Skip to content

Maryland · Public charity

The Foundation Fighting Blindness Inc

To drive the research that will provide preventions, treatments and cures, for people affected by retinitis pigmentosa, macular degeneration, usher syndrome, and the spectrum of retinal degenerative diseases.

$23M
Granted FY2025(still arriving)
38
Itemized grants FY2025
28
Organizations funded FY2024
18%
First-time grantees FY2024
Read the full brief
Itemized, FY2025
$20M
The rest is grants the schedule does not break out
Median grant, FY2025
$200,000
Largest grant, FY2025
$8,771,404
Organizations funded a year
21 to 28
FY2018 to FY2024
States reached, FY2025
20
Total assets, FY2025
$111M

How open it is to new grantees

In FY2024, 18% of the organizations The Foundation Fighting Blindness Inc funded were first-time grantees, receiving 9% of its grant dollars.

New vs renewed · share of each year

In FY2024, 91% of grant dollars renewed an existing relationship; $1.5M went to new ones.

50%100%’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving36$19M14%
FY202428$17M18%
FY202327$24M26%
FY202224$22M13%
FY202123$18M9%
FY202023$18M9%
FY201924$11M13%
FY201821$19M19%
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$129MScience & Tech$28MEducation$7.3M

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

ME
WA
IL
WI
MI
NY
MA
OR
IA
IN
OH
PA
CA
UT
MO
KY
MD
DE
TN
NC
SC
OK
LA
AL
GA
TX
FL

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Foundation Fighting Blindness Retinal Degeneration Fund$91,537,8779100%
Presbyterian Medical Center of the University of Pennsylvania Health System$8,285,53990%
Massachusetts Eye & Ear Infirmary$7,464,34290%
University Hospitals Health System Inc$5,859,4359n/a
Oregon Health & Science University Foundation$4,428,17391%
University of Washington Foundation$3,831,68091%
Regents of the University of California at San Diego$3,525,0008n/a
Duke University$3,364,99890%
Regents Univ of California$2,692,1557n/a
University of Wisconsin Foundation$1,970,63680%
Show all 63 grantees
All grantees of The Foundation Fighting Blindness Inc by total granted
GranteeTotal grantedYearsShare of their budget
Foundation Fighting Blindness Retinal Degeneration Fund$91,537,8779100%
Presbyterian Medical Center of the University of Pennsylvania Health System$8,285,53990%
Massachusetts Eye & Ear Infirmary$7,464,34290%
University Hospitals Health System Inc$5,859,4359n/a
Oregon Health & Science University Foundation$4,428,17391%
University of Washington Foundation$3,831,68091%
Regents of the University of California at San Diego$3,525,0008n/a
Duke University$3,364,99890%
Regents Univ of California$2,692,1557n/a
University of Wisconsin Foundation$1,970,63680%
Johns Hopkins University$1,747,02480%
Regents of the University of California at Irvine$1,514,6673n/a
Odylia Therapeutics Inc$1,500,000241%
University of Pittsburgh$1,405,00080%
Baylor College of Medicine$1,399,82030%
University of Florida Research Foundation Inc$1,074,56571%
Case Western Reserve University$1,035,00030%
Fordham University$1,019,17120%
Biojiva$947,9672n/a
Regents of the University of Michigan$939,9197n/a
Mitochem Therapeutics Inc$900,0003n/a
University of North Carolina at Chapel Hill$900,0005n/a
Regents of the University of California at Berkeley$817,9135n/a
Regents of the University of California$751,5385n/a
Retina Foundation of the Southwest$697,10064%
The Jackson Laboratory$678,21340%
Michigan State University$631,4773n/a
University of Alabama at Birmingham$599,8385n/a
University of Louisville Foundation Inc$565,83130%
Medical University of South Carolina Foundation$482,82230%
Trustees of Tufts College$399,97420%
University of Houston$377,2623n/a
Emory University$375,00050%
Indiana University School of Medicine$338,5142n/a
The Cleveland Clinic Foundation$336,37110%
University of California Santa Barbara$300,0001n/a
University of Utah$300,0003n/a
Augusta University$300,0003n/a
University of Delaware$300,0003n/a
University of Iowa Research Foundation$300,00033%
Molecular Insight Researchfoundation$300,0003n/a
New York STEM Cell Foundation Inc$296,15011%
Marquette University$288,58830%
Oakland University$285,9202n/a
Louisiana State University School of Med in New Orleans Faculty Group Practice$282,79010%
Michigan State University$265,9081n/a
The Florida State University Foundation Inc$218,00030%
The Medical College of Wisconsin Inc$200,00020%
University of California- Davis$200,0001n/a
University of Rochester$199,55420%
Unt Health Science Center$150,0002n/a
The Board of Trustees of the University of Illinois$150,0002n/a
University of Texas Health Science Center Houston$145,0623n/a
Foundation for the National Institutes of Health Inc$125,00040%
Curators of the University of Missouri$119,9551n/a
University of Massachusetts$100,0001n/a
University of Miami$100,00010%
The Research Foundation for The State University of New York$90,02010%
The Ohio State University$75,0001n/a
Oklahoma Health Sciences Facility$63,7501n/a
University of Washington$43,0001n/a
Buck Institute for Research on Aging$40,00010%
The University of Tennessee$31,8751n/a

Where it is load-bearing

The Foundation Fighting Blindness Inc supplied at least a quarter of the budget for 2 of its grantees at some point. The chart plots its 32 largest grantees; load-bearing ones sit top left.

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetFoundation Fighting Blindness Retinal Degeneration Fund: $91,537,877 over 9y, 100% of budgetPresbyterian Medical Center of the University of Pennsylvania Health System: $8,285,539 over 9y, 0.2% of budgetMassachusetts Eye & Ear Infirmary: $7,464,342 over 9y, 0.4% of budgetOregon Health & Science University Foundation: $4,428,173 over 9y, 1.1% of budgetUniversity of Washington Foundation: $3,831,680 over 9y, 0.6% of budgetDuke University: $3,364,998 over 9y, 0.0% of budgetUniversity of Wisconsin Foundation: $1,970,636 over 8y, 0.1% of budgetJohns Hopkins University: $1,747,024 over 8y, 0.0% of budgetOdylia Therapeutics Inc: $1,500,000 over 2y, 41% of budgetUniversity of Pittsburgh: $1,405,000 over 8y, 0.0% of budgetBaylor College of Medicine: $1,399,820 over 3y, 0.0% of budgetUniversity of Florida Research Foundation Inc: $1,074,565 over 7y, 0.6% of budgetCase Western Reserve University: $1,035,000 over 3y, 0.0% of budgetFordham University: $1,019,171 over 2y, 0.1% of budgetRetina Foundation of the Southwest: $697,100 over 6y, 4.3% of budgetThe Jackson Laboratory: $678,213 over 4y, 0.0% of budgetUniversity of Louisville Foundation Inc: $565,831 over 3y, 0.4% of budgetMedical University of South Carolina Foundation: $482,822 over 3y, 0.3% of budgetTrustees of Tufts College: $399,974 over 2y, 0.0% of budgetEmory University: $375,000 over 5y, 0.0% of budgetThe Cleveland Clinic Foundation: $336,371 over 1y, 0.0% of budgetUniversity of Iowa Research Foundation: $300,000 over 3y, 2.9% of budgetNew York STEM Cell Foundation Inc: $296,150 over 1y, 1.1% of budgetMarquette University: $288,588 over 3y, 0.0% of budgetLouisiana State University School of Med in New Orleans Faculty Group Practice: $282,790 over 1y, 0.2% of budgetThe Florida State University Foundation Inc: $218,000 over 3y, 0.2% of budgetThe Medical College of Wisconsin Inc: $200,000 over 2y, 0.0% of budgetUniversity of Rochester: $199,554 over 2y, 0.0% of budgetFoundation for the National Institutes of Health Inc: $125,000 over 4y, 0.1% of budgetUniversity of Miami: $100,000 over 1y, 0.0% of budgetThe Research Foundation for The State University of New York: $90,020 over 1y, 0.0% of budgetBuck Institute for Research on Aging: $40,000 over 1y, 0.1% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 32.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Johns Hopkins UniversityMD14.9× affinity5 shared granteesties to 5 of 5Hover any node to trace its alignments.Compare side by side →

Open a dossier: Johns Hopkins University · Morgan Stanley Global Impact Funding Trust Inc · National Philanthropic Trust · American Online Giving Foundation Inc · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare The Foundation Fighting Blindness Inc with peer funders

About The Foundation Fighting Blindness Inc

How much does The Foundation Fighting Blindness Inc give?
The Foundation Fighting Blindness Inc reported 38 itemized grants totaling $19,662,310, out of $22,880,201 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 21 and 28 organizations a year over FY2018 to FY2024.
What does The Foundation Fighting Blindness Inc fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (78%), Science & Tech (17%), Education (4%).
Who are The Foundation Fighting Blindness Inc's largest grantees?
By total granted over FY2017 to FY2025: Foundation Fighting Blindness Retinal Degeneration Fund ($92M), Presbyterian Medical Center of the University of Pennsylvania Health System ($8.3M), Massachusetts Eye & Ear Infirmary ($7.5M).
Does The Foundation Fighting Blindness Inc fund new organizations?
In FY2024, 18% of the organizations it funded were first-time grantees.
Which funders back the same organizations as The Foundation Fighting Blindness Inc?
Its strongest co-funders, measured against what their size predicts, include Johns Hopkins University, Morgan Stanley Global Impact Funding Trust Inc, National Philanthropic Trust.
Where is The Foundation Fighting Blindness Inc based?
The Foundation Fighting Blindness Inc is based in MD.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 67 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Foundation Fighting Blindness’ filings →

More from the funding graph