Massachusetts · Nonprofit
EPILEPSY FOUNDATION NEW ENGLAND
EPILEPSY FOUNDATION NEW ENGLAND (Massachusetts) receives grants from 59 organizations whose IRS filings report $1,732,076 to it, the largest being MASSACHUSETTS SERVICE ALLIANCE INC ($559,897). 28 of them have funded it in more than one year.
- Revenue FY2025
- $7.5M
- Funders on record
- 59
- Grants received
- $1.7M
- Net assets
- $14M
What Epilepsy Foundation New England does
Mission
To improve the lives of people affected by epilepsy through education, advocacy, research, and connection. Efne's services are designed to provide help for today and hope for tomorrow.
As stated on its FY2025 Form 990.
Programs
Funding support & donation center: efne's donation center funds efne's mission to improve the lives of people living with epilepsy. The donation center collects gently used clothing and housewares to be resold. Efne works to provide connection and resources to people living with epilepsy, and showcases advancements in the treatments and other resources available for people living with epilepsy in partnership with the epilepsy foundation of america. This includes showcasing research in our communication and holding events to engage health care providers, clients, and donors in improving the lives of people living with epilepsy and understanding research in epilepsy.
$1,848,287 spent$4,728,646 earned by the program40% of program spendingResource and support services: efne provides epilepsy resource rooms in about 13 hospitals across new england. Thousands of clients receive active listening and mentoring, education, and info/referrals. In fiscal year 2024, efne provided one-time grants of $50-$1,000 to 45 families affected by epilepsy and in financial crisis. Efne provides approximately 30 support groups per month, serving 400-500 people per year. Efne provides educational programs about epilepsy and seizure first aid to approximately 5,000 people per year, including school children, school personnel, first responders, parents and the general public. We maintain an online knowledge center and resource library.
$2,120,155 spentof which $214,592 as grants45% of program spendingYouth services: efne provides sleepaway and day camps each year, serving 250-300 participants. Efne's young leaders network engages teens and young adults in skill-building and support through monthly meetings and community service. Participants receive mentoring from staff, volunteers, americorps members, and interns. Young adult retreats provide transition-age youth with community building and skills as they transition to adulthood. Kids connect builds community and provides recreation for 200+ middle school students. Hundreds of online virtual support groups and meet ups provide support to our youth. Efne's hope lion campaign has reached 800+ families to provide support, education, and community as they move through their journey with epilepsy.
$700,631 spent$2,345 earned by the program15% of program spending
The 3 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $4,669,073.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $10M to $14M (+33%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 12% · 2021 7% · 2022 3% · 2023 22% · 2024 21% · 2025 15%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Alison Zetterquist
Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2024 and FY2025 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 6 funders to 23 funders, grant income rose $48k → $205k.
11 of 59 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 45% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of EPILEPSY FOUNDATION NEW ENGLAND’s funders (the co-funder graph). Top 30 of 59 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
EPILEPSY FOUNDATION NEW ENGLAND leans on a few funders — its largest provides 32% of grant income and the top three 66%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
91% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund EPILEPSY FOUNDATION NEW ENGLAND.
Largest funder’s share by year: 2017 42% · 2018 41% · 2019 41% · 2020 26% · 2021 65% · 2022 63% · 2023 27% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
48% of EPILEPSY FOUNDATION NEW ENGLAND's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
77% of EPILEPSY FOUNDATION NEW ENGLAND's grant income comes from Massachusetts funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $783k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Government funding EPILEPSY FOUNDATION NEW ENGLAND receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $4.8M on record.
- Corporation for National and Community Service$3.3M
- Department of Health and Human Services$1.5M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like EPILEPSY FOUNDATION NEW ENGLAND
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
68% of spending goes to programs.
Governance
Public support
85%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 5 states
Part of a family of 1 related entity
- Epilepsy Foundation New England Donation Center LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for EPILEPSY FOUNDATION NEW ENGLAND: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds EPILEPSY FOUNDATION NEW ENGLAND?
- EPILEPSY FOUNDATION NEW ENGLAND (Massachusetts) receives grants from 59 organizations whose IRS filings report $1,732,076 to it, the largest being MASSACHUSETTS SERVICE ALLIANCE INC ($559,897). 28 of them have funded it in more than one year.
- How many funders does EPILEPSY FOUNDATION NEW ENGLAND have?
- IRS filings report 59 organizations giving $1,732,076 in grants to EPILEPSY FOUNDATION NEW ENGLAND, 28 of which have funded it in more than one year.
- Who is the largest funder of EPILEPSY FOUNDATION NEW ENGLAND?
- MASSACHUSETTS SERVICE ALLIANCE INC is the largest funder on record, with $559,897 in grants. The full list of funders is on this page.
- How can an organization like EPILEPSY FOUNDATION NEW ENGLAND find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 59 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing