New York · Nonprofit
Tatton Brown Rahman Syndrome Community Inc
Tatton Brown Rahman Syndrome Community Inc (New York) receives grants from 14 organizations whose IRS filings report $745,191 to it, the largest being Silicon Valley Community Foundation ($600,000). 3 of them have funded it in more than one year, and 96% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $350k
- Funders on record
- 14
- Grants received
- $745k
- Net assets
- $691k
What Tatton Brown Rahman Syndrome Community Inc does
Mission
TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
As stated on its FY2025 Form 990.
Programs
Research: TBRS-funded research led to potentially lifesaving clinical discoveries, improving monitoring for key health risks. Through our biorepository (45 patient samples) and funded TBRS models, we removed barriers for scientists by providing essential tools for biomarker discovery and treatment development. These efforts have made it easier and faster for researchers to step into TBRS studies, expanding research participation and increasing treatment development potential.
$115,642 spentof which $84,000 as grants43% of program spendingCollaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and prioritizing patient-driven research goals. We increased the TBRS Patient Registry to over 200 participants, making it a vital resource for scientific discovery. Additionally, we developed a strategic research roadmap to guide efforts toward clinical outcomes and ensure open access to data, accelerating the path toward effective treatments.
$95,845 spent36% of program spendingEducation: In the past year, the TBRS Community delivered critical education and advocacy programs, including: Raising awareness of seizures, cardiac concerns, and cancer risks through scientific publications and advocacy efforts. Launching a Future Planning Series with expert-led sessions on long-term care, financial planning, and adult services, supporting families in making informed decisions. Hosting family education webinars, social groups, and parent support networks, strengthening community connections and equipping families with research and clinical insights.
$56,490 spent$12,870 earned by the program21% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $267,977.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $423k to $833k (+97%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
90% of Tatton Brown Rahman Syndrome Community Inc’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Jill Kiernan
Executive Director
As listed on its FY2025 Form 990.
Who funds it, year by year
2020 → 2023: the base broadened from 2 funders to 8 funders, grant income rose $9k → $63k.
9 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 96% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Tatton Brown Rahman Syndrome Community Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Tatton Brown Rahman Syndrome Community Inc leans on a few funders — its largest provides 81% of grant income and the top three 90%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Tatton Brown Rahman Syndrome Community Inc.
Largest funder’s share by year: 2020 97% · 2021 100% · 2022 95% · 2023 49% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of Tatton Brown Rahman Syndrome Community Inc's funders are still giving 1 year after their first grant; 21% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
96% of Tatton Brown Rahman Syndrome Community Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $26k that is directly attributable, 96% of it comes from funders outside New York, across 5 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $719k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Tatton Brown Rahman Syndrome Community Inc holds deeper cash reserves than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like Tatton Brown Rahman Syndrome Community Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
81% of spending goes to programs.
Governance
Public support
88%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Tatton Brown Rahman Syndrome Community Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Tatton Brown Rahman Syndrome Community Inc?
- Tatton Brown Rahman Syndrome Community Inc (New York) receives grants from 14 organizations whose IRS filings report $745,191 to it, the largest being Silicon Valley Community Foundation ($600,000). 3 of them have funded it in more than one year, and 96% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Tatton Brown Rahman Syndrome Community Inc have?
- IRS filings report 14 organizations giving $745,191 in grants to Tatton Brown Rahman Syndrome Community Inc, 3 of which have funded it in more than one year.
- Who is the largest funder of Tatton Brown Rahman Syndrome Community Inc?
- Silicon Valley Community Foundation is the largest funder on record, with $600,000 in grants. The full list of funders is on this page.
- How can an organization like Tatton Brown Rahman Syndrome Community Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing