Massachusetts · Public charity
National Organization for Rare Disorders Inc
Nord strives to improve the health and well-being of people with rare diseases by driving advances in care, research, and policy.
- $22M
- Granted FY2025(still arriving)
- 4
- Itemized grants FY2025
- 2
- Organizations funded FY2024
- 50%
- First-time grantees FY2024
- Itemized, FY2025
- $102k
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $25,000
- Largest grant, FY2025
- $41,807
- Organizations funded a year
- 2 to 14
- FY2018 to FY2024
- States reached, FY2025
- 4
- Total assets, FY2025
- $67M
How open it is to new grantees
In FY2024, 50% of the organizations National Organization for Rare Disorders Inc funded were first-time grantees, receiving 63% of its grant dollars.
New vs renewed · share of each year
In FY2024, 38% of grant dollars renewed an existing relationship; $25k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 3 | $60k | 0% |
| FY2024 | 2 | $40k | 50% |
| FY2023 | 7 | $191k | 14% |
| FY2022 | 5 | $105k | 20% |
| FY2021 | 14 | $421k | 57% |
| FY2020 | 12 | $157k | 100% |
| FY2019 | 9 | $223k | 89% |
| FY2018 | 6 | $172k | 67% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Baylor College of Medicine | $104,000 | 4 | 0% |
| USC School of Medicine Greenville | $85,487 | 3 | n/a |
| The Children's Hospital of Philadelphia | $78,099 | 4 | 0% |
| Ann & Robert H Lurie Children's Hospital of Chicago | $77,975 | 2 | 0% |
| University of Chicago | $76,000 | 2 | 0% |
| Wake Forest University Health Sciences | $75,000 | 2 | 0% |
| Children's Hospital Medical Center | $75,000 | 3 | 0% |
| Duke University | $67,500 | 3 | 0% |
| Regents of the University of Colorado | $64,025 | 2 | n/a |
| Regents Univ of California | $60,487 | 2 | n/a |
Show all 46 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Baylor College of Medicine | $104,000 | 4 | 0% |
| USC School of Medicine Greenville | $85,487 | 3 | n/a |
| The Children's Hospital of Philadelphia | $78,099 | 4 | 0% |
| Ann & Robert H Lurie Children's Hospital of Chicago | $77,975 | 2 | 0% |
| University of Chicago | $76,000 | 2 | 0% |
| Wake Forest University Health Sciences | $75,000 | 2 | 0% |
| Children's Hospital Medical Center | $75,000 | 3 | 0% |
| Duke University | $67,500 | 3 | 0% |
| Regents of the University of Colorado | $64,025 | 2 | n/a |
| Regents Univ of California | $60,487 | 2 | n/a |
| Johns Hopkins Global III Inc | $55,000 | 1 | n/a |
| Johns Hopkins University | $55,000 | 2 | 0% |
| Mass General Brigham Incorporated | $50,000 | 2 | n/a |
| Regents of the University of California | $50,000 | 1 | n/a |
| Henry M Jackson Foundation for the Advancement of Military Medicine | $50,000 | 2 | 0% |
| University of North Carolina at Chapel Hill | $50,000 | 1 | n/a |
| The University of Sheffield | $49,998 | 1 | n/a |
| University of Pittsburgh | $45,000 | 2 | 0% |
| Northwestern University | $40,581 | 2 | 0% |
| University of California San Francisco | $40,000 | 2 | n/a |
| Creighton University | $37,500 | 1 | 0% |
| Regents of the University of California at San Diego | $25,000 | 1 | n/a |
| Drexel University | $25,000 | 1 | 0% |
| New York University | $24,963 | 1 | 0% |
| Children's Hospital Corporation | $24,800 | 1 | 0% |
| University of Maryland College Park | $24,056 | 1 | n/a |
| Oslo University Hospital | $23,800 | 1 | n/a |
| University Health Network | $21,250 | 1 | n/a |
| University of Nebraska - Lincoln | $15,500 | 1 | n/a |
| The Institute For Cancer Research | $15,000 | 1 | 0% |
| Fox Chase Cancer Center Foundation | $15,000 | 1 | n/a |
| Cure Cmd | $14,973 | 1 | 2% |
| Champ1 Research Foundation Corporation | $14,890 | 1 | n/a |
| University of Florida | $14,733 | 1 | n/a |
| Life Raft Group Inc | $14,500 | 1 | 1% |
| United Msd Foundation Inc | $13,650 | 1 | 4% |
| Friedreich's Ataxia Research Alliance | $13,000 | 1 | 0% |
| H Lee Moffitt Cancer Center and Research Institute Hospital Inc | $12,500 | 1 | 0% |
| H Lee Moffitt Cancer Center and Research Institute Inc | $12,500 | 1 | 0% |
| Global Foundation for Peroxisomal Disorders | $10,900 | 1 | 2% |
| Monell Chemical Senses Center | $10,346 | 1 | 0% |
| The Cute Syndrome Foundation Inc | $9,346 | 1 | n/a |
| Tatton Brown Rahman Syndrome Community Inc | $9,000 | 1 | 9% |
| National Pku Alliance Inc | $8,718 | 1 | 1% |
| Histiocytosis Association Inc | $6,773 | 1 | 1% |
| Gbscidp Foundation International Inc | $6,000 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget National Organization for Rare Disorders Inc supplied at peak.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · Yale University · The Trustees of Columbia University in the City of New York · Silicon Valley Community Foundation · Johns Hopkins University · AbbVie Foundation · American Express Foundation · Paypal Charitable Giving Fund · Ge Aerospace Foundation · The Pfizer Foundation Inc · National Philanthropic Trust
How this is measured
Compare National Organization for Rare Disorders Inc with peer funders
About National Organization for Rare Disorders Inc
- How much does National Organization for Rare Disorders Inc give?
- National Organization for Rare Disorders Inc reported 4 itemized grants totaling $101,582, out of $22,081,890 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 14 organizations a year over FY2018 to FY2024.
- What does National Organization for Rare Disorders Inc fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (71%), Science & Tech (18%), Education (11%).
- Who are National Organization for Rare Disorders Inc's largest grantees?
- By total granted over FY2017 to FY2025: Baylor College of Medicine ($104k), USC School of Medicine Greenville ($85k), The Children's Hospital of Philadelphia ($78k).
- Does National Organization for Rare Disorders Inc fund new organizations?
- In FY2024, 50% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as National Organization for Rare Disorders Inc?
- Its strongest co-funders, measured against what their size predicts, include The Children's Hospital of Philadelphia, Vanderbilt University Medical Center, Yale University.
- Where is National Organization for Rare Disorders Inc based?
- National Organization for Rare Disorders Inc is based in MA.
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