Connecticut · Nonprofit
WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC
WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC (Connecticut) receives grants from 8 organizations whose IRS filings report $27,193 to it, the largest being ANDREW M PAUL FAMILY FOUNDATION ($10,000). 1 of them have funded it in more than one year.
- Revenue FY2024
- $9k
- Funders on record
- 8
- Grants received
- $27k
- Net assets
- $5k
What Williams Syndrome Charitable Foundation USA Inc does
Mission
There are roughly 30,000 people in the United States living with Williams Syndrome. Williams Syndrome is characterized by the deletion of approximately 27 genes on the 7th chromosome. Those with Williams experience significant cardiovascular problems and many other health related problems, developmental delays, and learning disabilities. In 2009 The Conrod family began hosting the George Cup to raise awareness and funding for Williams medical research and education. Now run by the Williams Syndrome Charitable Foundation, the occasional Golf event and Dinner is how the Organization raises the bulk of the funds to provide this support.
As stated on its FY2024 Form 990-EZ.
Program
The Organization holds an occasional golf outing & dinner in which all net proceeds are donated to aid in Williams Syndrome support services & research. There was no event held in 2023. The golf outing fundraiser will again be held in the near future but the Organization did hold a small fundraiser in 2022 that resulted in $8000 of revenue in 2022 & with additional amounts received in 2023During 2023 the Organization funded the cost of a Williams Syndrome educational consultant who trains teachers in the Greenwich CT school system to help make school technologies user friendly for students with Williams Syndrome.
The program described on its FY2024 Form 990-EZ.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $214k to $57k (−73%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC’s revenue is contributions — more donation-reliant than the typical peer (95% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Who funds it, year by year
2018 → 2023: the base narrowed from 4 funders to 1 funder, grant income fell $16k → $88.
2 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 37% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC leans on a few funders — its largest provides 37% of grant income and the top three 85%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
37% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC.
Largest funder’s share by year: 2018 65% · 2019 89% · 2020 100% · 2021 100% · 2022 90% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
14% of WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC's funders are still giving 3 years after their first grant; 13% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC draws 97% of its grant income from funders outside Connecticut, across 5 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $10k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC has grown faster than half of the 7,183 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 7,183 philanthropy nonprofits under $100k, FY2024
Organizations like WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Connecticut
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC?
- WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC (Connecticut) receives grants from 8 organizations whose IRS filings report $27,193 to it, the largest being ANDREW M PAUL FAMILY FOUNDATION ($10,000). 1 of them have funded it in more than one year.
- How many funders does WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC have?
- IRS filings report 8 organizations giving $27,193 in grants to WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC, 1 of which have funded it in more than one year.
- Who is the largest funder of WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC?
- ANDREW M PAUL FAMILY FOUNDATION is the largest funder on record, with $10,000 in grants. The full list of funders is on this page.
- How can an organization like WILLIAMS SYNDROME CHARITABLE FOUNDATION USA INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Connecticut. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Williams Syndrome Charitable Foundation USA →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing