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Citizens United for Research in Epilepsy at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Citizens United for Research in Epilepsy

To find a cure for epilepsy by promoting and funding patient focused research.

$2.3M
Granted FY2025still arriving
14
Grants FY2025still arriving
9
States reached
$258k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$11MScience & Tech$5.7MEducation$4.4MRecreation & Sports$300kYouth Development$250kFood & Nutrition$100k
02FY2025 · 14 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 14 grants below total $1,289,863, the rows itemized in this filing. The $2,274,098 headline is the total grant expense on the return; the other $984,235 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k2 grants · $16k
  • $10k–50k3 grants · $41k
  • $50k–250k7 grants · $725k
  • $250k+2 grants · $508k
$100,000
Median grant
9
States reached
$10M
Total assets
Largest grants
RecipientAmount
Stanford University$258,324
Research Foundation for Mental Hygiene$250,000
Trustees of the University of Pennsylvania$125,000
University of Southern California$125,000
University of California Riverside$125,000
The Jackson Laboratory$100,000
Northwestern University$100,000
Seattle Children's Hospital$100,000
Childrens Hospital of Philadelphia$50,000
American Epilepsy Society$15,000
Gordon Research Conferences$15,000
Nucleus Healthcare Consulting$10,566
Bruker Spatial Biology$9,673
Mid-Atlantic Sleep and Epilepsy Center$6,300
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 10%. 80% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%Brandeis University: $250k → 8%Axonis Therapeutics Inc: $249k → 12%Brigham and Women's Hospital: $250k → 16%LIFESPLICE PHARMA: $243k → 6%STANFORD UNIVERSITY: $100k → 7%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $104k → 11%University of California Riverside: $125k → 11%University of Southern California: $125k → 14%New York Medical College: $250k → 9%Research Foundation for Mental Hygiene: $250k → 14%University of Texas Southwestern Medical Center: $250k → 14%Gryphon Bio Inc: $150k → 16%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON: $237k → 16%The University of Iowa: $250k → 15%UNIVERSITY OF MICHIGAN: $150k → 16%University of Wisconsin Madison: $250k → 10%St Judes Children's Hospital: $250k → 17%DUKE UNIVERSITY MEDICAL CENTER: $250k → 11%BROWN UNIVERSITY: $220k → 14%University of Utah: $200k → 8%Morehouse University: $243k → 13%EMORY UNIVERSITY: $251k → 14%CHILDREN'S HOSPITAL MEDICAL CENTER: $250k → 16%UNIVERSITY OF WASHINGTON: $250k → 9%THE UNIVERSITY OF ILLINOIS: $230k → 19%RUTGERS THE STATE UNIVERSITY: $250k → 8%VIRGINIA POLYTECHNIC INST & STATE UNIVERSITY: $667k → 21%MID ATLANTIC EPILEPSY & SLEEP CENTER LLC: $556k → 8%UNIVERSITY OF PENNSYLVANIA: $350k → 22%ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $103k → 17%UNIVERSITY OF WISCONSIN-MADISON: $250k → 10%EMORY UNIVERSITY: $250k → 14%UNIVERSITY OF WASHINGTON: $141k → 9%BOARD OF TRUSTEES UNIVERSITY OF ILLINOIS: $300k → 19%Virginia Tech: $140k → 21%MID-ATLANTIC EPILEPSY & SLEEP CENTER LLC: $243k → 8%COGNIZANCE BIOMARKERS LLC: $238k → 22%University of California Los Angeles: $125k → 14%EMORY UNIVERSITY SCHOOL OF MEDICINE BRAIN HEALTH CENTER: $250k → 14%VIRGINIA TECH: $1.3M → 21%MASSACHUSETTS GENERAL HOSPITAL: $1.4M → 16%TRUSTEES OF UNIVERSITY OF PENNSYLVANIA: $233k → 22%Northwestern University: $250k → 14%VIRGINIA TECH: $613k → 21%MASSACHUSETTS GENERAL HOSPITAL: $594k → 16%UNIVERSITY OF PENNSYLVANIA: $175k → 22%MASSACHUSETTS GENERAL HOSPITAL: $594k → 16%Trustees of the University of Pennsylvania: $125k → 22%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
VT
WA
MT
MN
IL
WI
MI
NY
MA
IA
OH
PA
NJ
CT
RI
CA
UT
CO
KY
VA
MD
TN
NC
AL
GA
TX
FL

Grants abroad, by region: $871k on the FY2025 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$400k · 46% · 1 grant

Stated purpose: Research Grant

Middle East and North Africa$250k · 29% · 1 grant

Stated purpose: Research Grant

North America (Canada and Mexico)$222k · 25% · 1 grant

Stated purpose: Research Grant

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

63%of every dollar goes to organizations it has funded before.
$11M · 22 repeat orgs$6.2M to everyone else

Grantees it renews have grown median revenue +50% since the first grant, against +43% for those funded once.

22 repeat relationships: 5 still active in FY2025, 17 since wound down; 6 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

22
36

Total granted

$11M
$5.7M

Median revenue growth · since first grant

+50%
+43%

Still filing today

45%
39%

New vs renewed · share of each year

In FY2025, 30% of grant dollars renewed an existing relationship; $545k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • EU
    Emory University
    3× · 2019–2021 · $751k · revenue +54%
  • Northwestern University
    4× · 2017–2025 · $550k · revenue +41%
  • CH
    Children's Hospital Corporation
    3× · 2019–2024 · $450k · revenue +75%

Funded once

  • VP
    VIRGINIA POLYTECHNIC INSTITUTE & STATE UNIVERSITY
    one grant, 2021 · $667k
  • UO
    UNIVERSITY OF KENTUCKY
    one grant, 2021 · $250k
  • RO
    REGENTS OF THE UNIVERSITY OF MICHIGAN
    one grant, 2024 · $250k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
3
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
4
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
5
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
6
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
7
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
8
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
9
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
10
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
11
Trustees of Boston University

Organization's mission: boston university is an international, comprehensive, private research university, committed to educating students to be reflective, resourceful individuals ready to live, adapt, and lead in an interconnected world.…

—
12
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
How this is measured
The grantee most central to the portfolio’s shape is Cornell University; the most unlike its peers is Treatments for Epilepsy and Symptoms of. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

35 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 35 of the 73 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
3
Early backer (in before they grew)
35/35
Grantees still filing
33/35
Grew since first funded

Where the money sits, by cause and then by grantee

MASS GENERAL BRIGHAM INCORPORATED: $2,898,811 · OtherMASS GENERAL BRIGHAM INCORPORATEDMID ATLANTIC EPILEPSY & SLEEP CENTER LLC: $886,581 · OtherMID ATLANTIC EPILEPSY & SLEEP CENTER LLCUNIVERSITY OF FLORIDA: $838,778 · OtherUNIVERSITY OF FLORIDAVIRGINIA POLYTECHNIC INSTITUTE & STATE UNIVERSITY: $667,200 · OtherVIRGINIA POLYTECHNIC INSTITUTE & STATE UNIVERSITYTHE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS: $530,000 · OtherUniversity of Wisconsin Madison: $514,970 · Other+33 more: $5,668,492 · Other+33 moreVIRGINIA TECH FOUNDATION INC: $2,058,052 · EducationVIRGINIA TECH FOUNDATION INCTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,112,252 · EducationTRUSTEES OF THE UNIVERSITY OF PENNS…Emory University: $751,000 · EducationEmory UniversityTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $643,933 · EducationTHE BOARD OF TRUSTEES OF THE LELAND…THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $434,854 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY…MOREHOUSE COLLEGE: $322,790 · EducationUNIVERSITY OF SOUTHERN CALIFORNIA: $297,232 · EducationBRANDEIS UNIVERSITY: $250,000 · EducationThe Research Foundation for The State University of New York: $250,000 · Education+7 more: $661,339 · Education+7 moreChildren's Hospital Corporation: $450,000 · HealthChildren's H…ST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $349,999 · HealthST JUDE CHIL…SEATTLE CHILDREN'S HOSPITAL: $320,000 · HealthSEATTLE CHIL…CHILDREN'S HOSPITAL MEDICAL CENTER: $250,000 · HealthCHILDREN'S H…RESEARCH FOUNDATION FOR MENTAL HYGIENE INC: $250,000 · HealthRESEARCH FOU…DUKE UNIVERSITY HEALTH SYSTEM INC: $249,908 · HealthDUKE UNIVERS…THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 · HealthTHE JACKSON LABORATORY: $100,000 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $99,995 · HealthAMERICAN EPILEPSY SOCIETY: $95,750 · Health+5 more: $63,837 · HealthNorthwestern University: $550,000 · Recreation & SportsBROWN UNIVERSITY: $220,000 · Community ImprovementGORDON RESEARCH CONFERENCES INC: $72,756 · Science & Tech
Other$12,004,832Education$6,781,452Health$2,329,489Recreation & Sports$550,000Community Improvement$220,000Science & Tech$72,756

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetVIRGINIA TECH FOUNDATION INC: $2,058,052 over 4y, 0.6% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,112,252 over 7y, 0.0% of budgetEmory University: $751,000 over 3y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $643,933 over 5y, 0.0% of budgetNorthwestern University: $550,000 over 4y, 0.0% of budgetChildren's Hospital Corporation: $450,000 over 3y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $434,854 over 3y, 0.0% of budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $349,999 over 2y, 0.0% of budgetMOREHOUSE COLLEGE: $322,790 over 2y, 0.2% of budgetSEATTLE CHILDREN'S HOSPITAL: $320,000 over 2y, 0.0% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $297,232 over 3y, 0.0% of budgetBRANDEIS UNIVERSITY: $250,000 over 1y, 0.1% of budgetNEW YORK MEDICAL COLLEGE: $250,000 over 1y, 0.2% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $250,000 over 1y, 0.0% of budgetThe Research Foundation for The State University of New York: $250,000 over 1y, 0.0% of budgetRESEARCH FOUNDATION FOR MENTAL HYGIENE INC: $250,000 over 1y, 0.1% of budgetDUKE UNIVERSITY HEALTH SYSTEM INC: $249,908 over 1y, 0.0% of budgetBROWN UNIVERSITY: $220,000 over 1y, 0.0% of budgetYale University: $165,000 over 3y, 0.0% of budgetBaylor College of Medicine: $162,149 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $117,500 over 2y, 0.0% of budgetCornell University: $115,190 over 1y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 over 1y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $99,995 over 1y, 0.0% of budgetAMERICAN EPILEPSY SOCIETY: $95,750 over 6y, 0.2% of budgetTrustees of Tufts College: $84,000 over 2y, 0.0% of budgetGORDON RESEARCH CONFERENCES INC: $72,756 over 5y, 0.1% of budgetMAYO CLINIC: $28,617 over 2y, 0.0% of budgetVanderbilt University Medical Center: $13,634 over 1y, 0.0% of budgetVanderbilt University: $10,000 over 1y, 0.0% of budgetInternational League Against Epilepsy: $8,086 over 1y, 0.2% of budgetSTXBP1 FOUNDATION: $7,500 over 1y, 7.1% of budgetBAYLOR UNIVERSITY: $7,500 over 1y, 0.0% of budgetTreatments for Epilepsy and Symptoms of: $6,000 over 1y, 0.9% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds VIRGINIA TECH FOUNDATION INC ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds Emory University ↗
  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds Northwestern University ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
  • Who funds MOREHOUSE COLLEGE ↗
  • Who funds SEATTLE CHILDREN'S HOSPITAL ↗
  • Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
  • Who funds BRANDEIS UNIVERSITY ↗
  • Who funds NEW YORK MEDICAL COLLEGE ↗
  • Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
  • Who funds The Research Foundation for The State University of New York ↗
  • Who funds RESEARCH FOUNDATION FOR MENTAL HYGIENE INC ↗
  • Who funds DUKE UNIVERSITY HEALTH SYSTEM INC ↗
  • Who funds BROWN UNIVERSITY ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

American Epilepsy Soc…National Philanthropi…Vanguard Charitable E…American Online Givin…Donor Advised Charita…Fidelity Investments …Amazonsmile Foundation
American Epilepsy SocietyIL15.7× affinity5 shared granteesties to 6 of 6Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Epilepsy Society · National Philanthropic Trust · Vanguard Charitable Endowment Program · American Online Giving Foundation Inc · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Citizens United for Research in Epilepsy funds: left to right is the share of its income from government, bottom to top the share from Citizens United for Research in Epilepsy. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Trustees of Tufts College: 13% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • Brandeis University: 9% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 73 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Citizens United for Research in Epilepsy’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home