Illinois · Public charity
Citizens United for Research in Epilepsy
To find a cure for epilepsy by promoting and funding patient focused research.
- $2.3M
- Granted FY2025(still arriving)
- 14
- Itemized grants FY2025
- 12
- Organizations funded FY2024
- 25%
- First-time grantees FY2024
- Itemized, FY2025
- $1.3M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $100,000
- Largest grant, FY2025
- $258,324
- Organizations funded a year
- 4 to 22
- FY2018 to FY2024
- States reached, FY2025
- 9
- Total assets, FY2025
- $10M
How open it is to new grantees
In FY2024, 25% of the organizations Citizens United for Research in Epilepsy funded were first-time grantees, receiving 24% of its grant dollars.
New vs renewed · share of each year
In FY2024, 76% of grant dollars renewed an existing relationship; $465k went to new ones.
RenewedFirst-time
Where new relationships form · theme of each grantee’s first grant
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 11 | $782k | 55% |
| FY2024 | 12 | $1.9M | 25% |
| FY2023 | 16 | $1.8M | 50% |
| FY2022 | 11 | $1.4M | 55% |
| FY2021 | 11 | $2.1M | 45% |
| FY2020 | 22 | $4.2M | 55% |
| FY2019 | 14 | $2.1M | 86% |
| FY2018 | 4 | $1.1M | 100% |
100% classified
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Health$11MScience & Tech$5.7MEducation$4.4MRecreation & Sports$300kYouth Development$250kFood & Nutrition$100k
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
ME
VT
WA
MT
MN
IL
WI
MI
NY
MA
IA
OH
PA
NJ
CT
RI
CA
UT
CO
KY
VA
MD
TN
NC
AL
GA
TX
FL
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Mass General Brigham Incorporated | $2,898,811 | 6 | n/a |
| Mid Atlantic Epilepsy & Sleep Center LLC | $886,581 | 5 | n/a |
| University of Florida | $838,778 | 4 | n/a |
| Emory University | $751,000 | 3 | 0% |
| Virginia Polytechnic Institute & State University | $667,200 | 1 | n/a |
| Northwestern University | $550,000 | 4 | 0% |
| The Board of Trustees of the University of Illinois | $530,000 | 2 | n/a |
| University of Wisconsin Madison | $514,970 | 3 | n/a |
| Children's Hospital Corporation | $450,000 | 3 | 0% |
| University of Washington | $391,154 | 2 | n/a |
Show all 64 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Mass General Brigham Incorporated | $2,898,811 | 6 | n/a |
| Mid Atlantic Epilepsy & Sleep Center LLC | $886,581 | 5 | n/a |
| University of Florida | $838,778 | 4 | n/a |
| Emory University | $751,000 | 3 | 0% |
| Virginia Polytechnic Institute & State University | $667,200 | 1 | n/a |
| Northwestern University | $550,000 | 4 | 0% |
| The Board of Trustees of the University of Illinois | $530,000 | 2 | n/a |
| University of Wisconsin Madison | $514,970 | 3 | n/a |
| Children's Hospital Corporation | $450,000 | 3 | 0% |
| University of Washington | $391,154 | 2 | n/a |
| St Jude Children's Research Hospital Inc | $349,999 | 2 | 0% |
| Regents Univ of California | $325,000 | 3 | n/a |
| Morehouse College | $322,790 | 2 | 0% |
| Seattle Children's Hospital | $320,000 | 2 | 0% |
| University of Utah | $304,872 | 3 | n/a |
| University of Kentucky | $250,000 | 1 | n/a |
| Regents of the University of Michigan | $250,000 | 1 | n/a |
| New York Medical College | $250,000 | 1 | 0% |
| Children's Hospital Medical Center | $250,000 | 1 | 0% |
| Emory University | $250,000 | 1 | n/a |
| The Research Foundation for The State University of New York | $250,000 | 1 | 0% |
| Rutgers the State University | $250,000 | 1 | n/a |
| Mass General Brigham Incorporated | $250,000 | 1 | n/a |
| State University of Iowa | $250,000 | 1 | n/a |
| Research Foundation for Mental Hygiene Inc | $250,000 | 1 | 0% |
| University of Texas | $249,966 | 1 | n/a |
| Duke University Health System Inc | $249,908 | 1 | 0% |
| Axonis Therapeutics Inc | $249,150 | 1 | n/a |
| Lifesplice Pharma | $243,479 | 1 | n/a |
| Gryphon Bio Inc | $238,100 | 2 | n/a |
| Cognizance Biomarkers LLC | $238,050 | 1 | n/a |
| University of Texas Health Science Center Houston | $237,466 | 1 | n/a |
| University of California San Francisco | $230,000 | 2 | n/a |
| Baylor College of Medicine | $162,149 | 1 | 0% |
| University of Michigan | $150,000 | 1 | n/a |
| University of California Riverside | $125,000 | 1 | n/a |
| Icahn School of Medicine at Mount Sinai | $117,500 | 2 | 0% |
| Cornell University | $115,190 | 1 | 0% |
| University of Vermont and State Agricultural College | $114,999 | 2 | n/a |
| University of North Carolina at Chapel Hill | $114,909 | 2 | n/a |
| Regents of the University of California at San Diego | $104,000 | 1 | n/a |
| Board of the University of Alabama | $100,000 | 1 | n/a |
| Emory University | $100,000 | 1 | n/a |
| The Children's Hospital of Philadelphia Foundation | $100,000 | 1 | 0% |
| Quiver Biosciences | $100,000 | 1 | n/a |
| The Jackson Laboratory | $100,000 | 1 | n/a |
| The Children's Hospital of Philadelphia | $99,995 | 1 | 0% |
| Rector & Visitors of the University of Virginia | $99,991 | 1 | n/a |
| University of Maryland College Park | $99,916 | 1 | n/a |
| American Epilepsy Society | $95,750 | 6 | 0% |
| Trustees of Tufts College | $84,000 | 2 | 0% |
| Gordon Research Conferences Inc | $72,756 | 5 | 0% |
| Chop Foundation | $50,000 | 1 | n/a |
| Regents of the University of Colorado | $15,000 | 1 | n/a |
| Vanderbilt University Medical Center | $13,634 | 1 | 0% |
| Expesicor | $11,530 | 1 | n/a |
| Nucleus Healthcare Consulting | $10,566 | 1 | n/a |
| Vanderbilt University | $10,000 | 1 | 0% |
| Bruker Spatial Biology | $9,673 | 1 | n/a |
| International League Against Epilepsy | $8,086 | 1 | 0% |
| Stxbp1 Foundation | $7,500 | 1 | 7% |
| Baylor University | $7,500 | 1 | 0% |
| Treatments for Epilepsy and Symptoms of | $6,000 | 1 | 1% |
| Alliance for Epilepsy Research | $5,671 | 1 | n/a |
Where it is load-bearing
Each grantee by its size and the share of its budget Citizens United for Research in Epilepsy supplied at peak.
Tap a dot to name the grantee.
How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 25.
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
American Epilepsy SocietyIL15.7× affinity5 shared granteesties to 6 of 6Hover any node to trace its alignments.Compare side by side →
Open a dossier: American Epilepsy Society · National Philanthropic Trust · Vanguard Charitable Endowment Program · American Online Giving Foundation Inc · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation
How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.
Compare Citizens United for Research in Epilepsy with peer funders
About Citizens United for Research in Epilepsy
- How much does Citizens United for Research in Epilepsy give?
- Citizens United for Research in Epilepsy reported 14 itemized grants totaling $1,289,863, out of $2,274,098 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 4 and 22 organizations a year over FY2018 to FY2024.
- What does Citizens United for Research in Epilepsy fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (51%), Science & Tech (26%), Education (20%).
- Who are Citizens United for Research in Epilepsy's largest grantees?
- By total granted over FY2017 to FY2025: Mass General Brigham Incorporated ($2.9M), Mid Atlantic Epilepsy & Sleep Center LLC ($887k), University of Florida ($839k).
- Does Citizens United for Research in Epilepsy fund new organizations?
- In FY2024, 25% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Citizens United for Research in Epilepsy?
- Its strongest co-funders, measured against what their size predicts, include American Epilepsy Society, National Philanthropic Trust, Vanguard Charitable Endowment Program.
- Where is Citizens United for Research in Epilepsy based?
- Citizens United for Research in Epilepsy is based in IL.
Play a game based on Citizens United for Research in Epilepsy’s filings →
More from the funding graph
The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home