California · Nonprofit
CSNK2A1 FOUNDATION
CSNK2A1 FOUNDATION (California) receives grants from 34 organizations whose IRS filings report $1,777,716 to it, the largest being Silicon Valley Community Foundation ($850,000). 20 of them have funded it in more than one year, and 76% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $754k
- Funders on record
- 34
- Grants received
- $1.8M
- Net assets
- $1.5M
What Csnk2a1 Foundation does
Mission
Focus on finding a cure for okur-chung neurodevelopmental syndrome and ensuring individuals have the opportunities and support necessary for happy and full lives.
As stated on its FY2024 Form 990.
Program
2024 Csnk2a1 Foundation end of year impact report foundation overview - ocnds discovered: 2016 | foundation established: 2018 - mission: focused on finding a cure for okur-chung neurodevelopmental syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. - hallmark symptoms: speech delay or inability to speak, global developmental delay, intellectual disability, autism spectrum disorder traits, postnatal short stature, brain mri abnormalities, hypotonia, seizures, and sleep issues. - ocnds affected every patient differently. The symptoms range from mild to severe. - global reach: 291 families registered with the foundation (+73) spanning 42 countries (+8) and 25 languages (+3). - all (+) are increases since december 2023 - 6 key focus areas: research, advocacy, awareness, fundraising, family support, and capacity building. Research. Research is the cornerstone of advancing understanding, treatment, and, ultimately, a cure for ocnds. Supporting scientific studies and data collection helps uncover the mechanisms of the condition and identify therapeutic opportunities. - simons searchlight - this is our natural history study…
$417,621 spentof which $234,219 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $417,621.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $887k to $1.3M (+47%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
79% of CSNK2A1 FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Jennifer Sills
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2019 → 2023: the base broadened from 8 funders to 16 funders, grant income rose $37k → $213k.
13 of 34 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 76% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CSNK2A1 FOUNDATION’s funders (the co-funder graph). Top 30 of 34 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CSNK2A1 FOUNDATION leans on a few funders — its largest provides 48% of grant income and the top three 66%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
76% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CSNK2A1 FOUNDATION.
Largest funder’s share by year: 2019 27% · 2020 85% · 2021 46% · 2022 25% · 2023 23% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of CSNK2A1 FOUNDATION's funders are still giving 3 years after their first grant; 59% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
76% of CSNK2A1 FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $434k that is directly attributable, 76% of it comes from California funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.3M arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CSNK2A1 FOUNDATION holds deeper cash reserves than three-quarters of the 13,769 health nonprofits its size.
this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024
Organizations like CSNK2A1 FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
70% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CSNK2A1 FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CSNK2A1 FOUNDATION?
- CSNK2A1 FOUNDATION (California) receives grants from 34 organizations whose IRS filings report $1,777,716 to it, the largest being Silicon Valley Community Foundation ($850,000). 20 of them have funded it in more than one year, and 76% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CSNK2A1 FOUNDATION have?
- IRS filings report 34 organizations giving $1,777,716 in grants to CSNK2A1 FOUNDATION, 20 of which have funded it in more than one year.
- Who is the largest funder of CSNK2A1 FOUNDATION?
- Silicon Valley Community Foundation is the largest funder on record, with $850,000 in grants. The full list of funders is on this page.
- How can an organization like CSNK2A1 FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2019–2024), and the filings of 34 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing