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New York · Nonprofit

APBD RESEARCH FOUNDATION

APBD RESEARCH FOUNDATION (New York) receives grants from 27 organizations whose IRS filings report $1,483,515 to it, the largest being Silicon Valley Community Foundation ($615,000). 16 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$531k
Funders on record
27
Grants received
$1.5M
Net assets
$551k
16/27 repeat fundersgrants exceed reported revenue in one year
01What it does

What Apbd Research Foundation does

Mission

To fund medical research for the treatment and public education of adult polyglucosan body disease.

As stated on its FY2025 Form 990.

Program

  1. To fund medical research for treatment and cure of adult polyglucosan body disease, known as apbd.

    $470,244 spent$513,290 earned by the program
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $470,244.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($187k) Expenses 100 ($139k) Net assets 100 ($259k)2018 Revenue 44 ($82k) Expenses 64 ($89k) Net assets 97 ($251k)2019 Revenue 111 ($207k) Expenses 138 ($192k) Net assets 103 ($266k)2020 Revenue 184 ($344k) Expenses 146 ($202k) Net assets 158 ($408k)2021 Revenue 213 ($398k) Expenses 252 ($349k) Net assets 177 ($457k)2022 Revenue 127 ($238k) Expenses 176 ($244k) Net assets 174 ($451k)2023 Revenue 216 ($405k) Expenses 216 ($300k) Net assets 215 ($556k)2024 Revenue 194 ($364k) Expenses 296 ($411k) Net assets 197 ($509k)2025 Revenue 284 ($531k) Expenses 353 ($490k) Net assets 213 ($551k)
'17'18'19'20'21'22'23'24'25
Revenue (284)Expenses (353)Net assets (213)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $275k to $644k (+134%).

$263k
$257k
$275k
$644k
$481k
$454k
$557k
$513k
$651k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

97% of APBD RESEARCH FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (83% for the typical peer).

This organization
Typical peer · 14,932 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

$49k
’17
−$8k
’18
$15k
’19
$142k
’20
$49k
’21
−$7k
’22
$105k
’23
−$47k
’24
$41k
’25
15
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Natacha Pires

Exec director

As listed on its FY2025 Form 990.

'17'18'19'20'21'22'23'24'25
Listed8891097101010
Joined·+1+1+1+1+1+4+0+1
No longer listed·10023101
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 3 funders to 13 funders, grant income rose $21k → $215k.

11 of 27 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 73% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

Left out of every figure on this page: $225k from one payer (the same organization on both sides, largest Apbd Research Foundation). These are real filings, and they are not money APBD RESEARCH FOUNDATION raised.

From the IRS filings of APBD RESEARCH FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

APBD RESEARCH FOUNDATION leans on a few funders — its largest provides 41% of grant income and the top three 70%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

75% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund APBD RESEARCH FOUNDATION.

41%
largest funder
70%
top three
~4
effective funders

Largest funder’s share by year: 2017 54% · 2018 62% · 2019 39% · 2020 76% · 2021 43% · 2022 78% · 2023 23% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of APBD RESEARCH FOUNDATION's funders are still giving 3 years after their first grant; 59% give in more than one year at all.

first grant+1y+2y+3y+4y+5y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

73% of APBD RESEARCH FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $405k that is directly attributable, 98% of it comes from funders outside New York, across 9 states.

MN
IL
NY
OR
NJ
MD
TN
TX
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
New York out of state home

Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

APBD RESEARCH FOUNDATION runs a healthier operating margin than half of the 8,464 health nonprofits its size.

Operating margin8% · above the median
Months of reserve14.9mo · above the median
Revenue growth (annualized)14% · above the median

this organization peer median middle 50% of peers· 8,464 health nonprofits $100k–$1M, FY2025

Organizations like APBD RESEARCH FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New York

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

96% of spending goes to programs.

Program 96%Management 4%Fundraising 0%

Governance

9
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

97%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

NY

Screen this organization

A dated, signed PDF of the compliance screen for APBD RESEARCH FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds APBD RESEARCH FOUNDATION?
APBD RESEARCH FOUNDATION (New York) receives grants from 27 organizations whose IRS filings report $1,483,515 to it, the largest being Silicon Valley Community Foundation ($615,000). 16 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does APBD RESEARCH FOUNDATION have?
IRS filings report 27 organizations giving $1,483,515 in grants to APBD RESEARCH FOUNDATION, 16 of which have funded it in more than one year.
Who is the largest funder of APBD RESEARCH FOUNDATION?
Silicon Valley Community Foundation is the largest funder on record, with $615,000 in grants. The full list of funders is on this page.
How can an organization like APBD RESEARCH FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 27 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing