Utah · Nonprofit
HETEROTAXY CONNECTION
HETEROTAXY CONNECTION (Utah) receives grants from 3 organizations whose IRS filings report $804,634 to it, the largest being Silicon Valley Community Foundation ($800,000). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $804k
- Funders on record
- 3
- Grants received
- $805k
- Net assets
- $807k
What Heterotaxy Connection does
Mission
At Heterotaxy Connection, our mission is to create a world where individuals and families affected by heterotaxy find the support, education, and empowerment they need to live their best lives. We are dedicated to making a positive impact in the lives of those touched by this rare congenital condition. Supporting families and individuals: we are committed to providing unwavering support and a nurturing community for families and individuals dealing with heterotaxy. Our goal is to be a trusted resource, offering emotional and practical support throughout their journey. We believe that no one should face this challenge alone, and we strive to create a strong, compassionate network that fosters understanding, connection, and resilience. Educating through medical conferences with experts: Heterotaxy Connection is dedicated to promoting awareness and understanding of heterotaxy among the medical community and the general public. We organize and participate in medical conferences, bringing t
As stated on its FY2024 Form 990.
Programs
On its FY2024 return the organization reported starting a significant new program.
The organization began hosting scientific conferences to educate clinicians on heterotaxy.
Its own explanation, from Schedule O of that return (Part III, line 2).
Heterotaxy Connection hosted the first ever multidisciplinary scientific conference dedicated to the diagnosis and treatment of heterotaxy. The conference was held in conjunction with hrc3, was recorded, and is available to share with medical teams worldwide. The first conference was presented at no cost to attendees and featured 17 faculty members/physicians, 6 physicians/medical professionals, and 3 parent/family presenters.
$1,429 spent59% of program spendingHeterotaxy Connection provides patient and family support to those affected by heterotaxy. The organization strives to connect patients and families to educate and empower them. The organization provides welcome bags to families with new diagnoses, get well gifts in partnership with the claire the heart warrior foundation, and bereavement support to families who have lost a loved one to complications from heterotaxy.
$998 spent41% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $2,427.
Who funds it, year by year
2020 → 2023: the base held at 1 funder, grant income rose $768 → $901.
2 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HETEROTAXY CONNECTION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HETEROTAXY CONNECTION leans on a few funders — its largest provides 99% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HETEROTAXY CONNECTION.
Largest funder’s share by year: 2020 100% · 2021 100% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of HETEROTAXY CONNECTION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $200 that is directly attributable, 100% of it comes from funders outside Utah, across 1 state.
Funder states come from each funder’s own filing. $804k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HETEROTAXY CONNECTION holds deeper cash reserves than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like HETEROTAXY CONNECTION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Utah
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
13% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for HETEROTAXY CONNECTION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HETEROTAXY CONNECTION?
- HETEROTAXY CONNECTION (Utah) receives grants from 3 organizations whose IRS filings report $804,634 to it, the largest being Silicon Valley Community Foundation ($800,000). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does HETEROTAXY CONNECTION have?
- IRS filings report 3 organizations giving $804,634 in grants to HETEROTAXY CONNECTION, 1 of which have funded it in more than one year.
- Who is the largest funder of HETEROTAXY CONNECTION?
- Silicon Valley Community Foundation is the largest funder on record, with $800,000 in grants. The full list of funders is on this page.
- How can an organization like HETEROTAXY CONNECTION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Utah. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Heterotaxy Connection →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2024–2024), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing