Massachusetts · Nonprofit
SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND
SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND (Massachusetts) receives grants from 23 organizations whose IRS filings report $449,339 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($119,304). 16 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $277k
- Funders on record
- 23
- Grants received
- $449k
- Net assets
- $136k
What Spina Bifida Association of Greater New England does
Mission
Education and support for families with persons impacted by spina bifida.
As stated on its FY2024 Form 990.
Program
The Spina Bifida Association of Greater New England "sbagne" is an affiliated chapter of the national spina bifida association, with a mission to build a better and brighter future for all those impacted by spina bifida. Founded in 1971, sbagne is an independent massachusetts 501(c)(3) non-profit, governed by an independent board of directors. We serve individuals and families living with spina bifida in all 6 new england states. The board consists of parents of children with spina bifida, adults with spina bifida, and dedicated professionals working together to support and encourage families and individuals throughout the greater new england area. The goal is to enrich the lives of those affected by spina bifida through education, support, community building, advocacy, and public awareness.
$193,161 spentof which $6,510 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $193,161.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $105k to $156k (+49%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
105% of SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Jean Bertschmann
Executive director
Board chair
Nicol Hernandez
Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 7 funders, grant income rose $275 → $34k.
8 of 23 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 60% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND has a broad base — no single funder exceeds 27% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
92% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND.
Largest funder’s share by year: 2017 100% · 2018 59% · 2019 49% · 2020 53% · 2021 61% · 2022 32% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND's funders are still giving 3 years after their first grant; 70% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
60% of SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $178k that is directly attributable, 71% of it comes from Massachusetts funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $271k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND has grown faster than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
72% of spending goes to programs.
Governance
Public support
89%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND?
- SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND (Massachusetts) receives grants from 23 organizations whose IRS filings report $449,339 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($119,304). 16 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND have?
- IRS filings report 23 organizations giving $449,339 in grants to SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND, 16 of which have funded it in more than one year.
- Who is the largest funder of SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND?
- PAYPAL CHARITABLE GIVING FUND is the largest funder on record, with $119,304 in grants. The full list of funders is on this page.
- How can an organization like SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Spina Bifida Association of Greater New England →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 23 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing