· Public charity
Families of Spinal Muscular Atrophy Dba Cure Sma
Our mission is to drive research for treatments and a cure for sma, and to support and empower everyone impacted by sma today.
What you funded, over time
Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 9 grants below total $1,802,574 — the rows itemised in this filing. The $2,564,862 headline is the total grant expense reported on the return, so the remaining $762,288 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- Under $10k1 grant · $915
- $10k–50k1 grant · $44k
- $50k–250k3 grants · $544k
- $250k+4 grants · $1.2M
| Recipient | Amount |
|---|---|
| BOSTON CHILDREN'S HOSPITAL | $346,620 |
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO | $307,490 |
| TRUSTEES OF COLUMBIA UNIVERSITY - NYC | $306,885 |
| LELAND STANFORD JUNIOR UNIVERSITY | $252,500 |
| UNIVERSITY OF ROCHESTER | $230,000 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | $164,300 |
| JOHN HOPKINS UNIVERSITY | $149,695 |
| CASE WESTERN UNIVERSITY | $44,169 |
| MEDICAL COLLEGE OF WISCONSIN | $915 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 79% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $563k on the FY2025 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: BASIC RESEARCH · CLINICAL TRIALS
Stated purpose: BASIC RESEARCH
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +57% since the first grant, against +19% for the ones you funded once.
31 repeat relationships — 6 still active in FY2025, 25 since wound down; 1 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 96% of grant dollars renewed an existing relationship; $44k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- CHChildren's Hospital Corporation7× · 2019–2025 · $1.9M · revenue +55%
UNIVERSITY OF ROCHESTER8× · 2018–2025 · $1.3M · revenue +65%- CRCHILDREN'S RESEARCH INSTITUTE7× · 2019–2025 · $949k · revenue +68%
Funded once
- UOUniversity of Wisconsin Madisonone grant, 2018 · $211k
UNIVERSITY OF PITTSBURGHgraduatedone grant, 2020 · $190k · revenue +26%- MGMASS GENERAL BRIGHAM INCORPORATEDone grant, 2018 · $175k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
For reference, the grantee most central to the portfolio’s shape is Johns Hopkins University and the most unlike its peers is Phoenix Children's Hospital. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 52 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
33 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 33 of the 58 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds Children's Hospital Corporation ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds Ann & Robert H Lurie Children's Hospital of Chicago ↗
- Who funds THE MEDICAL COLLEGE OF WISCONSIN INC ↗
- Who funds Gillette Children's Specialty Healthcare ↗
- Who funds Phoenix Children's Hospital ↗
- Who funds ARKANSAS CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds Research Triangle Institute ↗
- Who funds UNIVERSITY OF PITTSBURGH ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds ADVOCATE HEALTH AND HOSPITALS CORP ↗
- Who funds The Salk Institute for Biological Studies ↗
- Who funds Yale University ↗
- Who funds CONNECTICUT CHILDREN'S MEDICAL CENTER ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds Vanderbilt University Medical Center ↗
- Who funds THE NEMOURS FOUNDATION ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: Cystic Fibrosis Foundation · Association of Public Health Laboratories Inc · Vanderbilt University Medical Center · Yale University · The Trustees of Columbia University in the City of New York · Institute for Advanced Clinical Trials for Children · The Parent Project for Muscular Dystrophy Research Inc · The Children's Oncology Group Foundation Inc · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Trustees of Boston University · Washington University
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Families of Spinal Muscular Atrophy Dba Cure Sma funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Henry M Jackson Foundation for the Advancement of Military Medicine — 100% of income from government
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
- University of Miami — 5% of income from government
- Connecticut Children's Medical Center — 5% of income from government
- Ch Neurology Foundation Inc — 1% of income from government
- The Nemours Foundation — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.