Pennsylvania · Nonprofit
FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC
FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC (Pennsylvania) receives grants from 25 organizations whose IRS filings report $720,169 to it, the largest being Lennox Foundation ($231,066). 12 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $967k
- Funders on record
- 25
- Grants received
- $720k
- Net assets
- $3.2M
What Foundation for Ichthyosis and Related Skin Types Inc does
Mission
To improve the lives and seek cures for those affected by ichthyosis and related skin types.
As stated on its FY2025 Form 990.
Programs
First educates, inspires, and connects families and individuals affected by ichthyosis and related skin types. First hosts patient support forums and also provides critical information to its members and the general public through its website and calls to its knowledgeable staff. First maintains an active social media presence and facilitates group discussions. First provides accurate, non-biased information on the latest in research, diagnosis, and management of ichthyosis and related skin types, and critical support to those affected with these genetic conditions and those that care for them.
$685,950 spentof which $68,938 as grants78% of program spendingOne of the cornerstones of first is its emphasis on research and its support of the yale ichthyosis registry both financially and through its promotion accross its communication channels. Critical to improving the management of their condition, participation in the yale registry provides each affected individual a genetic diagnosis of their particular type of ichthyosis or other skin type. The registry is also vitally important to the research community and continues to be referenced in numerous studies and manuscripts. The registry also serves to provide research opportunities for training the next generation of physician scientists.
$191,456 spentof which $191,456 as grants22% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $877,406.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $2.1M to $3.3M (+58%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 7 funders to 8 funders, grant income fell $127k → $79k.
12 of 25 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 54% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC leans on a few funders — its largest provides 32% of grant income and the top three 64%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
54% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC.
Largest funder’s share by year: 2017 79% · 2018 66% · 2019 74% · 2020 41% · 2021 58% · 2022 39% · 2023 30% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
14% of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC's funders are still giving 3 years after their first grant; 48% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
54% of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $332k that is directly attributable, 100% of it comes from funders outside Pennsylvania, across 7 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $388k arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Pennsylvania
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
82% of spending goes to programs.
Governance
Public support
92%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 32 states
Screen this organization
A dated, signed PDF of the compliance screen for FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC?
- FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC (Pennsylvania) receives grants from 25 organizations whose IRS filings report $720,169 to it, the largest being Lennox Foundation ($231,066). 12 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC have?
- IRS filings report 25 organizations giving $720,169 in grants to FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC, 12 of which have funded it in more than one year.
- Who is the largest funder of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC?
- Lennox Foundation is the largest funder on record, with $231,066 in grants. The full list of funders is on this page.
- How can an organization like FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 25 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing