Washington · Nonprofit
FAM177A1 Research Fund
FAM177A1 Research Fund (Washington) receives grants from 8 organizations whose IRS filings report $194,639 to it, the largest being THE AYCO CHARITABLE FOUNDATION ($50,000). 5 of them have funded it in more than one year, and 78% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $334k
- Funders on record
- 8
- Grants received
- $195k
- Net assets
- $327k
What FAM177A1 Research Fund does
Mission
The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm
As stated on its FY2025 Form 990.
Programs
Patient Advocacy & Data: Global Networking: Successfully connected with more families globally, including new cases in the Middle East and Europe, increasing the known patient cohort to facilitate research.
$153,211 spentof which $153,211 as grants62% of program spendingBreakthrough Research & Grants: The Fund strategically allocated resources to multiple international research projects aimed at understanding the genes function and developing therapies: Gene Therapy Initiative: Funded a pioneering AAV9-based gene therapy project at Hebrew University led by Professor Rami I. Aqeilan, aiming to deliver functional copies of the FAM177A1 gene. CURE Epilepsy Partnership: Formed a significant partnership with CURE Epilepsy to co-fund a $100,000 grant. This project, led by Dr. Berrak Ugur at Yale University, utilizes patient-derived organoids (brain-in-a-dish) to study how FAM177A1 loss affects neuronal growth and protein transport in the Golgi complex. Model Organism Development: Continued funding for research at the University of Portsmouth (UK) using Xenopus (frog) models to test potential treatments and study early brain development mysteries. Drug Repurposing: Advanced work on fruit fly models to identify existing medications that might be effective for FAM177A1 patients.
$93,601 spentof which $89,942 as grants38% of program spendingFundraising & Awareness: The Organization saw a record-breaking year for community engagement: FAM JAM 2025: The 2nd annual FAM JAM event in Seattle raised $280,000, directly fueling the research pipeline. Impact Reporting: Released the 2024 Impact Report in March 2025, providing transparency and documenting the foundations growth and scientific strategy for donors.
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $246,812.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $41k to $266k (+550%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
108% of FAM177A1 Research Fund’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2022 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $35k → $36k.
6 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 78% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of FAM177A1 Research Fund’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
FAM177A1 Research Fund has a broad base — no single funder exceeds 26% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
85% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund FAM177A1 Research Fund.
Largest funder’s share by year: 2022 71% · 2023 28% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
78% of FAM177A1 Research Fund's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $44k that is directly attributable, 100% of it comes from funders outside Washington, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $151k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
FAM177A1 Research Fund has grown faster than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like FAM177A1 Research Fund
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
91% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for FAM177A1 Research Fund: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds FAM177A1 Research Fund?
- FAM177A1 Research Fund (Washington) receives grants from 8 organizations whose IRS filings report $194,639 to it, the largest being THE AYCO CHARITABLE FOUNDATION ($50,000). 5 of them have funded it in more than one year, and 78% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does FAM177A1 Research Fund have?
- IRS filings report 8 organizations giving $194,639 in grants to FAM177A1 Research Fund, 5 of which have funded it in more than one year.
- Who is the largest funder of FAM177A1 Research Fund?
- THE AYCO CHARITABLE FOUNDATION is the largest funder on record, with $50,000 in grants. The full list of funders is on this page.
- How can an organization like FAM177A1 Research Fund find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing