Oregon · Nonprofit
LYME DISEASE BIOBANK FOUNDATION
LYME DISEASE BIOBANK FOUNDATION (Oregon) receives grants from 3 organizations whose IRS filings report $5,407,486 to it, the largest being BAY AREA LYME MAJOR GIFT FUND ($5,386,134). 2 of them have funded it in more than one year.
- Revenue FY2024
- $746k
- Funders on record
- 3
- Grants received
- $5.4M
- Net assets
- $-18991
What Lyme Disease Biobank Foundation does
Mission
To advance knowledge and facilitate research of the pathogenesis, diagnosis and treatment of lyme disease and other tick-borne infections.
As stated on its FY2024 Form 990.
Program
The lyme disease biobank, sponsored by bay area lyme foundation, is a collection of humanbiological samples that facilitates research of lyme disease and other tick-borne infections. By collecting blood and urine from patients with early-stage lyme disease and persistent lyme disease, as well as tissue samples from late-stage lyme patients, this important program will help dramatically improve research efforts to accelerate medical breakthroughs in the understanding, diagnosis and treatment of lyme disease and other tick-borne infections. Currently, there are 106 research projects relying on biobank samples. These projects are helping to pave the way for new diagnostics and therapeutics, as well as making strides to improve our understanding of lyme and other tick-borne infections. Through the end of 2024, we have collected samples from > 1250 participants, and more than 23,050 samples were shipped to researchers. Our persistent lyme cohort now includes 154 participants. Additionally, lyme disease biobank collaborates with the national disease research interchange (ndri) for the collection of surgical and post-mortem tissue samples, and partners with mylymedata.org, a project of…
$766,916 spent$44,822 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $766,916.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $77k to $281k (+262%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
94% of LYME DISEASE BIOBANK FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $550k → $462k.
1 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of LYME DISEASE BIOBANK FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
LYME DISEASE BIOBANK FOUNDATION leans on a few funders — its largest provides 100% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund LYME DISEASE BIOBANK FOUNDATION.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 100% · 2021 100% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
LYME DISEASE BIOBANK FOUNDATION draws 100% of its grant income from funders outside Oregon, across 1 state in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $559 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
LYME DISEASE BIOBANK FOUNDATION's revenue grew 27% between 2017 and 2024.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like LYME DISEASE BIOBANK FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Oregon
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
98% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Part of a family of 2 related entities
- Bay Area Lyme Foundation · exempt
- Bay Area Lyme Major Gift Fund · exempt
Screen this organization
A dated, signed PDF of the compliance screen for LYME DISEASE BIOBANK FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds LYME DISEASE BIOBANK FOUNDATION?
- LYME DISEASE BIOBANK FOUNDATION (Oregon) receives grants from 3 organizations whose IRS filings report $5,407,486 to it, the largest being BAY AREA LYME MAJOR GIFT FUND ($5,386,134). 2 of them have funded it in more than one year.
- How many funders does LYME DISEASE BIOBANK FOUNDATION have?
- IRS filings report 3 organizations giving $5,407,486 in grants to LYME DISEASE BIOBANK FOUNDATION, 2 of which have funded it in more than one year.
- Who is the largest funder of LYME DISEASE BIOBANK FOUNDATION?
- BAY AREA LYME MAJOR GIFT FUND is the largest funder on record, with $5,386,134 in grants. The full list of funders is on this page.
- How can an organization like LYME DISEASE BIOBANK FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Oregon. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Lyme Disease Biobank →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing