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Georgia · Nonprofit

ODYLIA THERAPEUTICS INC

ODYLIA THERAPEUTICS INC (Georgia) receives grants from 11 organizations whose IRS filings report $3,353,170 to it, the largest being THE FOUNDATION FIGHTING BLINDNESS INC ($1,500,000). 8 of them have funded it in more than one year.

Revenue FY2025
$1.5M
Funders on record
11
Grants received
$3.4M
Net assets
$821k
8/11 repeat fundersgrants exceed reported revenue in one year
01What it does

What Odylia Therapeutics Inc does

Mission

Odylia utilizes a unique, non-profit model to develop and advance therapeutics for people with rare diseases, changing the way treatments are brought from the lab to the clinic.

As stated on its FY2025 Form 990.

Program

  1. Odylia's two primary initiatives are the odylia pipeline and brydge solutions. The pipeline includes the rpgrip1, ush1c, and nphp1 gene therapy programs. Significant accomplishments included a successful fda pre-ind meeting and preclinical development activities for the rpgrip1 program, clinical candidate selection and delivery optimization for the ush1c program, and initial vector design and testing for the nphp1 program. Brydge solutions accelerates the development of treatments for rare diseases through strategic partnerships with patient advocacy organizations, disease foundations, and rare disease families. In 2025, the program established five new partnerships with save sight now, med13l foundation, upstream genes, dlg4 shine syndrome foundation, and pbd project.

    $1,197,948 spent$609,083 earned by the program
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $1,197,948.

02The organization over time

The organization over time

Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20182018 Revenue 100 ($21M) Expenses 100 ($185k) Net assets 100 ($20M)2019 Revenue 6 ($1.3M) Expenses 793 ($1.5M) Net assets 50 ($10M)2020 Revenue 0 ($61k) Expenses 250 ($461k) Net assets 48 ($9.9M)2021 Revenue 2 ($343k) Expenses 270 ($498k) Net assets 48 ($9.7M)2022 Revenue 5 ($1.1M) Expenses 469 ($866k) Net assets 48 ($9.9M)2023 Revenue 3 ($571k) Expenses 469 ($867k) Net assets 47 ($9.6M)2024 Revenue 2 ($482k) Expenses 379 ($699k) Net assets 3 ($688k)2025 Revenue 7 ($1.5M) Expenses 762 ($1.4M) Net assets 4 ($821k)
'18'19'20'21'22'23'24'25
Revenue (7)Expenses (762)Net assets (4)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $20M to $10M (−50%).

$20M
$10M
$10.0M
$9.8M
$10M
$9.7M
$1.6M
$1.7M
'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 21%. Grants only. Government contracts and fees sit inside program revenue.

59% of ODYLIA THERAPEUTICS INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).

This organization
Typical peer · 8,632 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.

$20M
’18
−$190k
’19
−$400k
’20
−$155k
’21
$232k
’22
−$296k
’23
−$217k
’24
$116k
’25
5.4
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Ashley Winslow

CEO/cso

Board chair

Scott Dorfman

Board chair

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2021 and FY2022 filings.

'18'19'20'21'22'23'24'25
Listed355669811
Joined·+2+0+1+2+4+1+3
No longer listed·0002120
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 1 funder to 6 funders, grant income rose $500 → $293k.

6 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 20% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ODYLIA THERAPEUTICS INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ODYLIA THERAPEUTICS INC leans on a few funders — its largest provides 45% of grant income and the top three 89%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ODYLIA THERAPEUTICS INC.

45%
largest funder
89%
top three
~3
effective funders

Largest funder’s share by year: 2017 100% · 2018 100% · 2020 100% · 2021 79% · 2022 70% · 2023 66% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

75% of ODYLIA THERAPEUTICS INC's funders are still giving 1 year after their first grant; 73% give in more than one year at all.

first grant+1y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

ODYLIA THERAPEUTICS INC draws 61% of its grant income from funders outside Georgia, across 4 states in all.

NY
MD
SC
GA

In-state vs out-of-state, by year

’17
’18
’20
’21
’22
’23
Georgia out of state home

Funder states come from each funder’s own filing. $673k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

ODYLIA THERAPEUTICS INC runs a healthier operating margin than half of the 5,002 health nonprofits its size.

Operating margin8% · above the median
Months of reserve5.4mo · above the median
Revenue growth (annualized)−31% · bottom quartile

this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025

Organizations like ODYLIA THERAPEUTICS INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Georgia

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

85% of spending goes to programs.

Program 85%Management 8%Fundraising 7%

Governance

8
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

64%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

MA

Screen this organization

A dated, signed PDF of the compliance screen for ODYLIA THERAPEUTICS INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ODYLIA THERAPEUTICS INC?
ODYLIA THERAPEUTICS INC (Georgia) receives grants from 11 organizations whose IRS filings report $3,353,170 to it, the largest being THE FOUNDATION FIGHTING BLINDNESS INC ($1,500,000). 8 of them have funded it in more than one year.
How many funders does ODYLIA THERAPEUTICS INC have?
IRS filings report 11 organizations giving $3,353,170 in grants to ODYLIA THERAPEUTICS INC, 8 of which have funded it in more than one year.
Who is the largest funder of ODYLIA THERAPEUTICS INC?
THE FOUNDATION FIGHTING BLINDNESS INC is the largest funder on record, with $1,500,000 in grants. The full list of funders is on this page.
How can an organization like ODYLIA THERAPEUTICS INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Georgia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Odylia Therapeutics →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing