Missouri · Nonprofit
NOONAN SYNDROME FOUNDATION
NOONAN SYNDROME FOUNDATION (Missouri) receives grants from 3 organizations whose IRS filings report $17,218 to it, the largest being THE BLACKBAUD GIVING FUND ($10,620). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $64k
- Funders on record
- 3
- Grants received
- $17k
- Net assets
- $208k
What Noonan Syndrome Foundation does
Mission
The mission of the Noonan Syndrome Foundation is to support, educate and advocate for those diagnosed with Noonan's Syndrome by supporting research for the development of effective treatments, and ultimately, a cure for the syndrome. Noonan's Syndrome is identified by a genetic mutation in the RAS/MAPK pathway and is expressed in many ways, over numerous systems in patients. The Noonan Syndrome Foundation supports patients and families by providing information online and in regular publications, holding regional events, conferences and support groups. Connecting patients and families to caregivers familiar with Noonan Syndrome is of the utmost importance ot the Foundation as well. Another goal is to increase public awareness of Noonan Syndrome to allow for accurate diagnosis by medical providers and to allow for those not affected by the syndrome to understand the challenges of those affected and to increase financial support
As stated on its FY2024 Form 990-EZ.
Programs
We have an online support group with over 9000 participants. We host a biennial family conference on even numbered years with over 220 registrants.
$0 spent0% of program spending2024 Noonan Syndrome foundation family conference. We hosted a meeting where we brought medical professionals familiar with NS to families to educate them and to offer support to each other. There were 275 attendees.
$142,842 spent100% of program spending
The 2 programs described on its FY2024 Form 990-EZ. Program spending in total: $142,842.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $287k to $208k (−27%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
43% of NOONAN SYNDROME FOUNDATION’s revenue is contributions — more earned-revenue than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 4 reported years ran a deficit.
Who funds it, year by year
2020 → 2023: the base held at 1 funder, grant income fell $1k → $1k.
2 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NOONAN SYNDROME FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NOONAN SYNDROME FOUNDATION leans on a few funders — its largest provides 62% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NOONAN SYNDROME FOUNDATION.
Largest funder’s share by year: 2020 100% · 2021 100% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of NOONAN SYNDROME FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $50 that is directly attributable, 100% of it comes from Missouri funders.
Funder states come from each funder’s own filing. $17k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NOONAN SYNDROME FOUNDATION's revenue fell 27% between 2021 and 2024.
this organization peer median middle 50% of peers· 9,907 health nonprofits under $100k, FY2024
Organizations like NOONAN SYNDROME FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Missouri
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
68%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 11 states
Screen this organization
A dated, signed PDF of the compliance screen for NOONAN SYNDROME FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NOONAN SYNDROME FOUNDATION?
- NOONAN SYNDROME FOUNDATION (Missouri) receives grants from 3 organizations whose IRS filings report $17,218 to it, the largest being THE BLACKBAUD GIVING FUND ($10,620). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does NOONAN SYNDROME FOUNDATION have?
- IRS filings report 3 organizations giving $17,218 in grants to NOONAN SYNDROME FOUNDATION, 1 of which have funded it in more than one year.
- Who is the largest funder of NOONAN SYNDROME FOUNDATION?
- THE BLACKBAUD GIVING FUND is the largest funder on record, with $10,620 in grants. The full list of funders is on this page.
- How can an organization like NOONAN SYNDROME FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Missouri. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Noonan Syndrome →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2021–2024), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing