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California · Nonprofit

GOULD SYNDROME FOUNDATION

GOULD SYNDROME FOUNDATION (California) receives grants from 2 organizations whose IRS filings report $50,000 to it, the largest being THE JOSETTA FUND ($50,000). 0 of them have funded it in more than one year.

Revenue FY2025
$73k
Funders on record
2
Grants received
$50k
Net assets
$66k
0/2 repeat funders
01What it does

What Gould Syndrome Foundation does

Mission

This corporation is organized exclusively for charitable, educational, or scientific purposes, including for such purposes, the making of distributions to organizations that qualify as exempt organizations under 501(c)(3) of the Internal Revenue Code, or the corresponding section of any future federal tax code. Without limiting the generality of the foregoing, the corporation intends to support causes that assist and support development of research and cure of Gould Syndrome caused by mutations of the COL41 and COL4A2 genes.

As stated on its FY2025 Form 990-EZ.

Programs

  1. As a foundation, we made a contribution to support the Collagen Gordon Research Conference. This contribution enabled a young researcher to attend the premier international conference on the study of collagen. This assisted and supported the development of research of Gould Syndrome.

    $1,000 spentof which $1,000 as grants
    16% of program spending

  2. During the year of 2025, we decided as a foundation to hold the first ever Gould Syndrome International Conference in America. This conference is scheduled to take place in Boston, MA on May 15-17. Once the decision was made to hold the conference in 2026, we understood that a lot of fundraising would be necessary. This is why the majority of the funds we obtained through donations in 2025 were not utilized elsewhere. However, toward the end of 2025 we made a downpayment to reserve hotel rooms for the conference. This was the first step in working toward holding the conference, the first payout of many others which will have to be made in 2026 in relation to the conference. The downpayment for the hotel rooms in order to hold a community/scientific research conference was a great accomplishment.

    $2,500 spent
    39% of program spending

  3. As a foundation, we launched our own website (1/1/25), which laid the foundation for building a support/research community around Gould Syndrome. As a part of building the community, we began to hold regular board meeting over Zoom, as well as period community meetings to provide updates. As the community has grown, we invested in a CRM (Boomerang), in order to begin to track constituents who have donated to or simply engaged with the foundation. To summarize, this accomplishment relates to establishing, growing, and tracking with the community around the support and research of Gould Syndrome, which has been accomplished through obtaining/maintaining a website domain, communicating and interacting over Zoom, and tracking the participants of our community with Boomerang.

    $2,873 spent
    45% of program spending

The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $6,373.

02The organization over time
03Who funds it

Who funds it, year by year

Grant support over time, funder by funder — shade shows the grant size each year.

Funder
'25*
'26*
total
funders
1
1

1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of GOULD SYNDROME FOUNDATION’s funders (the co-funder graph). Top 1 of 2 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

GOULD SYNDROME FOUNDATION draws 100% of its grant income from funders outside California, across 1 state in all.

MA

Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

GOULD SYNDROME FOUNDATION runs a healthier operating margin than three-quarters of the 6,360 health nonprofits its size.

Operating margin90% · top quartile

this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025

Organizations like GOULD SYNDROME FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In California

Cohen Syndrome Research Foundation74%Cure Gm1 Incorporated73%Academy of Cardiovascular Sciences Foundation USA Inc72%Autoinflammatory Alliance Inc72%Go Oncology Inc72%Csnk2a1 Foundation71%The Ketogenic Foundation70%Forgotten Diseases Research Foundation70%

Nationally

Helping Hands for Gand Inc75%White Sutton Syndrome Foundation75%Noonan Syndrome Foundation75%Cohen Syndrome Research Foundation74%Coffin-Siris Syndrome Foundation74%4p-Support Group73%Melorheostosis Association73%Joubert Syndrome and Related Disorders Foundation73%
05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

CA

Screen this organization

A dated, signed PDF of the compliance screen for GOULD SYNDROME FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds GOULD SYNDROME FOUNDATION?
GOULD SYNDROME FOUNDATION (California) receives grants from 2 organizations whose IRS filings report $50,000 to it, the largest being THE JOSETTA FUND ($50,000). 0 of them have funded it in more than one year.
How many funders does GOULD SYNDROME FOUNDATION have?
IRS filings report 2 organizations giving $50,000 in grants to GOULD SYNDROME FOUNDATION.
Who is the largest funder of GOULD SYNDROME FOUNDATION?
THE JOSETTA FUND is the largest funder on record, with $50,000 in grants. The full list of funders is on this page.
How can an organization like GOULD SYNDROME FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2025–2025), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing