Indiana · Nonprofit
DOWN SYNDROME ASSN OF NE INDIANA
DOWN SYNDROME ASSN OF NE INDIANA (Indiana) receives grants from 10 organizations whose IRS filings report $271,525 to it, the largest being AWS FOUNDATION INC ($247,000). 4 of them have funded it in more than one year.
- Revenue FY2025
- $233k
- Funders on record
- 10
- Grants received
- $272k
- Net assets
- $416k
What Down Syndrome Assn of Ne Indiana does
Mission
To enhance the lives of people living with down syndrome, to advocate on their behalf, to provide information and support to families and professionals, and to promote acceptance and inclusion of people with down syndrome in northeast indiana.
As stated on its FY2025 Form 990.
Program
Dsani was proud to offer the following programs to over 260 families during 2025. Overall program attendance was steady. Infant-toddler playgroup - the playgroup creates opportunities for infant and youngsters (ages 0-4) to play and socialize while their parents and siblings find support in a fun and environment. Families who have medically fragile children are still hesitant to attend group outings. This group was not as active in 2025, as there was no volunteer chair. Buddy club - this group offers social and recreational activities for children ages 5-12, typically meeting every two to three months. Current average attendance is 20 people. Activities included: park play dates, craft day, zoo meet ups, etc. Friendship club - aimed for teens and young adults, ages 13 to 21, this group includes teens with down syndrome and other learning disabilities, as youths with ds develop friendships in school and in the community. This group did not meet in 2025 as there was no group chair. Self-advocates - individuals with down syndrome who are 21 and older. Total attendance for social events - 139 (5 events in 2025). Activities included: sponsoring an easter egg hunt for younger friends…
$79,336 spent100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $79,336.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $361k to $420k (+16%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of DOWN SYNDROME ASSN OF NE INDIANA’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 5 funders, grant income rose $4k → $23k.
2 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 2% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME ASSN OF NE INDIANA’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME ASSN OF NE INDIANA leans on a few funders — its largest provides 91% of grant income and the top three 96%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME ASSN OF NE INDIANA.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 99% · 2021 99% · 2022 93% · 2023 87% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of DOWN SYNDROME ASSN OF NE INDIANA's funders are still giving 3 years after their first grant; 40% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
98% of DOWN SYNDROME ASSN OF NE INDIANA's grant income comes from Indiana funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME ASSN OF NE INDIANA runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like DOWN SYNDROME ASSN OF NE INDIANA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Indiana
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
46% of spending goes to programs.
Governance
Public support
93%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME ASSN OF NE INDIANA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME ASSN OF NE INDIANA?
- DOWN SYNDROME ASSN OF NE INDIANA (Indiana) receives grants from 10 organizations whose IRS filings report $271,525 to it, the largest being AWS FOUNDATION INC ($247,000). 4 of them have funded it in more than one year.
- How many funders does DOWN SYNDROME ASSN OF NE INDIANA have?
- IRS filings report 10 organizations giving $271,525 in grants to DOWN SYNDROME ASSN OF NE INDIANA, 4 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME ASSN OF NE INDIANA?
- AWS FOUNDATION INC is the largest funder on record, with $247,000 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME ASSN OF NE INDIANA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Down Syndrome Assn of Ne Indiana →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing