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New York · Nonprofit

CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC

CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC (New York) receives grants from 8 organizations whose IRS filings report $859,772 to it, the largest being MOTHER CABRINI HEALTH FOUNDATION INC ($697,000). 7 of them have funded it in more than one year.

Revenue FY2025
$402k
Funders on record
8
Grants received
$860k
Net assets
$317k
7/8 repeat funderspeak grant-dependency 90%
01What it does

What Central New York Lyme and Tick-Borne Disease Alliance Inc does

Mission

Central new york lyme and tick-borne disease alliance, inc. (the "alliance") was formed for the charitable and educational purposes of serving as a collaborative of providers, scientists and community members who support research, drive education and promote awareness to combat tick-borne diseases. The alliance's primary charitable and educational activities will involve establishing a realistic, fact-based framework for a replicable initiative to combat lyme and tick-borne diseases, firmly establishing central new york as a go-to venue of evidence-based information about the diseases and addressing the diseases for rural and urban poor populations. The alliance will strive to improve access to information, tools and support in the central new york community by delivering targeted tick-borne disease education and prevention messages to the area and improving health care provider education to advance knowledge of tick-borne diseases and risk areas.

As stated on its FY2025 Form 990.

Program

  1. The cny lyme & tick-borne disease alliance is a collaborative of providers, scientists and community members who provide education and promote awareness to combat tick-borne diseases. Since its establishment in 2019, it has educated thousands of new yorkers through education sessions, informational handouts, website, public service announcements, billboards and social media about the dangers posed by these illnesses, and it continues to advocate on behalf of those who have contracted them.

    $343,819 spent
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $343,819.

02The organization over time

The organization over time

Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20202020 Revenue 100 ($355k) Expenses 100 ($111k) Net assets 100 ($252k)2021 Revenue 79 ($280k) Expenses 233 ($259k) Net assets 108 ($273k)2022 Revenue 86 ($304k) Expenses 261 ($291k) Net assets 114 ($287k)2023 Revenue 97 ($343k) Expenses 340 ($379k) Net assets 100 ($252k)2024 Revenue 137 ($487k) Expenses 370 ($412k) Net assets 129 ($326k)2025 Revenue 113 ($402k) Expenses 369 ($411k) Net assets 126 ($317k)
202020212022202320242025
Revenue (113)Expenses (369)Net assets (126)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $264k to $342k (+30%).

$257k
$284k
$295k
$264k
$342k
$324k
202020212022202320242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2020 4% · 2025 32%. Grants only. Government contracts and fees sit inside program revenue.

93% of CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.

$244k
’20
$21k
’21
$14k
’22
−$35k
’23
$75k
’24
−$9k
’25
9.1
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Royale Scuderi

Executive director

Board chair

Danielle Cummings

Chair

As listed on its FY2025 Form 990.

202020212022202320242025
Listed152323212121
Joined·+8+4+2+3+0
No longer listed·04430
03Who funds it

Who funds it, year by year

2020 → 2023: the base broadened from 1 funder to 6 funders, grant income rose $105k → $122k.

3 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 9% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC leans on a few funders — its largest provides 81% of grant income and the top three 96%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

81%
largest funder
96%
top three
~1
effective funders

Largest funder’s share by year: 2020 100% · 2021 87% · 2022 73% · 2023 82% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

80% of CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC's funders are still giving 2 years after their first grant; 88% give in more than one year at all.

first grant+1y+2y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

100% of CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC's grant income comes from New York funders.

NY

In-state vs out-of-state, by year

’20
’21
’22
’23
New York out of state home

Funder states come from each funder’s own filing. $81k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC is better cushioned than half of the 7,883 health nonprofits its size.

Operating margin−2% · below the median
Months of reserve9.1mo · above the median
Revenue growth (annualized)3% · below the median

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Organizations like CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New York

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

84% of spending goes to programs.

Program 84%Management 10%Fundraising 6%

Governance

17
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

86%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

NY

Screen this organization

A dated, signed PDF of the compliance screen for CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC?
CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC (New York) receives grants from 8 organizations whose IRS filings report $859,772 to it, the largest being MOTHER CABRINI HEALTH FOUNDATION INC ($697,000). 7 of them have funded it in more than one year.
How many funders does CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC have?
IRS filings report 8 organizations giving $859,772 in grants to CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC, 7 of which have funded it in more than one year.
Who is the largest funder of CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC?
MOTHER CABRINI HEALTH FOUNDATION INC is the largest funder on record, with $697,000 in grants. The full list of funders is on this page.
How can an organization like CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Central New York Lyme and Tick-Borne Disease Alliance →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing