New York · Nonprofit
EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC
EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC (New York) receives grants from 11 organizations whose IRS filings report $808,087 to it, the largest being EPILEPSY COALITION OF NEW YORK STATE INC ($560,941). 4 of them have funded it in more than one year.
- Revenue FY2025
- $1.3M
- Funders on record
- 11
- Grants received
- $808k
- Net assets
- $2.1M
What Epilepsy Foundation of Northeastern New York Inc does
Mission
The mission of the epilepsy foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
As stated on its FY2025 Form 990.
Program
Educational training to assist individuals with seizure disorders so they may lead active and fulfilling lives; educate the community; help families cope with a relative's seizure.
$931,618 spent$217,278 earned by the program100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $931,618.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $1.8M to $2.1M (+17%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 27% · 2018 26% · 2019 32% · 2020 48% · 2021 45% · 2022 39% · 2023 45% · 2024 38% · 2025 36%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Jeannine Garab
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 5 funders, grant income rose $49k → $111k.
4 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 29% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC leans on a few funders — its largest provides 69% of grant income and the top three 98%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC.
Largest funder’s share by year: 2017 88% · 2018 90% · 2019 100% · 2020 98% · 2021 56% · 2022 56% · 2023 62% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
43% of EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC's funders are still giving 3 years after their first grant; 36% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
98% of EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC's grant income comes from New York funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $233k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC?
- EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC (New York) receives grants from 11 organizations whose IRS filings report $808,087 to it, the largest being EPILEPSY COALITION OF NEW YORK STATE INC ($560,941). 4 of them have funded it in more than one year.
- How many funders does EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC have?
- IRS filings report 11 organizations giving $808,087 in grants to EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC, 4 of which have funded it in more than one year.
- Who is the largest funder of EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC?
- EPILEPSY COALITION OF NEW YORK STATE INC is the largest funder on record, with $560,941 in grants. The full list of funders is on this page.
- How can an organization like EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Epilepsy Foundation of Northeastern New York →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing