Kansas · Nonprofit
DOWN SYNDROME INNOVATIONS
DOWN SYNDROME INNOVATIONS (Kansas) receives grants from 52 organizations whose IRS filings report $2,835,431 to it, the largest being Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee ($750,000). 20 of them have funded it in more than one year.
- Revenue FY2024
- $2.0M
- Funders on record
- 52
- Grants received
- $2.8M
- Net assets
- $2.1M
What Down Syndrome Innovations does
Mission
Mission is to provided support and resouces for individuals with down syndrome, their families and the professionals who serve them. Dsi seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with down syndrome. Dsi currently serves 37 counties in kansas and missouri. We provide support to over 1600 individuals with down syndrome.
As stated on its FY2024 Form 990.
Programs
Public awareness - dsi welcomes 50-60 new babies and their families each year. Our parent-to-parent program provides a welcome basket, quarterly support breakfasts and parent-to-parent matches. Our bi-monthly connections newsletter is distributed to 3,500 households and contains upcoming events, community group activities, and up-to-date articles on medical or educational best practices for people with down syndrome. Dsi supports 14 community groups to host 8-10 activities in their immediate geographical region to connect members on a smaller scale. Throughout the year, dsi facilitates awareness initiatives in schools and in the community often showing just liike you-down syndrome film, to foster positive attitudes and educate individuals about down syndrome. Should any of our members experience an overnight stay in the hospital, dsi provides a 50 meal voucher to support costs associated with the stay. Members can show support of the dsi brand by purchasing branded items to generate awareness within their community. All of these programs and others are shared in detail in the dsi annual report.
$1,355,376 spent$319,797 earned by the program97% of program spendingPublic education - dsi hosts annual educational conferences to bring together experts in the field to discuss best practices in working with indiviudals with down syndrome. Scholarships are available for dsi sponsored or national sponsored conferences. Dsi also hosts seminars and workshops throughout the year as reqested by dsi members. Dsi partners with 45 local school districts who have named down syndrome specialists who act as liaisons between dsi, schools, and families impacted by down syndrome. We offer the specailists a resource manual, free registration to dsi conferences, bi-annual breakfasts to exchange ideas and make dsi aware of school district needs and ongoing updates regarding research and best practices for educating students with down syndrom. Dsi also offers individualized training and private consultations for school districts who have down syndrome specialists. Information can be accessed by anyone in the community through dsi's 24-hour phone information line.
$37,457 spent$13,718 earned by the program3% of program spendingSocial events - dsi supports members throughout their life span by hosting special events to help members and families engage and connect with one another. Social events offer unique opportunities for families to meet, form friendships, and share resources. We host 5 all guild activities throughout the year which welcome the member with down syndrome and immediate familty members to activities located around the metro. Elementary aged students meet quarterly at the dsi office for events and preparation for the s.t.a.r.s. Program which meets weekly once members turn 12 years old. Adults can enjoy monthly dsg activities in addition to regular community events available to them. Each member is recognized during his/her birthday month through the dsi birthday blub which sends a card to each member.
$347 spent0% of program spendingOther
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,393,180.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $2.8M to $4.3M (+54%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 1% · 2018 0% · 2020 0% · 2022 23% · 2023 17% · 2024 5%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 20 funders, grant income rose $54k → $188k.
10 of 52 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 14% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME INNOVATIONS’s funders (the co-funder graph). Top 30 of 52 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME INNOVATIONS has a broad base — no single funder exceeds 26% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
27% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME INNOVATIONS.
Largest funder’s share by year: 2017 51% · 2018 29% · 2019 38% · 2020 65% · 2021 52% · 2022 21% · 2023 13% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
12% of DOWN SYNDROME INNOVATIONS's funders are still giving 3 years after their first grant; 38% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
63% of DOWN SYNDROME INNOVATIONS's grant income comes from Kansas funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $383k arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like DOWN SYNDROME INNOVATIONS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kansas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
62% of spending goes to programs.
Governance
Public support
86%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Part of a family of 2 related entities
- Targeted Case Management Services · disregarded
- Personal Care Attendants LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME INNOVATIONS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME INNOVATIONS?
- DOWN SYNDROME INNOVATIONS (Kansas) receives grants from 52 organizations whose IRS filings report $2,835,431 to it, the largest being Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee ($750,000). 20 of them have funded it in more than one year.
- How many funders does DOWN SYNDROME INNOVATIONS have?
- IRS filings report 52 organizations giving $2,835,431 in grants to DOWN SYNDROME INNOVATIONS, 20 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME INNOVATIONS?
- Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee is the largest funder on record, with $750,000 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME INNOVATIONS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kansas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 52 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing