Minnesota · Nonprofit
KRABBECONNECT
KRABBECONNECT (Minnesota) receives grants from 10 organizations whose IRS filings report $393,907 to it, the largest being Rosenau Family Research Foundation ($246,690). 4 of them have funded it in more than one year.
- Revenue FY2024
- $314k
- Funders on record
- 10
- Grants received
- $394k
- Net assets
- $502k
What Krabbeconnect does
Mission
Krabbeconnect will be the source of comprehensive information and access to resources for families with krabbe disease.
As stated on its FY2024 Form 990.
Programs
Patient engagement: providing information and resources for krabbe desease through Krabbeconnect website, facebook, and socal media channels. Engagement with families affected by the diesase by offering support and connections for managing care of the patients. Resources include contact information for clinical experts, experts in research, current research literature via the resource library, and opportunities for clinical trials in the disease space. Krabbeconnect also interacts with the community through our international liaison, outreach director and patient engagement manager.
$17,211 spent11% of program spendingPatient advocacy and advancement: board members routinely attend conferences and meetings that involve the rate disease community to support the needs of the krabbe patients and their families. Krabbeconnect also participates in networking opportunities with other advocacy foundations joining together to have a voice for the patients. Krabbeconnect maintains membership with serveral large organizations, I.e. Nord, global genes, ulf, world lysosomal storage disease to enhance the advocacy and education of krabbe disease.
$1,332 spent1% of program spendingResearch and development: Krabbeconnect produced a poster to discuss the patient burden of krabbe disease. Research conducted to collect data from patients to capture the unmet needs in the krabbe community. The research will serve as a tool to clinicians, scientists, researchers, and industry to help with the advancement of new novel treatments in the krabbe disease space. Krabbeconnect is working to create a patient registry and patient focused drug development meeting with the fda to support research and advancements in treating krabbe disease.
$114,406 spent73% of program spendingOther program services
$24,173 spent15% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $157,122.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $378k to $507k (+34%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
46% of KRABBECONNECT’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2019 → 2023: the base broadened from 1 funder to 4 funders, grant income rose $250 → $141k.
5 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 32% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of KRABBECONNECT’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
KRABBECONNECT leans on a few funders — its largest provides 63% of grant income and the top three 92%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
32% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund KRABBECONNECT.
Largest funder’s share by year: 2019 100% · 2020 55% · 2021 98% · 2022 95% · 2023 87% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of KRABBECONNECT's funders are still giving 3 years after their first grant; 40% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
91% of KRABBECONNECT's grant income comes from Minnesota funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $124k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
KRABBECONNECT runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like KRABBECONNECT
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for KRABBECONNECT: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds KRABBECONNECT?
- KRABBECONNECT (Minnesota) receives grants from 10 organizations whose IRS filings report $393,907 to it, the largest being Rosenau Family Research Foundation ($246,690). 4 of them have funded it in more than one year.
- How many funders does KRABBECONNECT have?
- IRS filings report 10 organizations giving $393,907 in grants to KRABBECONNECT, 4 of which have funded it in more than one year.
- Who is the largest funder of KRABBECONNECT?
- Rosenau Family Research Foundation is the largest funder on record, with $246,690 in grants. The full list of funders is on this page.
- How can an organization like KRABBECONNECT find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Krabbeconnect →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing