Skip to content

New York · Nonprofit

PRIMARY BILIARY CHOLANGITIS ORGANIZATION

PRIMARY BILIARY CHOLANGITIS ORGANIZATION (New York) receives grants from 4 organizations whose IRS filings report $9,757 to it, the largest being MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC ($7,750). 1 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$41k
Funders on record
4
Grants received
$10k
Net assets
$222k
1/4 repeat funderspeak grant-dependency 12%
01What it does

What Primary Biliary Cholangitis Organization does

Mission

The PBCers Organization is the online and in-person support group for people with Primary Biliary Cholangitis (PBC), care partners. Were your go-to resource for peer support and the latest information on PBC

As stated on its FY2025 Form 990.

Programs

  1. The pbcers organization offers pbc patients, family members & friends online support and education designed to help them cope with chronic illness day-to-day living. This includes a website, public, & private social mendia sites (facebook, x, linkedin) & email digest.

    $3,036 spent$4,300 earned by the program
    4% of program spending
  2. Bring members together worldwide to offer one another help and support. Participate in research projects in conjunction with universities. Provide the largest online pbc support network available and provide funding to the university of ca research program.

    $30,384 spent$9,054 earned by the program
    42% of program spending
  3. Organize & host conferences and regional meetings to share information about research, provide continuing education, help pbcers meet face-to-face to share experiences, and provide support and networking for patients, family & medical professionals.

    $38,908 spent$21,250 earned by the program
    54% of program spending

The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $72,328.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($72k) Expenses 100 ($86k) Net assets 100 ($27k)2018 Revenue 231 ($165k) Expenses 146 ($125k) Net assets 254 ($67k)2019 Revenue 133 ($95k) Expenses 68 ($58k) Net assets 394 ($105k)2020 Revenue 100 ($72k) Expenses 49 ($42k) Net assets 492 ($130k)2021 Revenue 135 ($97k) Expenses 44 ($38k) Net assets 716 ($190k)2022 Revenue 159 ($114k) Expenses 217 ($187k) Net assets 441 ($117k)2023 Revenue 92 ($66k) Expenses 76 ($65k) Net assets 444 ($118k)2024 Revenue 384 ($275k) Expenses 150 ($129k) Net assets 993 ($263k)2025 Revenue 58 ($41k) Expenses 96 ($82k) Net assets 838 ($222k)
'17'18'19'20'21'22'23'24'25
Revenue (58)Expenses (96)Net assets (838)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $118k to $263k (+124%).

$27k
$67k
$105k
$130k
$190k
$117k
$118k
$263k
$222k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

16% of PRIMARY BILIARY CHOLANGITIS ORGANIZATION’s revenue is contributions — more earned-revenue than three-quarters of its peers (100% for the typical peer).

This organization
Typical peer · 12,248 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

−$14k
’17
$40k
’18
$37k
’19
$30k
’20
$59k
’21
−$73k
’22
$750
’23
$146k
’24
−$41k
’25
32
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

20172018201920242025
Listed53355
Joined·+1+0·+1
No longer listed·30·1
03Who funds it

Who funds it, year by year

2017 → 2020: the base narrowed from 2 funders to 1 funder, grant income fell $8k → $1k.

3 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 97% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of PRIMARY BILIARY CHOLANGITIS ORGANIZATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

PRIMARY BILIARY CHOLANGITIS ORGANIZATION leans on a few funders — its largest provides 79% of grant income and the top three 97%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PRIMARY BILIARY CHOLANGITIS ORGANIZATION.

79%
largest funder
97%
top three
~2
effective funders

Largest funder’s share by year: 2017 94% · 2018 100% · 2019 100% · 2020 100% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

97% of PRIMARY BILIARY CHOLANGITIS ORGANIZATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $314 that is directly attributable, 100% of it comes from funders outside New York, across 1 state.

IL

In-state vs out-of-state, by year

’18
’19
New York out of state home

Funder states come from each funder’s own filing. $9k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

PRIMARY BILIARY CHOLANGITIS ORGANIZATION is better cushioned than half of the 6,752 health nonprofits its size.

Operating margin−99% · bottom quartile
Months of reserve32.4mo · above the median
Revenue growth (annualized)−7% · below the median

this organization peer median middle 50% of peers· 6,752 health nonprofits under $100k, FY2025

Organizations like PRIMARY BILIARY CHOLANGITIS ORGANIZATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New York

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

88% of spending goes to programs.

Program 88%Management 12%Fundraising 0%

Governance

5
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for PRIMARY BILIARY CHOLANGITIS ORGANIZATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds PRIMARY BILIARY CHOLANGITIS ORGANIZATION?
PRIMARY BILIARY CHOLANGITIS ORGANIZATION (New York) receives grants from 4 organizations whose IRS filings report $9,757 to it, the largest being MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC ($7,750). 1 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does PRIMARY BILIARY CHOLANGITIS ORGANIZATION have?
IRS filings report 4 organizations giving $9,757 in grants to PRIMARY BILIARY CHOLANGITIS ORGANIZATION, 1 of which have funded it in more than one year.
Who is the largest funder of PRIMARY BILIARY CHOLANGITIS ORGANIZATION?
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC is the largest funder on record, with $7,750 in grants. The full list of funders is on this page.
How can an organization like PRIMARY BILIARY CHOLANGITIS ORGANIZATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing