Virginia · Nonprofit
PKU HOPE FOUNDATION
PKU HOPE FOUNDATION (Virginia) receives grants from 1 organization whose IRS filings report $1,532,000 to it, the largest being Nicklaus Children's Health Care Foundation ($1,532,000). 1 of them have funded it in more than one year.
- Revenue FY2025
- $661k
- Funders on record
- 1
- Grants received
- $1.5M
- Net assets
- $1.3M
What Pku Hope Foundation does
Mission
The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet.
As stated on its FY2025 Form 990.
Programs
Fostering community for a rare disease provides a support network for individuals and families facing similar challenges facilities information sharing and resources raises awareness about the disease promotes advocacy for research and funding and combats feelings of isolation often experienced by those affected. Ultimately it helps empower individuals to navigate their journey with the disease more effectively.
$34,050 spentof which $34,050 as grants31% of program spendingInfluencing and supporting research treatment therapies for the rare disease community is crucial to help accelerate the development of effective treatments and therapies tailored to the specific needs of individuals with pku. By advocating for research the community can attract funding increase awareness among researchers and healthcare professionals and foster collaboration between stakeholders. Additionally it offers hope to patients and their families by providing access to potentially life-improving interventions. Overall advancing research and treatment options improves the quality of life and prognosis for those living with rare diseases.
$74,333 spentof which $74,333 as grants69% of program spendingEasing the burden of managing the restrictive phenylketonuria diet is essential to improve the quality of life for individuals affected by this condition. It involves providing support resources and education to help patients and their families navigate the complexities of the diet effectively. By easing the burden of the pku diet individuals can better maintain their health prevent complications and irreversible brain damage and live more fulfilling lives.
$0 spent0% of program spendingOther program services, not described on the e-filed return.
$0 spent0% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $108,383.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $807k to $1.1M (+41%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of PKU HOPE FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 3 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Jerry Elkins
Board president
As listed on its FY2025 Form 990.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
From the IRS filings of PKU HOPE FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
PKU HOPE FOUNDATION draws 100% of its grant income from funders outside Virginia, across 1 state in all.
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PKU HOPE FOUNDATION runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like PKU HOPE FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for PKU HOPE FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PKU HOPE FOUNDATION?
- PKU HOPE FOUNDATION (Virginia) receives grants from 1 organization whose IRS filings report $1,532,000 to it, the largest being Nicklaus Children's Health Care Foundation ($1,532,000). 1 of them have funded it in more than one year.
- How many funders does PKU HOPE FOUNDATION have?
- IRS filings report 1 organization giving $1,532,000 in grants to PKU HOPE FOUNDATION, 1 of which have funded it in more than one year.
- Who is the largest funder of PKU HOPE FOUNDATION?
- Nicklaus Children's Health Care Foundation is the largest funder on record, with $1,532,000 in grants. The full list of funders is on this page.
- How can an organization like PKU HOPE FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2023–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing