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Global Down Syndrome Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Global Down Syndrome Foundation

To significantly improve the lives of people with down syndrome through research, medical care, education and advocacy.

$789k
Granted FY2025still arriving
4
Grants FY2025still arriving
3
States reached
$500k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
0199% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Education$4.4MHealth$297kRecreation & Sports$214kHuman Services$38kEmployment$34kArts & Culture$11kHousing & Shelter$10kInternational$5kOther$0
02FY2025 · 4 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 4 grants below total $729,464, the rows itemized in this filing. The $789,464 headline is the total grant expense on the return; the other $60,000 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k2 grants · $15k
  • $50k–250k1 grant · $214k
  • $250k+1 grant · $500k
$214,464
Median grant
3
States reached
$8.7M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF COLORADO FOUNDATION$500,000
5K AND UNDER GRANTS$214,464
BLACK DOWN SYNDROME ASSOCIATION$8,000
GOLD COAST DOWN SYNDROME ORGANIZATI$7,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY17–24, $100k) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 73% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%Down Syndrome Partnership of North Texas: $11k → 11%DOWN SYNDROME ASSOC OF CENTRAL FL: $10k → 13%Down Syndrome Association of Jacksonville: $10k → 14%Down Syndrome Association Wisconsin Inc: $2k → 17%Triangle Down Syndrome Network: $10k → 8%Arc Thrift Stores: $11k → 7%Developmental Pathways: $6k → 8%DOWN SYNDROME INDIANA: $7k → 16%Down Syndrome Association of Central New Jersey: $6k → 11%Down Syndrome Association of Central Florida: $10k → 13%Down Syndrome Association of Jacksonville: $2k → 14%Little Leaf Learning Center Inc: $9k → 12%DOWN SYNDROME ASSOCIATION OF WISCON: $7k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

AK
MN
WI
MI
NY
IN
OH
NJ
CT
CA
CO
NE
MO
KY
VA
MD
DE
AZ
KS
TN
NC
AL
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

91%of every dollar goes to organizations it has funded before.
$4.6M · 14 repeat orgs$450k to everyone else

Grantees it renews have grown median revenue +76% since the first grant, against +33% for those funded once.

14 repeat relationships: 1 still active in FY2025, 13 since wound down; 3 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

14
35

Total granted

$4.6M
$220k

Median revenue growth · since first grant

+76%
+33%

Still filing today

93%
83%

New vs renewed · share of each year

In FY2025, 69% of grant dollars renewed an existing relationship; $229k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthHuman ServicesEducationPhilanthropyInternationalOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • UO
    UNIVERSITY OF COLORADO FOUNDATION
    8× · 2017–2025 · $4.4M · revenue +79%
  • CH
    Children's Hospital Colorado Foundation
    3× · 2018–2020 · $28k · revenue +37%
  • CF
    Central Florida Down Syndrome Assoc Inc
    2× · 2017–2024 · $20k · revenue +54%

Funded once

  • HS
    HELEN SMITH SCHOLARSHIP FUND INC
    one grant, 2018 · $12k
  • DS
    DOWN SYNDROME PARTNERSHIP OF NORTH TEXASgraduated
    one grant, 2018 · $11k · revenue +67%
  • AT
    ARC THRIFT STORES INCgraduated
    one grant, 2021 · $11k · revenue +26%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Down Syndrome Association of South Georgia Inc
Health
2
Down Syndrome Support Group of South Central Kentucky Inc

The mission of the organization is to be a local advocate for the value, acceptance and inclusion of people in south central kentucky with down syndrome

Human Services
3
Down Syndrome Society of Rhode Island Inc

A parent support organization dedicated to promoting the rights, dignity and potential of all individuals with down syndrome through advocacy, education, public awareness and support.

Health
4
Down Syndrome Association of Acadiana

To provide information, advocacy and support concerning all aspects of life for individuals with down syndrome, their families, and our community.

Health
5
Eastern Idaho Down Syndrome Family Connect Llc

Our mission is to build a positive connection between individuals with down syndrome, their families, and eastern idaho. we do this by providing education, advocacy, support, and resources to help facilitate inclusion within the local…

Human Services
6
The Down Syndrome Association of Greater Charlotte Inc

Providing information and support to individuals with down syndrome along with families, professionals, and the community through educational and social activities.

—
7
Down Syndrome Association of West Michigan

To be a resource and advocacy organization promoting public awareness and supporting lifelong opportunities for individuals with down syndrome and their families.

—
8
Down Syndrome Association of Los Angeles Inc

Enhance the quality of life of individuals with down syndrome by fostering family engagement, encouraging connections and providing information while promoting inclusion, acceptance and awareness of individuals with down syndrome.

—
9
Central Ms Down Syndrome Society Inc

1. Provide an understanding of down sysdrome (DS) through the dissemination of information to families, professionals and others interested in DS.2. Provide non-professional services, support and advocacy to individuals with DS and their…

Education
10
Down Syndrome Association of Wisconsin - South Central Inc

The organization is a subsidiary organization of down syndrome association of wisconsin inc., a 501(c)(3). the mission at the down syndrome association of wisconsin (dsaw) is to provide support to wisconsin families and individuals with…

Health
11
Down Syndrome Association of Tallahassee Inc

The Down Syndrome Association of Tallahassee supports individuals with Down Syndromes, their families and caregivers through education, support groups, community awareness and acceptance, conferences and assistance with therapy services.

Education
12
Rocky Mountain Down Syndrome Association Inc

The mission of rocky mountain down syndrome association is to assure inclusion and enhance independence of people with down syndrome. we achieve this by providing education, resources and support in partnership with individuals, families,…

Health
How this is measured
The grantee most central to the portfolio’s shape is Down Syndrome Association of Brazos Valley; the most unlike its peers is Hearts2Honduras Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

45 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 45 of the 52 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
17
Early backer (in before they grew)
44/45
Grantees still filing
35/45
Grew since first funded

Where the money sits, by cause and then by grantee

UNIVERSITY OF COLORADO FOUNDATION: $4,385,000 · EducationUNIVERSITY OF COLORADO FOUNDATION+1 more: $9,000 · Education5K AND UNDER GRANTS: $214,464 · OtherDOWN SYNDROME ASSOCIATION OF NORTHEAST OHIO: $17,000 · OtherDOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS: $15,000 · OtherHELEN SMITH SCHOLARSHIP FUND INC: $12,000 · Other+14 more: $82,733 · OtherChildren's Hospital Colorado Foundation: $27,815 · HealthDOWN SYNDROME ASSOCIATION OF DELAWARE INC: $17,800 · HealthDOWN SYNDROME ASSOCIATION OF MIDDLE TENNESSEE: $16,000 · HealthGRACESIGNS: $12,000 · HealthINCLUSION CONNECTIONS INC: $10,800 · HealthDOWN SYNDROME CONNECTION OF THE BAY AREA: $10,000 · HealthDOWN SYNDROME ASSOCIATION FOR FAMILIES: $8,000 · HealthBlack Down Syndrome Association: $8,000 · HealthBUDDY UP FOR LIFE INC: $7,200 · HealthDOWN SYNDROME ALABAMA: $7,000 · HealthCoastal Bringing up Down Syndrome of Southeastern: $6,400 · HealthSHARING DOWN SYNDROME ARIZONA INC: $6,400 · Health+6 more: $21,000 · HealthCentral Florida Down Syndrome Assoc Inc: $20,000 · Human ServicesDOWN SYNDROME ASSOCIATION OF JACKSONVILLE INC: $12,000 · Human ServicesDOWN SYNDROME PARTNERSHIP OF NORTH TEXAS: $10,500 · Human ServicesARC THRIFT STORES INC: $10,500 · Human ServicesNORTH CAROLINA DOWN SYNDROME ALLIANCE INC: $10,000 · Human ServicesDown Syndrome Network of Montgomery County Inc: $10,000 · Human ServicesLITTLE LEAF LEARNING CENTER INC: $9,000 · Human ServicesDOWN SYNDROME ASSOCIATION OF WISCONSIN INC: $8,600 · Human ServicesDOWN SYNDROME INDIANA INC: $7,000 · Human ServicesDOWN SYNDROME ASSOCIATION OF CENTRAL NEW JERSEY INC: $6,000 · Human ServicesDEVELOPMENTAL PATHWAYS INC: $6,000 · Human ServicesDOWN SYNDROME ALLIANCE OF THE MIDLANDS: $4,000 · PhilanthropyDOWN SYNDROME ASSOCIATION OF WEST MICHIGAN FOUNDATION: $1,800 · PhilanthropyHearts2Honduras Inc: $5,000 · International
Education$4,394,000Other$341,197Health$158,415Human Services$109,600Philanthropy$5,800International$5,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100k$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetUNIVERSITY OF COLORADO FOUNDATION: $4,385,000 over 8y, 0.3% of budgetChildren's Hospital Colorado Foundation: $27,815 over 3y, 0.0% of budgetCentral Florida Down Syndrome Assoc Inc: $20,000 over 2y, 2.3% of budgetDOWN SYNDROME ASSOCIATION OF DELAWARE INC: $17,800 over 2y, 6.9% of budgetDOWN SYNDROME ASSOCIATION OF NORTHEAST OHIO: $17,000 over 3y, 1.2% of budgetDOWN SYNDROME ASSOCIATION OF MIDDLE TENNESSEE: $16,000 over 2y, 1.9% of budgetDOWN SYNDROME ASSOCIATION OF GREATER ST LOUIS: $15,000 over 2y, 0.7% of budgetDOWN SYNDROME ASSOCIATION OF JACKSONVILLE INC: $12,000 over 2y, 2.4% of budgetGRACESIGNS: $12,000 over 2y, 75% of budgetDOWN SYNDROME PARTNERSHIP OF NORTH TEXAS: $10,500 over 1y, 5.6% of budgetARC THRIFT STORES INC: $10,500 over 1y, 0.0% of budgetNORTH CAROLINA DOWN SYNDROME ALLIANCE INC: $10,000 over 1y, 6.6% of budgetDOWN SYNDROME ASSOCIATION OF CONNEC: $10,000 over 1y, 8.5% of budgetThe Cedars of Marin: $10,000 over 1y, 0.1% of budgetDOWN SYNDROME CONNECTION OF THE BAY AREA: $10,000 over 2y, 0.6% of budgetGREEN OAKS EDUCATION AND SUPPORT INC: $9,000 over 1y, 0.6% of budgetDOWN SYNDROME ASSOCIATION OF GREATER CINCINNATI: $9,000 over 1y, 0.7% of budgetLITTLE LEAF LEARNING CENTER INC: $9,000 over 1y, 1.6% of budgetDOWN SYNDROME ASSOCIATION OF WISCONSIN INC: $8,600 over 2y, 0.3% of budgetVIRGINIA DOWN SYNDROME ASSOCIATION: $8,233 over 2y, 1.9% of budgetDOWN SYNDROME ASSOCIATION FOR FAMILIES: $8,000 over 1y, 7.2% of budgetBlack Down Syndrome Association: $8,000 over 1y, 6.7% of budgetBUDDY UP FOR LIFE INC: $7,200 over 1y, 1.6% of budgetACDS INC: $7,000 over 1y, 0.0% of budgetDOWN SYNDROME INDIANA INC: $7,000 over 1y, 1.4% of budgetGOLD COAST DOWN SYNDROME ORG INC: $7,000 over 1y, 1.2% of budgetDOWN SYNDROME ALABAMA: $7,000 over 1y, 2.8% of budgetCoastal Bringing up Down Syndrome of Southeastern: $6,400 over 1y, 4.2% of budgetSHARING DOWN SYNDROME ARIZONA INC: $6,400 over 1y, 3.2% of budgetDOWN SYNDROME ASSN OF CENTRAL TEXAS: $6,000 over 1y, 1.9% of budgetDEVELOPMENTAL PATHWAYS INC: $6,000 over 1y, 0.0% of budgetDOWN SYNDROME ASSOCIATION OF MEMPHIS: $5,000 over 1y, 2.5% of budgetHearts2Honduras Inc: $5,000 over 1y, 1.3% of budgetDown Syndrome Guild of Dallas: $5,000 over 1y, 1.1% of budgetAlaska Chapter Down Syndrome Congress: $5,000 over 1y, 13% of budgetDOWN SYNDROME ALLIANCE OF THE MIDLANDS: $4,000 over 2y, 1.1% of budgetDOWN SYNDROME ASSOCIATION OF BRAZOS VALLEY: $2,000 over 1y, 1.6% of budgetDown Syndrome of Louisville Inc: $2,000 over 1y, 0.1% of budgetDOWN SYNDROME ASSOCIATION OF WEST MICHIGAN FOUNDATION: $1,800 over 1y, 1.6% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Tony R Wells Foundati…Baird Foundation IncGe Aerospace Foundati…McKesson Foundation I…Dollar General Litera…Down Syndrome Diagnos…Jpmorgan Chase Founda…Enterprise Holdings F…Network for GoodCommunities Foundatio…Arthur J Gallagher Fo…Charities Aid Foundat…
Tony R Wells FoundationOH24.1× affinity9 shared granteesties to 10 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Tony R Wells Foundation · Baird Foundation Inc · Ge Aerospace Foundation · McKesson Foundation Inc · Dollar General Literacy Foundation · Down Syndrome Diagnosis Network · Jpmorgan Chase Foundation · Enterprise Holdings Foundation · Network for Good · Communities Foundation of Texas Inc · Arthur J Gallagher Foundation · Charities Aid Foundation America

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Global Down Syndrome Foundation funds: left to right is the share of its income from government, bottom to top the share from Global Down Syndrome Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 30%1%3%6%10%funder's share of their income ↑0%3%5%8%10%share of the org’s income from government →median 0%
  • Down Syndrome Association of Connec: 0% of income from government
no gov moneyreceives it· size = income
3get no government money at all
12report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–10%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Global Down Syndrome Foundation?

Find your warmest path to Global Down Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 52 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Global Down Syndrome’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home