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The Parent Project for Muscular Dystrophy Research Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

The Parent Project for Muscular Dystrophy Research Inc

The parent project muscular dystrophy (ppmd) fights to end duchenne.

$1.5M
Granted FY2025still arriving
22
Grants FY2025still arriving
16
States reached
$300k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$20MScience & Tech$1.1MEducation$837kRecreation & Sports$693kSocial Science$345kCommunity Improvement$132k
02FY2025 · 22 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 22 grants below total $1,352,873, the rows itemized in this filing. The $1,500,817 headline is the total grant expense on the return; the other $147,944 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k2 grants · $15k
  • $10k–50k11 grants · $234k
  • $50k–250k8 grants · $803k
  • $250k+1 grant · $300k
$29,039
Median grant
16
States reached
$13M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF FLORIDA FOUNDATION$300,000
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES$199,875
OHIO STATE UNIVERSITY$134,961
THE GENERAL HOSPITAL CORP DBS MASSACHUSETTS GENERAL HOSPITAL$100,000
CRITICAL PATH$100,000
NORTHWESTERN UNIVERSITY$93,597
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES$65,000
NATIONWIDE CHILDREN'S HOSPITAL$60,000
ANALYSIS GROUPCTAP$50,000
CHILDREN'S NATIONAL MEDICAL CENTER$32,740
DUKE UNIVERSITY$29,039
YALE UNIVERSITY$25,161
UNIVERSITY OF ROCHESTER MEDICAL CENTER$25,000
UT SOUTHWESTERN MED$25,000
UNIVERSITY OF UTAH$25,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY22–23, $285k) land where the poverty rate runs at 8%, against an area that typically sits at 10%. 0% of those dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.

area typical 10%TEAM JOSEPH: $145k → 8%TEAM JOSEPH: $140k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NH
WA
MN
IL
WI
MI
NY
MA
IA
IN
OH
PA
NJ
CT
RI
CA
UT
CO
MO
VA
MD
DE
AZ
AR
TN
NC
DC
TX
FL

Grants abroad, by region: $157k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

North America (Canada and Mexico)$112k · 71% · 2 grants

Stated purpose: CARE FELLOWSHIP · RESEARCH- JENSEN SPECIFIC

Europe (including Iceland and Greenland)$45k · 29% · 2 grants

Stated purpose: RESEARCH - BRAIN PROJECT · RESEARCH - MEETING SUPPORT

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

96%of every dollar goes to organizations it has funded before.
$23M · 54 repeat orgs$1.0M to everyone else

Grantees it renews have grown median revenue +54% since the first grant, against +24% for those funded once.

54 repeat relationships: 18 still active in FY2025, 36 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

54
22

Total granted

$23M
$1.0M

Median revenue growth · since first grant

+54%
+24%

Still filing today

54%
41%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechRecreation & SportsHuman ServicesOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • THE UNIVERSITY OF FLORIDA FOUNDATION INC
    8× · 2018–2025 · $3.1M · revenue +62%
  • HR
    HEALTH RESEARCH INC
    3× · 2019–2021 · $2.4M · revenue +18%
  • CH
    CHILDREN'S HOSPITAL MEDICAL CENTER
    6× · 2019–2024 · $2.0M · revenue +37%

Funded once

  • BF
    BEAUHAWKS FOUNDATION
    one grant, 2018 · $300k
  • NI
    NJ INSTITUTE OF TECHNOLOGY
    3× · 2017–2020 · $178k
  • TC
    THE CENTER FOR MEDICAL TECHNOLOGY POLICY INC
    one grant, 2019 · $104k · revenue -19%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Children's Hospital Corporation

Provider of pediatric healthcare, education, research & community service

Health
2
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
Texas Children's Hospital

Texas children's hospital, headquartered in houston, texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and…

Health
5
Children's Hospital & Research Center At Oakland

The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.

Health
6
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
7
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
8
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
9
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
10
New York Genome Center Inc

Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.

Health
11
Stanley Manne Childrens Research Institute

Stanley manne children's research institute strives to generate new knowledge and advance the prevention, diagnosis, and treatment of pediatric diseases.

Health
12
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
How this is measured
The grantee most central to the portfolio’s shape is Children's Hospital; the most unlike its peers is Energizing & Empowering Minds. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

43 grantees tracked through their own filings, 2017–2026.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2026, not grant rows in a single year, so this will not match the grant count on the cover. 43 of the 80 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
42/43
Grantees still filing
34/43
Grew since first funded

Where the money sits, by cause and then by grantee

NATIONWIDE CHILDRENS HOSPITAL INC: $2,698,852 · OtherNATIONWIDE CHILDRENS HOSPITAL INCUNIVERSITY OF FLORIDA: $2,162,941 · OtherUNIVERSITY OF FLORIDATHE OHIO STATE UNIVERSITY: $1,047,331 · OtherTHE OHIO STATE UNIVERSITYREGENTS UNIV OF CALIFORNIA: $1,041,784 · OtherREGENTS UNIV OF CALIFORNIAAMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $411,699 · Other+37 more: $3,764,244 · Other+37 moreHEALTH RESEARCH INC: $2,437,199 · HealthHEALTH RESEARCH INCCHILDREN'S HOSPITAL MEDICAL CENTER: $1,991,655 · HealthCHILDREN'S HOSPITAL MEDICAL CENT…CRITICAL PATH INSTITUTE: $1,199,601 · HealthCRITICAL PATH INSTITUTETHE NEMOURS FOUNDATION: $257,905 · HealthCHILDREN'S RESEARCH INSTITUTE: $251,035 · Health+19 more: $725,821 · Health+19 moreTHE UNIVERSITY OF FLORIDA FOUNDATION INC: $3,137,483 · EducationTHE UNIVERSITY OF FLORID…The Research Foundation for The State University of New York: $679,005 · EducationThe Research Foundation …New York University: $575,000 · EducationNew York UniversityUNIVERSITY OF ROCHESTER: $450,000 · EducationUNIVERSITY OF ROCHESTER+6 more: $346,286 · Education+6 moreNorthwestern University: $696,247 · Recreation & SportsTEAM JOSEPH INC: $285,000 · Human ServicesHUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC: $82,000 · Science & TechGORDON RESEARCH CONFERENCES INC: $35,000 · Science & Tech
Other$11,126,851Health$6,863,216Education$5,187,774Recreation & Sports$696,247Human Services$285,000Science & Tech$117,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE UNIVERSITY OF FLORIDA FOUNDATION INC: $3,137,483 over 8y, 0.4% of budgetHEALTH RESEARCH INC: $2,437,199 over 3y, 0.2% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $1,991,655 over 6y, 0.0% of budgetCRITICAL PATH INSTITUTE: $1,199,601 over 9y, 1.9% of budgetNorthwestern University: $696,247 over 9y, 0.0% of budgetThe Research Foundation for The State University of New York: $679,005 over 6y, 0.0% of budgetNew York University: $575,000 over 4y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $450,000 over 4y, 0.0% of budgetAMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS: $411,699 over 3y, 2.5% of budgetINSTITUTE FOR ADVANCED CLINICAL TRIALS FOR CHILDREN: $369,440 over 3y, 3.6% of budgetTEAM JOSEPH INC: $285,000 over 2y, 13% of budgetTHE NEMOURS FOUNDATION: $257,905 over 7y, 0.0% of budgetCHILDREN'S RESEARCH INSTITUTE: $251,035 over 6y, 0.2% of budgetNYU LANGONE HEALTH SYSTEM: $150,000 over 2y, 0.2% of budgetDUKE UNIVERSITY: $121,202 over 6y, 0.0% of budgetYale University: $112,322 over 6y, 0.0% of budgetTHE CENTER FOR MEDICAL TECHNOLOGY POLICY INC: $103,796 over 1y, 8.3% of budgetHUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC: $82,000 over 6y, 0.1% of budgetARKANSAS CHILDREN'S RESEARCH INSTITUTE: $80,103 over 2y, 0.1% of budgetARKANSAS CHILDREN'S FOUNDATION: $79,785 over 4y, 0.6% of budgetVanderbilt University Medical Center: $75,036 over 2y, 0.0% of budgetChildren's Hospital Los Angeles: $62,000 over 4y, 0.0% of budgetLUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH: $62,000 over 4y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $62,000 over 4y, 0.0% of budgetSeattle Children's Foundation: $62,000 over 4y, 0.0% of budgetThe Children's Mercy Hospital: $62,000 over 4y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $50,000 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $41,662 over 2y, 0.0% of budgetEVERYLIFE FOUNDATION FOR RARE DISEASES: $41,000 over 2y, 0.5% of budgetGORDON RESEARCH CONFERENCES INC: $35,000 over 2y, 0.1% of budgetChildren's Hospital Colorado: $25,000 over 1y, 0.0% of budgetHOPE FOR GUS FOUNDATION: $20,000 over 2y, 10% of budgetChildren's Hospital of the King's Daughters: $15,000 over 2y, 0.0% of budgetCHILDREN'S HOSPITAL OF WISCONSIN FOUNDATION INC: $15,000 over 2y, 0.0% of budgetVIRGINIA TECH FOUNDATION INC: $15,000 over 2y, 0.0% of budgetCHILDREN'S HOSPITAL: $10,000 over 1y, 0.0% of budgetGillette Children's Specialty Healthcare: $10,000 over 1y, 0.0% of budgetENERGIZING & EMPOWERING MINDS: $10,000 over 1y, 15% of budgetLUCILE SALTER PACKARD CHILDREN'S HOSPITAL AT STANFORD: $10,000 over 1y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $7,000 over 1y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $6,100 over 1y, 0.0% of budgetAKRON CHILDREN'S HOSPITAL FOUNDATION: $5,000 over 1y, 0.0% of budgetUT SOUTHWESTERN HEALTH SYSTEMS: $5,000 over 1y, 0.1% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE UNIVERSITY OF FLORIDA FOUNDATION INC ↗
  • Who funds HEALTH RESEARCH INC ↗
  • Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
  • Who funds CRITICAL PATH INSTITUTE ↗
  • Who funds Northwestern University ↗
  • Who funds The Research Foundation for The State University of New York ↗
  • Who funds New York University ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS ↗
  • Who funds INSTITUTE FOR ADVANCED CLINICAL TRIALS FOR CHILDREN ↗
  • Who funds TEAM JOSEPH INC ↗
  • Who funds THE NEMOURS FOUNDATION ↗
  • Who funds CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds NYU LANGONE HEALTH SYSTEM ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds Yale University ↗
  • Who funds THE CENTER FOR MEDICAL TECHNOLOGY POLICY INC ↗
  • Who funds HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC ↗
  • Who funds ARKANSAS CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds ARKANSAS CHILDREN'S FOUNDATION ↗
  • Who funds Vanderbilt University Medical Center ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Johns Hopkins Univers…The Trustees of Colum…Muscular Dystrophy As…The Children's Hospit…Vanderbilt University…American Cancer Socie…Families of Spinal Mu…Institute for Advance…Metavivor Research an…Breakthrough T1dNorthwestern Universi…Yale University
Johns Hopkins UniversityMD21.5× affinity9 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Johns Hopkins University · The Trustees of Columbia University in the City of New York · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · American Cancer Society Inc · Families of Spinal Muscular Atrophy Dba Cure Sma · Institute for Advanced Clinical Trials for Children · Metavivor Research and Support Inc · Breakthrough T1d · Northwestern University · Yale University

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization The Parent Project for Muscular Dystrophy Research Inc funds: left to right is the share of its income from government, bottom to top the share from The Parent Project for Muscular Dystrophy Research Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 20%1%4%8%15%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Hugo W Moser Research Institute at Kennedy Krieger Inc: 39% of income from government
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • The Nemours Foundation: 0% of income from government
no gov moneyreceives it· size = income
2get no government money at all
4report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 80 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Parent Project for Muscular Dystrophy Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home