New Jersey · Nonprofit
THE MED13L FOUNDATION INC
THE MED13L FOUNDATION INC (New Jersey) receives grants from 13 organizations whose IRS filings report $255,799 to it, the largest being THE SEAVER FOUNDATION ($100,000). 3 of them have funded it in more than one year, and 56% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $188k
- Funders on record
- 13
- Grants received
- $256k
- Net assets
- $580k
What The Med13l Foundation Inc does
Mission
Med13l provides support for research, advancement and raising awareness of the rare genetic disease, med13l. The objectives of med13l is to raise awareness in the local, national and international community about the rare genetic disease, med13l and to provide funding for research, development and advancement into fighting this disease. The ultimate goal is to find out more about what causes med13l and find a cure. In our endeavor to reach that goal, med13l strives to create a support system for families impacted by med13l all the while providing funding opportunities to healthcare professionals and researchers who are helping to find a cure to this rare genetic disease.
As stated on its FY2024 Form 990.
Program
Coordinate and collaborate with the global scientific community to understand the function of the med13l gene in order to develop effective treatments and a cure for med13l syndrome. Increase medical community and public awareness of the complexity and potential severity of med13l syndrome. Provide educational and emotional support for those affected by med13l syndrome. Raise money to fund our goals.
$292,840 spentof which $292,840 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $292,840.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $332k to $740k (+123%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
91% of THE MED13L FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Kathleen Barry Boychuck
Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2020 → 2023: the base broadened from 1 funder to 4 funders, grant income rose $251 → $119k.
5 of 13 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 56% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE MED13L FOUNDATION INC’s funders (the co-funder graph). Top 12 of 13 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE MED13L FOUNDATION INC leans on a few funders — its largest provides 39% of grant income and the top three 83%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
56% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE MED13L FOUNDATION INC.
Largest funder’s share by year: 2020 100% · 2021 100% · 2022 63% · 2023 84% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
29% of THE MED13L FOUNDATION INC's funders are still giving 1 year after their first grant; 23% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
56% of THE MED13L FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $112k that is directly attributable, 100% of it comes from funders outside New Jersey, across 7 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $143k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE MED13L FOUNDATION INC has grown faster than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like THE MED13L FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for THE MED13L FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE MED13L FOUNDATION INC?
- THE MED13L FOUNDATION INC (New Jersey) receives grants from 13 organizations whose IRS filings report $255,799 to it, the largest being THE SEAVER FOUNDATION ($100,000). 3 of them have funded it in more than one year, and 56% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE MED13L FOUNDATION INC have?
- IRS filings report 13 organizations giving $255,799 in grants to THE MED13L FOUNDATION INC, 3 of which have funded it in more than one year.
- Who is the largest funder of THE MED13L FOUNDATION INC?
- THE SEAVER FOUNDATION is the largest funder on record, with $100,000 in grants. The full list of funders is on this page.
- How can an organization like THE MED13L FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2021–2024), and the filings of 13 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing