Washington · Nonprofit
ADNP KIDS RESEARCH FOUNDATION
ADNP KIDS RESEARCH FOUNDATION (Washington) receives grants from 11 organizations whose IRS filings report $55,739 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($12,539). 5 of them have funded it in more than one year, and 58% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $1.1M
- Funders on record
- 11
- Grants received
- $56k
- Net assets
- $428k
What Adnp Kids Research Foundation does
Mission
Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome.
As stated on its FY2024 Form 990.
Programs
UC Davis and MIND Institute research funding for gene therapy. Research and development investigating three 3 different gene therapy approaches in cells neurons and mouse model characterization including EEG and biomarker investigations. Three approaches to move forward with an AAV as the top program.
$1,042,794 spent92% of program spendingRareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT
$37,500 spent3% of program spendingSeaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.
$26,000 spent2% of program spendingProgram Services Related Other including contact registry patient registry office expenses business expenses information technology website expenses online security expenses and expenses for research and program related conferences and research meetings all program related.
$21,150 spent2% of program spending
The 4 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $1,127,444.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $172k to $368k (+114%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of ADNP KIDS RESEARCH FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 4 funders, grant income rose $500 → $4k.
5 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 58% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ADNP KIDS RESEARCH FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ADNP KIDS RESEARCH FOUNDATION has a broad base — no single funder exceeds 22% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
71% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ADNP KIDS RESEARCH FOUNDATION.
Largest funder’s share by year: 2017 100% · 2018 54% · 2019 100% · 2020 38% · 2021 52% · 2022 73% · 2023 48% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of ADNP KIDS RESEARCH FOUNDATION's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
58% of ADNP KIDS RESEARCH FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $23k that is directly attributable, 100% of it comes from funders outside Washington, across 6 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $32k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ADNP KIDS RESEARCH FOUNDATION has grown faster than three-quarters of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like ADNP KIDS RESEARCH FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for ADNP KIDS RESEARCH FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ADNP KIDS RESEARCH FOUNDATION?
- ADNP KIDS RESEARCH FOUNDATION (Washington) receives grants from 11 organizations whose IRS filings report $55,739 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($12,539). 5 of them have funded it in more than one year, and 58% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ADNP KIDS RESEARCH FOUNDATION have?
- IRS filings report 11 organizations giving $55,739 in grants to ADNP KIDS RESEARCH FOUNDATION, 5 of which have funded it in more than one year.
- Who is the largest funder of ADNP KIDS RESEARCH FOUNDATION?
- PAYPAL CHARITABLE GIVING FUND is the largest funder on record, with $12,539 in grants. The full list of funders is on this page.
- How can an organization like ADNP KIDS RESEARCH FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2021–2024), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing