Florida · Nonprofit
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC (Florida) receives grants from 22 organizations whose IRS filings report $1,492,207 to it, the largest being NORTH CAROLINA MEDICAL SOCIETY ($967,460). 7 of them have funded it in more than one year.
- Revenue FY2025
- $482k
- Funders on record
- 22
- Grants received
- $1.5M
- Net assets
- $1.0M
What Foundation for Children With Neuroimmune Disorders Inc does
Mission
Neuroimmune foundation is a non-profit organization dedicated to dramatically accelerating physician education of pans, pandas, and encephalitis; significantly improving outcomes for individuals impacted by these disorders; providing meaningful support to families during their darkest days; and catalyzing research at an unprecedented pace
As stated on its FY2025 Form 990.
Programs
Physician education - in january 2025, launched comprehensive educational model in colaboration with project echo with accredited cme disgined to equip physicians to evaluate and treat children, youth, and adults with psychiatric symptoms due to an underlying neuroimmune condition (pans, pandas, encephalitis, etc). The free cme program featured one-hour weekly meetings featuring short didactics by 8 world-renowned expert physicians from leading university programs followed by case presentations. Detailed treatment and diagnosis guides to support physicians reached over 25,000 physicians in the united states and abroad. Over 200,000 clinicians worldwide were offered free cme. Continued sustained outreach to 150+ residency programs in the us with free accredited continuing medical education. We have now educated 7000+ clinicians in 70+ countries around the world with accredited cme - 90% of them completely free of charge in an effort to improve patient outcomes. Educated at the national aap meeting, offering free resources to clinicians. Published our second peer-reviewed special issue in developmental neuroscience focusing on advances in pans and related neuroimmue disorders.…
$204,538 spent$207,579 earned by the program78% of program spendingOffered free support and high quality education to 33k + patients and families. Developed the world's largest pans/pandas clinician directory for families. Connected 4000+ patients/families with clinicians and grew our network of clinicians who can support patients/families. Family support programs included running a private group for 7,500 patients and families, providing moderation and support in that group, responding to emails to assist with finding physicians, providing educational webinars with therapists and physicians. Costs included platform fees, honorarium, materials.
$6,954 spent$46,897 earned by the program3% of program spendingFunded professor russell dale's pans research at univ. Of sydney.
$49,195 spentof which $49,195 as grants19% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $260,687.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $399k to $1.1M (+184%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2022 57% · 2023 56% · 2024 13%. Grants only. Government contracts and fees sit inside program revenue.
41% of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2020 → 2023: the base broadened from 5 funders to 8 funders, grant income rose $40k → $118k.
10 of 22 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 28% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC leans on a few funders — its largest provides 65% of grant income and the top three 82%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC.
Largest funder’s share by year: 2020 74% · 2021 43% · 2022 92% · 2023 35% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC's funders are still giving 3 years after their first grant; 32% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC draws 100% of its grant income from funders outside Florida, across 10 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $419k arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
74%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 6 states
Screen this organization
A dated, signed PDF of the compliance screen for FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC?
- FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC (Florida) receives grants from 22 organizations whose IRS filings report $1,492,207 to it, the largest being NORTH CAROLINA MEDICAL SOCIETY ($967,460). 7 of them have funded it in more than one year.
- How many funders does FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC have?
- IRS filings report 22 organizations giving $1,492,207 in grants to FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC, 7 of which have funded it in more than one year.
- Who is the largest funder of FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC?
- NORTH CAROLINA MEDICAL SOCIETY is the largest funder on record, with $967,460 in grants. The full list of funders is on this page.
- How can an organization like FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 22 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing