Illinois · Public charity
Families of Spinal Muscular Atrophy Dba Cure Sma
Our mission is to drive research for treatments and a cure for sma, and to support and empower everyone impacted by sma today.
- $2.6M
- Granted FY2025(still arriving)
- 9
- Itemized grants FY2025
- 19
- Organizations funded FY2024
- 0%
- First-time grantees FY2024
- Itemized, FY2025
- $1.8M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $230,000
- Largest grant, FY2025
- $346,620
- Organizations funded a year
- 16 to 24
- FY2018 to FY2024
- States reached, FY2025
- 7
- Total assets, FY2025
- $11M
How open it is to new grantees
In FY2024, 0% of the organizations Families of Spinal Muscular Atrophy Dba Cure Sma funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 7 | $1.2M | 14% |
| FY2024 | 19 | $1.2M | 0% |
| FY2023 | 20 | $1.6M | 10% |
| FY2022 | 20 | $1.4M | 15% |
| FY2021 | 16 | $1.1M | 6% |
| FY2020 | 21 | $1.6M | 43% |
| FY2019 | 24 | $2.2M | 67% |
| FY2018 | 20 | $2.1M | 95% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's Hospital Corporation | $1,877,079 | 7 | 0% |
| University of Rochester | $1,276,537 | 8 | 0% |
| Children's Research Institute | $949,138 | 7 | 0% |
| Johns Hopkins University | $686,585 | 4 | 0% |
| The Ohio State University | $645,873 | 5 | n/a |
| Ann & Robert H Lurie Children's Hospital of Chicago | $522,490 | 2 | 0% |
| The Medical College of Wisconsin Inc | $450,000 | 4 | 0% |
| University of Utah | $398,674 | 7 | n/a |
| Gillette Children's Specialty Healthcare | $300,300 | 7 | 0% |
| Mass General Brigham Incorporated | $300,000 | 4 | n/a |
Show all 55 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's Hospital Corporation | $1,877,079 | 7 | 0% |
| University of Rochester | $1,276,537 | 8 | 0% |
| Children's Research Institute | $949,138 | 7 | 0% |
| Johns Hopkins University | $686,585 | 4 | 0% |
| The Ohio State University | $645,873 | 5 | n/a |
| Ann & Robert H Lurie Children's Hospital of Chicago | $522,490 | 2 | 0% |
| The Medical College of Wisconsin Inc | $450,000 | 4 | 0% |
| University of Utah | $398,674 | 7 | n/a |
| Gillette Children's Specialty Healthcare | $300,300 | 7 | 0% |
| Mass General Brigham Incorporated | $300,000 | 4 | n/a |
| Michigan Dep of Health & Human Services | $288,940 | 2 | n/a |
| University of Alabama at Birmingham | $226,654 | 6 | n/a |
| Phoenix Children's Hospital | $220,150 | 5 | 0% |
| Arkansas Children's Research Institute | $218,843 | 6 | 0% |
| University of Wisconsin Madison | $211,247 | 1 | n/a |
| Duke University | $209,510 | 5 | 0% |
| Regents of the University of Colorado | $201,849 | 3 | n/a |
| Research Triangle Institute | $197,940 | 2 | 0% |
| University of Pittsburgh | $190,000 | 1 | 0% |
| Mass General Brigham Incorporated | $175,000 | 1 | n/a |
| Seattle Children's Hospital | $163,670 | 4 | 0% |
| Advocate Health and Hospitals Corp | $153,000 | 5 | 0% |
| Mayo Clinic | $150,000 | 1 | n/a |
| Virginia Division of Consolidated Laboratory Services | $150,000 | 1 | n/a |
| State University of Iowa | $150,000 | 1 | n/a |
| Texas Tech University Health Sciences Center at El Paso | $150,000 | 1 | n/a |
| Indiana University School of Medicine | $150,000 | 1 | n/a |
| The Salk Institute for Biological Studies | $150,000 | 1 | 0% |
| University of Texas | $149,495 | 3 | n/a |
| Connecticut Children's Medical Center | $141,981 | 5 | 0% |
| Washington University | $133,079 | 3 | 0% |
| Colorado Energy Office | $126,252 | 1 | n/a |
| The University of Kansas | $125,000 | 1 | n/a |
| Vanderbilt University Medical Center | $119,763 | 4 | 0% |
| Regents of the University of Michigan | $115,397 | 2 | n/a |
| Regents Univ of California | $109,078 | 3 | n/a |
| The Nemours Foundation | $107,608 | 2 | 0% |
| Children's Healthcare of Atlanta Inc | $107,000 | 3 | 0% |
| Northwestern University | $105,000 | 2 | 0% |
| State of Arizona | $100,000 | 1 | n/a |
| Curators of the University of Missouri | $91,000 | 3 | n/a |
| The Children's Hospital of Philadelphia | $83,250 | 2 | 0% |
| Curators of the University of Missouri Special Tr | $75,000 | 1 | n/a |
| Washington State Department of Health | $67,945 | 1 | n/a |
| Ut Southwestern Health Systems | $60,000 | 1 | 3% |
| University of Miami | $50,849 | 2 | 0% |
| The University of Texas Southwestern Medical Cente | $50,000 | 1 | n/a |
| Children's Hospital Colorado | $50,000 | 1 | 0% |
| Lucile Packard Foundation for Children's Health | $50,000 | 1 | 0% |
| University of Ut Health Butterfield Fund | $50,000 | 1 | n/a |
| CH Neurology Foundation Inc | $50,000 | 1 | 0% |
| Case Western Reserve University | $44,169 | 1 | 0% |
| Henry M Jackson Foundation for the Advancement of Military Medicine | $37,500 | 1 | 0% |
| University of New Mexico | $30,000 | 1 | n/a |
| Baylor College of Medicine | $30,000 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget Families of Spinal Muscular Atrophy Dba Cure Sma supplied at peak.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Cystic Fibrosis Foundation · Association of Public Health Laboratories Inc · Vanderbilt University Medical Center · Yale University · The Trustees of Columbia University in the City of New York · Institute for Advanced Clinical Trials for Children · The Parent Project for Muscular Dystrophy Research Inc · The Children's Oncology Group Foundation Inc · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Trustees of Boston University · Washington University
How this is measured
Compare Families of Spinal Muscular Atrophy Dba Cure Sma with peer funders
About Families of Spinal Muscular Atrophy Dba Cure Sma
- How much does Families of Spinal Muscular Atrophy Dba Cure Sma give?
- Families of Spinal Muscular Atrophy Dba Cure Sma reported 9 itemized grants totaling $1,802,574, out of $2,564,862 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 16 and 24 organizations a year over FY2018 to FY2024.
- What does Families of Spinal Muscular Atrophy Dba Cure Sma fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (62%), Education (24%), Science & Tech (14%).
- Who are Families of Spinal Muscular Atrophy Dba Cure Sma's largest grantees?
- By total granted over FY2017 to FY2025: Children's Hospital Corporation ($1.9M), University of Rochester ($1.3M), Children's Research Institute ($949k).
- Does Families of Spinal Muscular Atrophy Dba Cure Sma fund new organizations?
- In FY2024, 0% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Families of Spinal Muscular Atrophy Dba Cure Sma?
- Its strongest co-funders, measured against what their size predicts, include Cystic Fibrosis Foundation, Association of Public Health Laboratories Inc, Vanderbilt University Medical Center.
- Where is Families of Spinal Muscular Atrophy Dba Cure Sma based?
- Families of Spinal Muscular Atrophy Dba Cure Sma is based in IL.
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