Utah · Nonprofit
THE RARE LIFE
THE RARE LIFE (Utah) receives grants from 2 organizations whose IRS filings report $36,343 to it, the largest being FOUNDATION FOR A STABLE CHILDHOOD ($18,640). 0 of them have funded it in more than one year.
- Revenue FY2024
- $69k
- Funders on record
- 2
- Grants received
- $36k
- Net assets
- $35k
What The Rare Life does
Mission
The Rare Life's mission is to provide emotional support for parents of children with medical complexities and disabilities.
As stated on its FY2024 Form 990-EZ.
Programs
Podcasts the organization creates the well-loved podcast--The Rare Life. Guests include other parents in the community and experts in the field of disability. The Rare Life podcast is comprised of two themed seasons per calendar year, each episode released weekly.
$14,056 spent98% of program spendingDiscussion groups the organization hosts discussion groups on a regular basis. These groups are held virtually and are facilitated by volunteer parent-listeners. These discussion groups provide a safe space for listeners to share their thoughts on the most recent episodes and create friendships with others in the community.
$272 spent2% of program spending
The 2 programs described on its FY2023 Form 990-EZ. Program spending in total: $14,328.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $19k to $38k (+100%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of THE RARE LIFE’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 2 reported years ran a deficit.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 49% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE RARE LIFE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE RARE LIFE leans on a few funders — its largest provides 51% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
49% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE RARE LIFE.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
THE RARE LIFE draws 100% of its grant income from funders outside Utah, across 1 state in all.
Funder states come from each funder’s own filing. $18k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE RARE LIFE runs a healthier operating margin than three-quarters of the 14,851 human services nonprofits its size.
this organization peer median middle 50% of peers· 14,851 human services nonprofits under $100k, FY2024
Read directly from this organization’s own Form 990, as neutral context.
Screen this organization
A dated, signed PDF of the compliance screen for THE RARE LIFE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE RARE LIFE?
- THE RARE LIFE (Utah) receives grants from 2 organizations whose IRS filings report $36,343 to it, the largest being FOUNDATION FOR A STABLE CHILDHOOD ($18,640). 0 of them have funded it in more than one year.
- How many funders does THE RARE LIFE have?
- IRS filings report 2 organizations giving $36,343 in grants to THE RARE LIFE.
- Who is the largest funder of THE RARE LIFE?
- FOUNDATION FOR A STABLE CHILDHOOD is the largest funder on record, with $18,640 in grants. The full list of funders is on this page.
- How can an organization like THE RARE LIFE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Utah. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2023–2024), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing