mission embeddings agree. The evidence is in section 03.

See all 12 prospects and why each one surfaced →
01The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.

100 = 20172017 Revenue 100 ($547k) Expenses 100 ($767k) Net assets 100 ($174k)2018 Revenue 141 ($771k) Expenses 91 ($694k) Net assets 174 ($303k)2019 Revenue 116 ($632k) Expenses 97 ($743k) Net assets 110 ($192k)2020 Revenue 143 ($780k) Expenses 91 ($697k) Net assets 160 ($279k)2021 Revenue 136 ($745k) Expenses 93 ($710k) Net assets 169 ($295k)2022 Revenue 111 ($605k) Expenses 82 ($630k) Net assets 156 ($271k)2023 Revenue 118 ($648k) Expenses 85 ($649k) Net assets 152 ($265k)2024 Revenue 89 ($487k) Expenses 83 ($634k) Net assets 68 ($118k)
'17'18'19'20'21'22'23'24
Revenue (89)Expenses (83)Net assets (68)

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2017 13% · 2018 13% · 2019 16% · 2020 30% · 2021 36% · 2022 22% · 2023 27% · 2024 16%. Grants only. Government contracts and fees sit inside program revenue.

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.

$220k
17
$76k
18
$110k
19
$84k
20
$35k
21
$25k
22
$982
23
$147k
24
2.0
months of
reserve
02Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 4 funders to 6 funders, grant income rose $24k → $76k.

9 of 23 of your funders are donor-advised or pass-through sponsors (tagged DAF)73% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of Interstitial Cystitis Association of America Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

Interstitial Cystitis Association of America Inc has a broad base — no single funder exceeds 20% of grant income, and it takes 3 funders to reach half.

the vertical line marks half of all grant income — 3 funders to its left

74% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Interstitial Cystitis Association of America Inc.

20%
largest funder
60%
top three
~6
effective funders

Largest funder’s share by year: 2017 50% · 2018 52% · 2019 59% · 2020 51% · 2021 34% · 2022 49% · 2023 43%diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

38% of Interstitial Cystitis Association of America Inc's funders are still giving 3 years after their first grant; 43% give in more than one year at all.

first grant+1y+2y+3y+4y+5y+6y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

73% of Interstitial Cystitis Association of America Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $153k that is directly attributable, 100% of it comes from funders outside Virginia, across 9 states.

IL
NY
MA
OR
PA
CT
DE
NC
TX

In-state vs out-of-state, by year

17
18
19
20
21
22
23
Virginia out of state home

Funder states come from each funder’s own filing. $417k arriving through sponsors registered in 7 statesis excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

03Its place in the field

Funders to approach

Grantmakers that don’t fund you yet, surfaced two ways: they back organizations that share your funders, or their grantees resemble your mission. The ones both signals agree on come first. Your 23 funders put you under-funded among the 400 organizations that share them.

From the co-funder graph (funders backing at least two comparable organizations, shrunk for grantee count, donor-advised and mega-funds excluded) and the universe embeddings. A research starting point; overlap is association, not a guarantee of fit.

Organizations like Interstitial Cystitis Association of America Inc

Nonprofits whose mission and program text most resemble this one, by semantic similarity over the universe of US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Virginia

Nationally

04Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

80% of spending goes to programs.

Program 80%Management 6%Fundraising 14%

Governance

15
board members
100%
independent
Conflict-of-interest policyWhistleblower policyDocument retentionBoard reviewed the 990Audited financials

Public support

83%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 28 states

AK
ME
NH
WA
MN
IL
WI
MI
NY
MA
OH
NJ
CT
RI
CA
UT
WV
VA
MD
AZ
KS
TN
SC
OK
MS
AL
GA
FL

Screen this organization

A dated, signed PDF of the compliance screen for Interstitial Cystitis Association of America Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds Interstitial Cystitis Association of America Inc?
Interstitial Cystitis Association of America Inc (Virginia) receives grants from 23 organizations whose IRS filings report $569,848 to it, the largest being Vanguard Charitable Endowment Program ($116,000). 10 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does Interstitial Cystitis Association of America Inc have?
IRS filings report 23 organizations giving $569,848 in grants to Interstitial Cystitis Association of America Inc, 10 of which have funded it in more than one year.
Who is the largest funder of Interstitial Cystitis Association of America Inc?
Vanguard Charitable Endowment Program is the largest funder on record, with $116,000 in grants. The full list of funders is on this page.
How can an organization like Interstitial Cystitis Association of America Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 23funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported August 27, 2026. What this page cannot tell you · view filing