Skip to content

Washington · Nonprofit

Alzheimers Disease Data Initiative Inc

Alzheimers Disease Data Initiative Inc (Washington) receives grants from 8 organizations whose IRS filings report $8,887,300 to it, the largest being The Shanahan Family Charitable Foundation ($4,650,000). 2 of them have funded it in more than one year.

Revenue FY2024
$12M
Funders on record
8
Grants received
$8.9M
Net assets
$322k
2/8 repeat funderspeak grant-dependency 100%
01What it does

What Alzheimers Disease Data Initiative Inc does

Mission

Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org.

As stated on its FY2024 Form 990.

Programs

  1. AD Workbench - a free, secure, cloud-based data sharing and analytics environment - is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. AD Workbench empowers researchers around the world to share, access, and analyze data across platforms. It provides data hosting, offers collaborative workspaces, and supports federated and distributed data sharing via FDSA.There are currently 8,400+ registered AD Workbench users from across 120 countries with access to over 800K participant records. Through AD Workbench, researchers and institutions can accelerate progress towards new and better treatments and diagnostic tools for Alzheimer's disease and related dementias.

    $5,168,435 spent
    32% of program spending
  2. Global Research Platforms - GRIP is a secure, cloud-based, and open-access platform designed to help researchers integrate, analyze, and share complex biomedical data with ease. It is a multi-site, multi-modal collaboration platform with co-developed, modular tools, workflows, and workspaces that enable secure data sharing, analysis, and collaboration.

    $5,091,974 spentof which $50,000 as grants
    32% of program spending
  3. The AD Data Initiative product suite consists of data sharing and analytic products along with enabling technical resources to empower researchers around the world to share, access and analyze data across multiple platforms. AD Workbench is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. There are currently more than 120 datasets accessible via AD Workbench - including clinical tabular data, imaging, omics and biosamples. The AD Data Initiative works closely with data contributors and data platform partners to ensure interoperability with AD data-sharing platforms and data accessibility across the global Alzheimer's data ecosystem.

    $2,932,616 spentof which $2,414,488 as grants
    18% of program spending
  4. Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research.

    $2,270,057 spentof which $550,000 as grants
    14% of program spending
  5. The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery.

    $661,862 spent
    4% of program spending

The 5 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $16,124,944.

02The organization over time

The organization over time

Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20202020 Revenue 0 ($0) Expenses 0 ($0) Net assets 0 ($0)2021 Revenue 100 ($21M) Expenses 100 ($9.2M) Net assets 100 ($12M)2022 Revenue 8 ($1.7M) Expenses 122 ($11M) Net assets 22 ($2.7M)2023 Revenue 61 ($13M) Expenses 123 ($11M) Net assets 40 ($4.9M)2024 Revenue 58 ($12M) Expenses 186 ($17M) Net assets 3 ($322k)
20202021202220232024
Revenue (58)Expenses (186)Net assets (3)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $13M to $3.3M (−75%).

$0
$13M
$3.3M
$5.3M
$2.0M
20202021202220232024
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

99% of Alzheimers Disease Data Initiative Inc’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).

This organization
Typical peer · 4,745 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.

$0
’20
$12M
’21
−$9.5M
’22
$1.7M
’23
−$4.6M
’24
1.4
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

20212024
Listed54
Joined··
No longer listed··
03Who funds it

Who funds it, year by year

2021 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $300k → $1.6M.

2 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 3% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of Alzheimers Disease Data Initiative Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

Alzheimers Disease Data Initiative Inc leans on a few funders — its largest provides 52% of grant income and the top three 82%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

33% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Alzheimers Disease Data Initiative Inc.

52%
largest funder
82%
top three
~3
effective funders

Largest funder’s share by year: 2021 100% · 2022 94% · 2023 94% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

Alzheimers Disease Data Initiative Inc draws 94% of its grant income from funders outside Washington, across 6 states in all.

WA
NY
MA
CA
DE
TX

In-state vs out-of-state, by year

’21
’22
’23
Washington out of state home

Funder states come from each funder’s own filing. $306k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

Alzheimers Disease Data Initiative Inc's funding base is broadening — from 1 funders to 2 as grant income climbed.

Operating margin−37% · bottom quartile
Months of reserve1.4mo · below the median
Revenue growth (annualized)−16% · bottom quartile

this organization peer median middle 50% of peers· 4,580 health nonprofits $10M–$100M, FY2024

Organizations like Alzheimers Disease Data Initiative Inc

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Washington

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

95% of spending goes to programs.

Program 95%Management 5%Fundraising 0%

Governance

2
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Footprint & structure

Part of a family of 4 related entities

  • Global Research Platforms LLC · disregarded
  • Breakthrough Energy Catalyst Foundation · exempt
  • Breakthrough Energy Action Inc · exempt
  • Breakthrough Energy Foundation · exempt

Screen this organization

A dated, signed PDF of the compliance screen for Alzheimers Disease Data Initiative Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds Alzheimers Disease Data Initiative Inc?
Alzheimers Disease Data Initiative Inc (Washington) receives grants from 8 organizations whose IRS filings report $8,887,300 to it, the largest being The Shanahan Family Charitable Foundation ($4,650,000). 2 of them have funded it in more than one year.
How many funders does Alzheimers Disease Data Initiative Inc have?
IRS filings report 8 organizations giving $8,887,300 in grants to Alzheimers Disease Data Initiative Inc, 2 of which have funded it in more than one year.
Who is the largest funder of Alzheimers Disease Data Initiative Inc?
The Shanahan Family Charitable Foundation is the largest funder on record, with $4,650,000 in grants. The full list of funders is on this page.
How can an organization like Alzheimers Disease Data Initiative Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Washington. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing