Wisconsin · Nonprofit
NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC
NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC (Wisconsin) receives grants from 18 organizations whose IRS filings report $258,781 to it, the largest being NETWORK FOR GOOD ($137,394). 6 of them have funded it in more than one year, and 85% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $676k
- Funders on record
- 18
- Grants received
- $259k
- Net assets
- $586k
What National Niemann-Pick Disease Foundation Inc does
Mission
The national niemann-pick disease foundation, inc. (nnpdf) is a non-profit, patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by niemann-pick disease, through education, collaboration and research.
As stated on its FY2024 Form 990.
Programs
Family support - support services to families who have a family member diagnosed with niemann-pick disease and patient advocacy efforts. Patient advocacy for access to medications and experimental therapies. Emotional support to individuals and families dealing with all types of niemann-pick disease, assistance through crises, information and ideas about issues such as doctors, clinics, insurance companies and other health and human service programs and practical suggestions about day-to-day care. Communications including monthly newsletters, e-news, and social media news updates. The annual nnpdf family support and medical conference brings together families, scientists, and medical professionals to share information and provide support.
$437,911 spentof which $43,910 as grants$29,969 earned by the program99% of program spendingResearch support - nnpdf supports over 450 diagnosed families at all stages of their niemann-pick disease journey. We provide accurate up-to-date information on the latest advances in medicine and science related to niemann-pick disease. Provision and monitoring of scientific research grants and fellowships to research scientists.
$5,793 spentof which $158 as grants1% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $443,704.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $548k to $795k (+45%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 6%. Grants only. Government contracts and fees sit inside program revenue.
94% of NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Joslyn Crowe
Executive director thru september
Board chair
Elizabeth Heinze
Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 6 funders, grant income rose $44k → $45k.
6 of 18 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 85% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC leans on a few funders — its largest provides 53% of grant income and the top three 79%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
95% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC.
Largest funder’s share by year: 2017 77% · 2018 65% · 2019 96% · 2020 82% · 2021 60% · 2022 53% · 2023 58% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC's funders are still giving 3 years after their first grant; 33% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
85% of NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $39k that is directly attributable, 100% of it comes from funders outside Wisconsin, across 9 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $220k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC runs a healthier operating margin than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Wisconsin
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
75% of spending goes to programs.
Governance
Public support
53%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC?
- NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC (Wisconsin) receives grants from 18 organizations whose IRS filings report $258,781 to it, the largest being NETWORK FOR GOOD ($137,394). 6 of them have funded it in more than one year, and 85% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC have?
- IRS filings report 18 organizations giving $258,781 in grants to NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC, 6 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC?
- NETWORK FOR GOOD is the largest funder on record, with $137,394 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Wisconsin. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 18 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing